PSP Association | HealthUnlocked

Having lost my wife earlier this year with this terrible disease, and watching this collection of tragic stories and cries for help over the months before and...

My father was diagnosed with PSP in 2016 .. which was post a few backward falls .. I had noticed a few changes besides balance issues like not blinking for...

Our journey with PSP has been brief .. compared to many on here. From symptoms showing up to passing I would estimate 4 years. Diagnosed in May 2023 after a...

Hi , just thought I would post on here to let everyone know that my dad passed away early yesterday morning. He had PSP and liver cancer. He had loved ones...

My husband had been experiencing various problems for some years including limbs on his left side feeling strange, gradual problems with speech, falls,...

Hi, I witnessed my mum having a seizure yesterday eve which is the most scary experience I have had. Mum was in bed, I had just administered her meds and went...

Just an update on mum. She finally passed peacefully on 27th Aug 2024. A courageous battle until the end. We are in awe of her. I'm heartbroken by her journey....

My mum is getting worse, neurologist said in final stages. Mum lives in aged care and requires assistance for everything. She rings bell on averages 6 times a...

My husband (59) has mid-stage PSP ( diagnosed May 21, fully wheelchair bound and fairly severe speech/eating issues) We've been awarded some funding for...

Hi there, this is my first post here... My mother was diagnosed with PSP in 2021, and in 2022 she fell and broke her hip. After a series of botched operations...

My husband leans a lot to the left which makes his arm ache when leaning it on the arm of his recliner. Has anyone any suggestions how to keep him in an...

Hi, I'm new here. Yesterday, after 2 years of searching, my 75-year-old mother was finally diagnosed. We are from Poland, where there is no other treatment...

Good morning, fellow travelers on this horrid journey! My husband was diagnosed with CBD about 5 years ago. He is now bed bound, can barely speak and requires...

is there a group in/near Halifax, West Yorkshire? Anyone interested in starting one?

I'm only 66 and have had no real issues up till now - speech maybe rather quiet and slurred. But the last couple of days have had a really sore right foot...

hello, my husband is now in the hospital, on oxygen and what seems endless antibiotic’s. They have told us that he is nearing the end, he keeps having spasms...

I got a call this morning from the home. Here now, mum is on the pathway, so I'm hoping she finds peace soon x

Hello everyone. My mom was diagnosed with PSP on May 31st of this year but has been experiencing symptoms for about two and a half years now. She is only 56...

hi there ! Ian Maria Hipolito’s and was a nurse by professio I am a Filipino but presently residing at 113 Fordham Road,Ford estate,Sunderland, was recently...

Has anyone’s loved ones experienced Full Body Tremors & Excessive sweating with PSP. ? My husband has these on a fairly regular basis now. Lasting 2-6 days....

Hi everyone, I have been a member of this site for a year now and read the posts regulary, taking great advice and comfort from you all. My 67 year old mum has...

Dear All, I apologise now for the rant, but I'm so frustrated. I finally managed to get Mum's nursing home to complete a Continuing Healthcare Checklist in...

How do I save posts in Health Unlocked? I've searched 'Help' but there is nothing there. It's obvious how to retrieve saved post, but not obvious how to save...

Good morning, My husband was diagnosed with PSP in October 2021. His speech and mobility are really bad. He recently had a super pubic catheter fitted due to...

Sadly, Mum is no longer here but at rest and free from the vile PSP. In the end, death was very peaceful and not a lingering one and for that I am extremely...

My mum has CBD and is now mostly in bed in her nursing home because moving and sitting up brings on pain. She has no ability left to move her limbs but still...

We are still here, frailer and sadder. Lost count of the number of chest infections since the last post. She usually responds to antibiotics but hasn't this...

The tremors in my husbands right arm are becoming more frequent and whilst I try to stop the shaking by placing my hand on his arm they start again which is...

Hi everyone. Mum has recently started having really distressing vivid dreams . This morning she pressed her lifeline button as she was convinced I was dead and...

hi!… My sister was dx with PSP at age 79; she lived alone , no grown children, husband deceased for several years; she contacted me when she was in Rehab after...