tell the USA health and human services what you think about the current state of prostate cancer treatment

[Darryl]

The USA wants to know how your urologist is treating you!

Request for Information (RFI): HHS Initiative to Strengthen Primary Health Care

Comments are due August 1, 2022. Comments should be sent via email to [e-mail] and must not exceed four pages, 12-point font. Include a CC to [e-mail]

It could be either in the body of the email or as a .docx attachment

The subject line of the email should be “Primary Health Care RFI.”

The RFI is open to anyone – patients, caregivers, physicians, etc

.  The goal in the RFI is to;• Support health and wellness through sustained partnerships with patients, families, and their communities There are a few areas open for comments that Malecare and its community members may wish to address in the RFI. Some suggestions include:• Discuss how urologists deliver care that matches a patient’s goals.• How the urology provider contributes to or subtracts from the overall health of the patient.

This is a super opportunity to share your real-world experience with prostate cancer to policy makers who control billions of $US I will be asked for comments but I want to read and support your comments first, so please write and email before July 29

Sent by

Darryl Mitteldorf, LCSW

Executive Director

Malecare

[JRPnSD]

I am not understanding exactly what it is you are asking for. Our stories concerning lack of cohesive approach to care? Examples of delayed treatment/diagnosis (like my 18 month delay in getting a biopsy)? Lack of following established guidelines like NCCN?

[Darryl Partner in reply to JRPnSD]

The HHS wants to develop a “comprehensive “ or, as you said, cohesive, primary care model that includes specialists like urologists. So it’s useful if they knew the real world experience of your care under your urologist.

[JRPnSD in reply to Darryl]

Thanks. I think putting the RFI link would be helpful for all those interested in participating.

[Darryl Partner]

Good work

[Currumpaw]

Would anyone's identity or reply be shared outside the agency? Could this open someone up to a liability? Libel and slander are considered civil tortes.

I am certain there are some who will not respond because of concerns of retaliation.

If responses are honest and factual with data backing up the submission, there shouldn't be any unwanted consequences.

Just saying, one should be careful what they write.

This is something would certainly be beneficial.

Currumpaw

[JRPnSD]

medworm.com/1006256604/hhs-...