Posts - PSP Association | HealthUnlocked

PSP Association

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PSP Diagnosis Changed to PD

For over a year now, two neurologists have told us they believed my husband had PSP. He has all of the symptoms. The way his eyes don't go vertically was one...

For over a year now, two neurologists have told us they believed my husband had ...

Granny29335

•2 hours ago

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PD to PSP ?

Has anyone heard, read or experienced that someone who having been treated successfully for many years for Parkinson's has evolved into having PSP? I know...

Has anyone heard, read or experienced that someone who having been treated succ...

Gymsack

•1 day ago

2 Replies

A poetry book about dealing with PSP

I would like to share information about this book, as so little is written about this horrible disease. The author's husband was diagnosed with...

I would like to share information about this book, as so little is written about...

ElMarsam

•2 days ago

5 Replies

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Botox Around the eyes

I have seen few articles about relaxing muscle around the eyes area for psp patients with affected eyes problems, Any experience from anyone will be helpful,...

I have seen few articles about relaxing muscle around the eyes area for psp pati...

Candor8

•3 days ago

6 Replies

speech therapist questions

my mum will be visiting a speech therapist tomorrow, what are the areas you suggest the speech therapist should focus on? What questions do you think will be...

my mum will be visiting a speech therapist tomorrow, what are the areas you sugg...

Candor8

•3 days ago

3 Replies

Progressive supranuclear palsy and lightheaded

I’ve had psp for almost 4 years and always feel dizzy/lightheaded. Has anyone else experienced this and if so what have you done to resolve issue?...

I’ve had psp for almost 4 years and always feel dizzy/lightheaded. Has anyone ...

Wayne18

•3 days ago

4 Replies

Our mum was recently diagnosed with CBD

Our lovely, independent and previously very active mum, Chris, was diagnosed with CBD on 16th April 2024. Her symptoms started out over 3 years ago with loss...

Our lovely, independent and previously very active mum, Chris, was diagnosed wit...

joshwr

•3 days ago

2 Replies

CHS advise- Surrey heartlands

Hi all, I am wondering if anyone has had any success with securing or appealing CHC funding under the Surrey heartlands ICB? My dad's assessment was in March...

Hi all, I am wondering if anyone has had any success with securing or appealing ...

CJFreckles

•3 days ago

10 Replies

Practical aids

A few years ago, one kind member here sent me a memory aid alarm clock. Mum no longer needs this. Happy to post in UK if it could be of use to someone...

A few years ago, one kind member here sent me a memory aid alarm clock. Mum n...

Doublereeder

•4 days ago

4 Replies

My story

My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a...

My beautiful sister in law has after a long journey been diagnosed with PSP init...

Flowers2024

•6 days ago

6 Replies

black out

Hi. I’m wondering if anyone else has experienced this. My mum who has CBS finds that when she laughs now she blacks out and feels faint. She is finding that...

Hi. I’m wondering if anyone else has experienced this. My mum who has CBS finds ...

Helsbell

•8 days ago

2 Replies

Stuck cough on the throat

Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her...

Hi Everyone, My mum had her meal this evening and looks like the food went the...

Candor8

•13 days ago

15 Replies

London Marathon

Hi everyone, I just wanted to give an updat on the London Marathon. As many of you know, I posted in here that I was doing it for the PSPA, and quite a few of...

Hi everyone, I just wanted to give an updat on the London Marathon. As many of ...

Ratcliffe

•13 days ago

6 Replies

May 2024 Support Group

It's nearly that time again, hopefully see some of you there. ___________________________________ We are pleased to invite you to our next face-to-face meeting...

It's nearly that time again, hopefully see some of you there. __________________...

Zerachiel

•13 days ago

3 Replies

Congested nose

Hi, looking for some advice on how to assist someone with breathing when nose is congested. Unable to open mouth so really tricky when nose is stuffy. We are...

Hi, looking for some advice on how to assist someone with breathing when nose is...

HNGM

•13 days ago

2 Replies

My poor mum 😞

Not only has mum got psp ,been to the hospital today only be told by the heart specialist that she has severe heart failure as well .I know she is 86 years of...

Not only has mum got psp ,been to the hospital today only be told by the heart s...

Blitzford72

•14 days ago

4 Replies

Flashing lights

As posted previously about my mum's eye sight ,but a new one appeared today .She has flashing lights in her eyes ,is this a common complaint with psp ??

As posted previously about my mum's eye sight ,but a new one appeared today .She...

Blitzford72

•14 days ago

4 Replies

~Am I really?

two years ago I was diagnosed with PSP. I had had over 200 falls in 3 years then dizzyness that won't stop. Now I walk with a rollator which I have used for 2...

two years ago I was diagnosed with PSP. I had had over 200 falls in 3 years then...

rocklady73

•14 days ago

17 Replies

Our Dad's journey

Our hearts are broken as our dad passed away on April 15th. We wanted to summarise his journey and symptoms to hopefully help others and to also raise...

Our hearts are broken as our dad passed away on April 15th. We wanted to summari...

DALLY123

•15 days ago

19 Replies

At peace

My beautiful Ben passed away on Monday and is now free of this terrible disease. My heartfelt thanks to everyone who contributes to this site. My partner died...

My beautiful Ben passed away on Monday and is now free of this terrible disease....

Goodact

•16 days ago

18 Replies

psp2024

my father was diagnosed Psp.

angy24

•16 days ago

3 Replies

Dad's Walking getting worse.

Hi there. My dad was diagnosed last year and my sister and I are just trying to help him navigate this awful disease as much as we can. He is still quite...

Hi there. My dad was diagnosed last year and my sister and I are just trying to ...

mamamermaid1

•17 days ago

17 Replies

Progressive supranuclear palsy research participation

Hello Sir/Madam, Please find the patient details I have submitted to participate in research and treatment of progressive supranuclear palsy. 1 PSP –...

Hello Sir/Madam, Please find the patient details I have submitted to particip...

1Brijesh

•17 days ago

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Mum's PSP

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,her speech has really got very bad over the past month and I just wondered if...

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,he...

Blitzford72

•18 days ago

9 Replies

Choking with psp.

Hi only just joined this group and was hoping for a little information/ advise. My mum has psp and is now choking on everything she tries to eat and drink. My...

Hi only just joined this group and was hoping for a little information/ advise. ...

Jellybean219

•18 days ago

17 Replies

psp awareness week #wecare

Just noticed this on X today. And huge well done to everyone who ran in the London Marathon today raising funds for PSPA!!

Just noticed this on X today. And huge well done to everyone who ran in the Lond...

NicolaD15

•19 days ago

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Speech production technology

Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to...

Has anyone tried speech production technology, such as Stephen Hawking used, for...

TourEiffel

•20 days ago

4 Replies

London Marathon

Good Luck to James Weston and Luke Catleugh who are both running for the PSPA tomorrow in memory of Chris Weston. We'll all be cheering you on. xx

Good Luck to James Weston and Luke Catleugh who are both running for the PSPA to...

AnneandChris

•20 days ago

2 Replies

Orangetrunk

This is the first time I've posted. I live in California and heard about HealthUnlocked so thought I'd give it a try. My husband of 53 years has been...

This is the first time I've posted. I live in California and heard about Health...

Orangetrunk

•20 days ago

9 Replies

London marathon

Good luck James and Derek running in the London marathon tomorrow waving the PSPA banner!

Good luck James and Derek running in the London marathon tomorrow waving the PSP...

Doublereeder

•21 days ago

2 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

PSP Diagnosis Changed to PD

PD to PSP ?

A poetry book about dealing with PSP

Botox Around the eyes

speech therapist questions

Progressive supranuclear palsy and lightheaded

Our mum was recently diagnosed with CBD

CHS advise- Surrey heartlands

Practical aids

My story

black out

Stuck cough on the throat

London Marathon

May 2024 Support Group

Congested nose

My poor mum 😞

Flashing lights

~Am I really?

Our Dad's journey

At peace

psp2024

Dad's Walking getting worse.

Progressive supranuclear palsy research participation

Mum's PSP

Choking with psp.

psp awareness week #wecare

Speech production technology

London Marathon

Orangetrunk

London marathon

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive