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Older question but curious still

ODave profile image
9 Replies

Hey Everyone

I had posted this on Inspire but never did here to get any feedback, just curious if anyone has had anything like it.

Weird question to see if anyone might know about this. This is the reader’s digest versions since it’s was several years in the making. I wonder if any of this could be related to the PCa? When the whole Prostate thing started years ago with the urine frequency and the Dr saying prostatitis etc. and giving me antibiotics for it, about the same time I got this crazy arthritis like syndrome. I was always pretty healthy and jogging weights etc. but late 2014 pain started in feet so much I couldn’t walk next the knees then hips etc. all the way up. I would feel like I was locked up all over. Back and forth with Drs first they said it was my back or knees but it wasn’t. Finally they checked and had elevated blood inflammation by then I was a real mess I Hurt so bad all over hard to walk bend down you name it. Over the next few years it calmed down so I could at least function again. I’ve seen 5 different Rheumatologist and all 5 have had a different diagnosis from RA to Polymyalgia. I finally said forget it last year since I wasn’t getting anywhere with them. I still have a ton of pain especially at night. The shoulders, hips, ribs all hurt a lot. Some days I can’t wait to get out of bed. It wakes me up pain all over and the bone cracking noises all over too. Right now left crotch and right underarm pain (like it’s sore) I can’t help wonder if it’s somehow related to the PCa

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ODave
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9 Replies
Tall_Allen profile image
Tall_Allen

What drugs/supplements are you taking?

ODave profile image
ODave in reply to Tall_Allen

Currently nothing. Before I was taking multi vitamin and when I remembered a Vit D also since I was on the low side with D in 2014. Also used to take fish oil pill once a day but stopped a few years ago

Tall_Allen profile image
Tall_Allen in reply to ODave

I asked because statins can have that effect. There is such a thing as a paraneoplastic syndrome or a carcinomatous polyarthritis where the immune reaction to a cancer can trigger an autoimmune reaction. It's rare but it does occur. I'm sure you've tried all sorts of NSAIDs and corticosteroids.

ODave profile image
ODave in reply to Tall_Allen

I read up on paraneoplastic syndrome when I 1st got sick with it. This was prior to knowing about the PCa, I’ve brought it up to a few of the Drs I saw and no one really paid much attention to it. I had read that anyone who has a total body issue like Polymyalgia should also be investigated for PCa this was 4-5 years before diagnosis. Makes me wonder. It was really bad for awhile a few years. It’s not acute now like it was but still hurts and all my joints crack and pop a lot..

Justfor_ profile image
Justfor_ in reply to ODave

Interesting! Starting some years ago, walking normally for an hour or more my right knee would start to hurt. It comes with the age, I thought. Things, slowly but steadily, aggravated with time. Last year, just after the RP I would take the lift for a single flight of stairs (the worse case was going down, not up). All time worst knee performance. By this time I started taking a long list of supplements and very soon knee became as good as it was a decade back or more. Since a year today, I climb 4 flights of stairs 2-3 times a day as the lazy man's exercise. Going down the stairs is walk in the park, no limit to it. Up until reading your post I attributed this notable improvement to the supplementation and/or a body weight loss (~5kgr) post surgery. Now, I have another possible candidate to credit the improvement...

fluffyfur profile image
fluffyfur

This really struck a nerve. No pun intended. Right before his diagnosis, hubs kept complaining of severe pain in his hands and feet. I mean severe. He is thin and active so weight wasn't an issue. He also doesn't take supplements other than a vitamin and fish oil. Lab tests showed nothing really. Yes it could be age, but maybe it is/was the PCa. He says after his RP his feet feel a little bit better, but his hands do ache.

Currumpaw profile image
Currumpaw

Hey ODave!

Any joint, ligament, tendon, soft tissue and even aortic aneurysms may be traced back to fluoroquinolone drugs popular with urologists to prevent sepsis. These drugs have killed people. Aortic aneurysms increase 100 %. Use you search bar. Copy the entire script below to get started. One thing that my chiropractor who diagnosed the damage Cipro and Levaquin did to me is that old, even long healed injuries are like the low hanging fruit for these drugs. She has decades of experience and has seen the joint, ligament, tendon and soft tissue damage associated with the use of these drugs.

The FDA has been issuing stronger warnings, first a little stronger and then more stringent.

Disabling and potentially permanent side effects lead to ...

ema.europa.eu/en/news/disab......

Currumpaw

ODave profile image
ODave in reply to Currumpaw

I looked into that also. I think one of the rounds of antibiotics the Uro did was one of those. I was on it for a few months. I think the Drs dismisses that since my blood inflammation levels were up ESR and CRP when I was really having the pain all over.

Mjex profile image
Mjex

A few months before I was diagnosed with PC, I developed non-uremic, psuedo-gout, which was extremely painful and my toe definitely swelled. Prednisone quickly resolved the issue, but maybe there is a connection. My wife has always thought that it was too coincidental.

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