Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,490 members • 38,458 posts

All posts for May 2024

Omeprazole

Greetings all, my first post here after recently discovering this excellent resource. A question about omeprazole please. I have been on a typical taper from...

Greetings all, my first post here after recently discovering this excellent reso...

BlueKiwi

•6 days ago

8 Replies

PMR and severe neck spasms

Has anyone had experience of severe neck spasms with PMR? I was a long time being diagnosed PMR approx 3.5 yrs ago.-- usual high dose prednisolone etc which I...

Has anyone had experience of severe neck spasms with PMR? I was a long time bei...

attempttocycycle

•6 days ago

13 Replies

GCA relapse ?

I have been on prednisolone for the last two years for PMR i was on 4mg ,in March diagnosed with GCA had a temporal biopsy and ultrasound both with negative...

I have been on prednisolone for the last two years for PMR i was on 4mg ,in Marc...

Buster1610

•6 days ago

5 Replies

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What is the best time to take Pred and how long does it work?

I have been looking for a link to find an answer myself, but could not see a timetable set out. There are various comments like take at 4 a.m. or 2 a.m. with...

I have been looking for a link to find an answer myself, but could not see a tim...

Motida

•6 days ago

4 Replies

Help with steroid induced hyperglycaemia

My story is in my bio as it’s rather long! Is there anyone out there managing Steroid Induced Hyperglycaemia? As I started on 70mg and had to stay on it for 6...

My story is in my bio as it’s rather long! Is there anyone out there managing S...

AmberGamble

•6 days ago

14 Replies

When the headlines tell us eating something means we will die "early" - or will we?

More reading - lots of big strange words and some statistics, but read slowly and carefully it does explain to us how valuable - or otherwise - those...

More reading - lots of big strange words and some statistics, but read slowly an...

PMRpro

Ambassador•6 days ago

5 Replies

Balance is back-what now?

A year ago I fell twice and feared navigating the stands at basketball games. Now I have been symptom free for almost two weeks and I am moving up and down...

A year ago I fell twice and feared navigating the stands at basketball games. No...

papadapadoo

•6 days ago

2 Replies

Who is confused? My surgery or me?

I was asked by the GP to remind him, when I reached 3mg in my tapering, that I should have a synacthen test. I have now done so. However, I am being sent for...

I was asked by the GP to remind him, when I reached 3mg in my tapering, that I ...

ChinaWuntoo

•6 days ago

8 Replies

I'm busy doing nothing - could PMR/GCA be telling us we need to let ourselves do less?

This is a link to an article in the Guardian...

PMRpro

Ambassador•6 days ago

9 Replies

Statins in older patients and their benefits

There is, not surprisingly, a lot of discussion here about us taking statins and one of the points often made is that there has been little evidence of benefit...

There is, not surprisingly, a lot of discussion here about us taking statins and...

PMRpro

Ambassador•6 days ago

59 Replies

Cortisol test before or after Prednisolone

Been taking Prednisolone for 18months or so and am currently working my way down from 3mg to 2mg . So far apart from a couple of mini flea . I am doing OK....

Been taking Prednisolone for 18months or so and am currently working my way down...

Amerloque

•6 days ago

9 Replies

Struggling with flare..if it is flare

Hi all.Had PMR since Feb. 2020. All in all not been too bad and able to cope most of the time. Usually aching knees and occasionally in wrists. 2 weeks ago was...

Hi all.Had PMR since Feb. 2020. All in all not been too bad and able to cope mos...

Poll8

•7 days ago

3 Replies

1 mg after 4 years

I have emailed my doc but, I am consulting with the experts here! So, four years and I reduced to 1 mg about 1 1/2 months ago. Did well before that , so I...

I have emailed my doc but, I am consulting with the experts here! So, four year...

paleolady

•7 days ago

13 Replies

not pmr again

Well much to my surprise my pmr symptoms appear to have been caused by the Covid vaccination that I had last week. As I posted, my GP suggested that I hold off...

Well much to my surprise my pmr symptoms appear to have been caused by the Covid...

Crowsfeet

•7 days ago

7 Replies

8years PMR this week

hi Thought I would share my 8year journey with you all. Sorry it’s a bit long x It was the day before my visit to the Chelsea show 2016 that I was...

hi Thought I would share my 8year journey with you all. Sorry it’s a bit long...

9lives

•7 days ago

28 Replies

Newly diagnosed PMR

Hello. I’ve joined here because it is mentioned in many of the sources I haven been using trying to make sense of what I’m going through. So I’m newly...

Hello. I’ve joined here because it is mentioned in many of the sources I haven b...

NewPMR53

•7 days ago

32 Replies

Jekyll and Hide face

I have GCA (stroke in optic nerve in 2016, right eye). The right side of my face is now noticeably wrinklier than the other - am I right in supposing it...

I have GCA (stroke in optic nerve in 2016, right eye). The right side of my fa...

Hobbitses

•7 days ago

10 Replies

Balancing symptoms and pred dosage?

Hi - MrPMR started on 20mg of Pred last Tuesday, had the typical 'spectacular' response, and went from barely walking/not able to turn over in bed, to being...

Hi - MrPMR started on 20mg of Pred last Tuesday, had the typical 'spectacular' r...

MrsPMR

•7 days ago

21 Replies

PMR diagnosis

Hi, this is the first time posting on this platform as I have just had a diagnosis of PMR after four years. (I am not complaining as I realise it can be...

Hi, this is the first time posting on this platform as I have just had a diagnos...

Hightower62

•7 days ago

14 Replies

A holiday is good as a rest…listen to your body

Just came back from two weeks in Cyprus after being diagnosed with PMR in March this year. On 17.5mg of Pred after four weeks of 20mg. Hoping to taper to 15mg...

Just came back from two weeks in Cyprus after being diagnosed with PMR in March ...

Shadowboxes

•7 days ago

4 Replies

How do you come down from the pred high?

I wrote what follows as a response to someone else mentioning the pred high but then realised it should have been a new post. So here it is again, edited and...

I wrote what follows as a response to someone else mentioning the pred high but ...

Almostaweed

•7 days ago

7 Replies

Stupid O’Clock.

No let up yesterday in upper body. But hubby did say I was walking correctly for the first time in ages. Shoulder feels a bit better at this ungodly hour so...

No let up yesterday in upper body. But hubby did say I was walking correctly fo...

TiaPasha

•7 days ago

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When PMR Goes Away

When first diagnosed with PMR and feeling like I was never going to be myself again, some friends, acquaintances and even a couple medical professionals...

When first diagnosed with PMR and feeling like I was never going to be myself ag...

fondofforest

•7 days ago

26 Replies

COVID time again

Hubby got COVID jab on Saturday and on Sunday in bed and that's strange for him ,he's a big guy 6ft 2in and a good healthy build, sister also got her COVID and...

Hubby got COVID jab on Saturday and on Sunday in bed and that's strange for him ...

Harrywogan

•7 days ago

30 Replies

Ibruphen tablets v gel

hello all well, here “up north” earlier this evening we had the most horrendous thunderstorm lasting 30 mins - and with huge hailstones -and, I kid you not,...

hello all well, here “up north” earlier this evening we had the most horrendous...

Doraflora

•8 days ago

77 Replies

Steroid Injection

Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible...

Hi All, I'm feeling very confused after my last Rheumatology appointment. I firs...

Soinoi

•8 days ago

14 Replies

I know I’m having a flare-rheum disagrees

Hi Friends- I was diagnosed with GCA in April ‘23 after a five day hospitalization. My symptoms: severe headaches, teeth and jaw pain and excruciating right...

Hi Friends- I was diagnosed with GCA in April ‘23 after a five day hospitalizati...

Birdfriend

•8 days ago

11 Replies

PMR from taper or osteoarthritis

well I have posted history before so try make this short as I can, started to taper from 4 to 5 mgs pred Mar 19, after feeling tear (showed in MRI) I felt was...

well I have posted history before so try make this short as I can, started to ta...

arvine

•8 days ago

12 Replies

Proud mum.

My eldest brilliant beautiful daughter is running the Great Manchester Run today in a lead weighted vest of course, well she is part Viking. Rising money for...

My eldest brilliant beautiful daughter is running the Great Manchester Run today...

TiaPasha

•8 days ago

3 Replies

ultrasound scan

I was diagnosed with PMR in November 2023 based on typical physical symptoms and a blood test that showed high inflammation. In April, after 6 months of...

I was diagnosed with PMR in November 2023 based on typical physical symptoms and...

Palgeo

•8 days ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

Omeprazole

PMR and severe neck spasms

GCA relapse ?

What is the best time to take Pred and how long does it work?

Help with steroid induced hyperglycaemia

When the headlines tell us eating something means we will die "early" - or will we?

Balance is back-what now?

Who is confused? My surgery or me?

I'm busy doing nothing - could PMR/GCA be telling us we need to let ourselves do less?

Statins in older patients and their benefits

Cortisol test before or after Prednisolone

Struggling with flare..if it is flare

1 mg after 4 years

not pmr again

8years PMR this week

Newly diagnosed PMR

Jekyll and Hide face

Balancing symptoms and pred dosage?

PMR diagnosis

A holiday is good as a rest…listen to your body

How do you come down from the pred high?

Stupid O’Clock.

When PMR Goes Away

COVID time again

Ibruphen tablets v gel

Steroid Injection

I know I’m having a flare-rheum disagrees

PMR from taper or osteoarthritis

Proud mum.

ultrasound scan

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