This is a post really for UK people who are attending the meet on March 6th.
Would either of these pieces of assistive technology be of any help to any of our loved ones ?
I've been clearing my mums place out this evening, as the house is now sold to pay her care home fees with her dementia, so these are going spare.
David had the same clock here at home, as his eyesight deteriorated with the PSP it meant he could still see the time whilst I was at work, and as his head dropped onto his chest later on, I was able to put it on the floor and lean it up on the TV unit so that he could still see it. Very useful in the PSP world I think.
The phone is one of the big button phones, so anyone in early to mid stages of PSP might find it useful as the fingers go stiff, and still be able to maintain some independence.
Free to an appreciative home, I can bring them down to the London meet if anyone wants them.
Derek
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Ratcliffe
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I did almost the same thing....I got B a big numeral phone....but he never used it....Got him a big clock and I still use that...So you are right there are things out there are very handy out there....I am going to start putting some of my more expensive stuff on Craigs list....or just give it away! Have fun at your London meet next month
I work for the local council n saw these on a visit to one of the support offices when Imwas working in IT so knew about the clocks, so applied for one for David and my mum from the OT/Adaptations people. I've kept Davids t use myself as I just like it, but just thought that my mums and the phone I bought for mum might be useful.
I would never have known this stuff existed if it hadn't have been for a fluke call out at work.
There are other things like speaking tablet reminders and tablet holders that will only open one door a day so you can't take too many tablets by mistake.
Many councils offer these things, but don't necessarily know how to publicise them.
You gave David so much love and care to ease his suffering as much as anyone could.
I just want you to know your struggle and love is remembered. And if you are like me the Carer guilt thing is laid on top of loss from deep loving and its hard.
So, I guess I'm just waiving to say you are a great guy. And that I hope you are doing as best as one might.
Hi Kevin, you are not wrong. I'd like to think that I did the best I could for David given my skill set, but every day I berate myself for shouting, not understanding, or struggling to cope with the demands that were,placed on me.
I think we all do, whether we be ex carers or current carers.
Thanks for your kind words, are you able to make the meet on the sixth ?
Me and you both on the berating etc... PSP has tested me beyond any limits I have known... and that includes the hot end of Police Operations with hostile or frightened folk holed up in 'situations'. I try not to feel ashamed. With PSP, because we love, the pain of what we face is horrendous. And then we face ourselves and how we 'should' be better. We are human.
Yes I will be there... Allah and a host of other gods willing
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