Posts - PSP Association | HealthUnlocked

PSP Association

9,342 members • 11,393 posts

All posts for April 2015

THE S.A.L.T .AND ME

HI I SAID I WOULD LET YOU KNOW HOW I GOT ON WITH THE SALT WHO CAME OT C ME ON TUESDAY AM OF THIS WEEK DESPITE MY SPEECH HAVING GOT MUCH QUIETER AND MORE...

HI I SAID I WOULD LET YOU KNOW HOW I GOT ON WITH THE SALT WHO CAME OT C ME ON T...

•9 years ago

I am a new member

I am a 65year old woman with psp. I live in France and I need people to write to.

I am a 65year old woman with psp. I live in France and I need people to write t...

•9 years ago

jhon

my jhon canrt have the peg he was sent home on the 6 jan on the path way for dying i pulled him through now he hardly speaks i miss that with him hope you are...

my jhon canrt have the peg he was sent home on the 6 jan on the path way for dyi...

•9 years ago

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Eye problems

As well as double vision I now find it almost impossible to open my left eye independently of the right. I can open them both together but find this problem to...

As well as double vision I now find it almost impossible to open my left eye ind...

•9 years ago

Confused and frustrated

Everyday seems to get worse. Jim has gone from totally independent for toileting to incontinent in a matter or weeks. He is now needing help getting in bed and...

Everyday seems to get worse. Jim has gone from totally independent for toileting...

•9 years ago

I kept my cool

I have just felt like a school marm lecturing a couple of naughty kids. The 2 carers we have on a Tuesday evening are a couple of young girls and they do...

I have just felt like a school marm lecturing a couple of naughty kids. The 2 c...

•9 years ago

Mum has been diagnosed with CBD.

After 3 year of tests, hospital appts, etc has now been diagnosed with cbd. She currently lives on her own and is falling quite often. Im afraid of what the...

After 3 year of tests, hospital appts, etc has now been diagnosed with cbd. She ...

•9 years ago

Tesco never delivered.

Thank you all for your concern and comments. I thought I'd write a new post rather than answer everyone separately. No, they never delivered my goods. I...

Thank you all for your concern and comments. I thought I'd write a new post rath...

•9 years ago

DON IS LEAVING THE HOSPITAL

Hospice kept on driving me crazy about him going there and found one rehab center that will take him tomorrow. Actually decent one. He drove me crazy and the...

Hospice kept on driving me crazy about him going there and found one rehab cente...

•9 years ago

Thank you!

Thanks everyone for your responses to my last post, you all made me feel more positive! I've had a lovely day today with my mum and sister, went for lunch and...

Thanks everyone for your responses to my last post, you all made me feel more po...

•9 years ago

Not a good start to the day!

Been up since 4.45 when my darling husband decided it was time to swing his legs over the bars of his bed. I saw him on the monitor so ran downstairs, ( 3rd...

Been up since 4.45 when my darling husband decided it was time to swing his legs...

•9 years ago

Not coping today 😓

Had a really bad day, haven't slept well for two nights, Keith has fallen again today, says he doesn't like going to the hospice and doesn't want to go again,...

Had a really bad day, haven't slept well for two nights, Keith has fallen again ...

•9 years ago

Made it!

Hi folks! Well I got S home safe and sound! Oh, the stress and strain of trying to keep him safe for the last two months have been hard! Least now I know,...

Hi folks! Well I got S home safe and sound! Oh, the stress and strain of tryin...

•9 years ago

IM SURPRISED THAT SOMEONE ELSE H MSA ,I THINK IT'S FAR WORSE THAN ANY OF THE OTHER COUSINS....................

THANKS JB.........., FOR SGGESTING AMANTADINE, ONCE I TOOK & H AD HALUSINATIONS. HOW DO YOU USE CINNAMEN ? MY DR TOLD ME THAT PAPAYA IS GOOD IT HELPS W/...

THANKS JB.........., FOR SGGESTING AMANTADINE, ONCE I TOOK & H AD HALUSINATION...

•9 years ago

RIP

My mother passed away peacefully on Sunday with us all at her bedside. The doctors got it completely right with their prognosis of PSP and that mum was at the...

My mother passed away peacefully on Sunday with us all at her bedside. The doct...

•9 years ago

Does any one have MSA???????? IT IS a cousin of PSP & PD.... YET MORE PROGRESIVE ,,,,,,,,,,,

MY new NEUROLOGIST DIAGNOSED IT AFTER A CO,PLTE EXAMINATION... I HAD EVERY PROBLEM THAT SAID ..MSA MULTIPLE SYSTEM ATROPHY . IN IT'S FULL STAGE.. MY...

MY new NEUROLOGIST DIAGNOSED IT AFTER A CO,PLTE EXAMINATION... I HAD EVERY PR...

•9 years ago

jhon

hi does anybody have any suport when it comes to the choking i had to go to the hospital just sent him home said they could do nothing i feel like people dont...

hi does anybody have any suport when it comes to the choking i had to go to the ...

•9 years ago

There are some lovely people out there!

Hi, just wanted to share an amazing thing that happened to me last night! Those of you who have been to South Africa, know there are security guards...

Hi, just wanted to share an amazing thing that happened to me last night! Tho...

•9 years ago

Wedding

Just a picture to say we are now mr mrs

Just a picture to say we are now mr mrs

•9 years ago

I did it!

Hi everyone, Well I actually managed to go out and get that long awaited haircut and am now sitting in the sunshine waiting for Keith to come home whilst...

Hi everyone, Well I actually managed to go out and get that long awaited haircu...

•9 years ago

More tears!

Keith has just left home in the back of a taxi in his wheelchair for his first visit alone to the the hospice and I'm crying again! He looked so alone sat...

Keith has just left home in the back of a taxi in his wheelchair for his first v...

•9 years ago

Wedding day

Jazgirl think of you both on this happy wedding day, wishing you both a happy day Yvonne and George xxxxxxx

Jazgirl think of you both on this happy wedding day, wishing you both a happy da...

Yvonneandgeorge

•9 years ago

Someone's Wedding Day

Wanted to be the first to say 'Congratulations'.

Wanted to be the first to say 'Congratulations'.

•9 years ago

2 HOURS TO GET HIM OFF THE SOFA

He froze on the sofa, couldn't get him to stand up and then he slid off to the floor. He wanted to go to the bathroom. Called my daughter and between the 2 of...

He froze on the sofa, couldn't get him to stand up and then he slid off to the f...

•9 years ago

HE IS HOME

Tired but home. They screwed up with his warfarin, it is not listed as something for him to take. Big mistake.Have to call them again.

Tired but home. They screwed up with his warfarin, it is not listed as somethin...

•9 years ago

lost

I keep writing things which disappear. What do I do wrong ? Where does it go ? Jean

I keep writing things which disappear. What do I do wrong ? Where does it go ? J...

•9 years ago

Psp

Thank u all again for all ur kind words we want to have a collection for Psp does any one no who we send it to thanks Debbie glyder

Thank u all again for all ur kind words we want to have a collection for Psp doe...

•9 years ago

TODAY

Don is coming home today :). I am nervous but so relieved he will be with me where he belongs.

Don is coming home today :). I am nervous but so relieved he will be with me whe...

•9 years ago

District nurse

We'll have a horrible day, nurse was suppose to come in today in the morning I had an appointment but canceled it, thought the nurse as more important, when it...

We'll have a horrible day, nurse was suppose to come in today in the morning I h...

Yvonneandgeorge

•9 years ago

Question for UK PSP patients and care givers

I have been watching the CNN report on Medical Marijuana. Has any one with PSP or care givers heard and reports about the Cannabinoids drug for helping PSP...

I have been watching the CNN report on Medical Marijuana. Has any one with PSP o...

•9 years ago

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