Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,424 members • 38,312 posts

All posts for May 2024

Dreams or nighmares

Hi all, has anyone suffered a similar situation I am going through? In the last probably 4 weeks I'm having amazing dreams and nightmares, practically every...

Hi all, has anyone suffered a similar situation I am going through? In the last ...

Strider68

•6 hours ago

5 Replies

Aching calf muscles

Hello again everyone. I have had Maderna jab, then the flu, cough etc, but not covid. All other ailments, except cough had subsided...but now aching calf...

Hello again everyone. I have had Maderna jab, then the flu, cough etc, but not c...

Temoral

•6 hours ago

3 Replies

Itchy skin symptom?

I usually sleep well (fatigued) but last night I could not fall asleep because of intense itching, mostly on my hands and wrists. I thought it must be...

I usually sleep well (fatigued) but last night I could not fall asleep because o...

kangaroojohn

•9 hours ago

1 Reply

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Lower stomach pain

Hi all. I am looking for advice as I’ve just had a rather underwhelming telephone conversation with a GP about stomach pain. To summarise, I had really bad...

Hi all. I am looking for advice as I’ve just had a rather underwhelming telephon...

Indigo2417

•9 hours ago

2 Replies

How long for a reduction to stick?

Hi I was diagnosed in January 2024 - classic symptoms but no elevated markers. Started at 20 mg and in days I felt amazing - all symptoms were gone. I...

Hi I was diagnosed in January 2024 - classic symptoms but no elevated markers. ...

NCStateLine

•10 hours ago

2 Replies

NHS Ambulance service

Hi, I'm from NZ so have no experience or knowledge of the health system over there in the UK. However, I've been watching a reality series based on the...

Hi, I'm from NZ so have no experience or knowledge of the health system over the...

Monkey321

•10 hours ago

7 Replies

blood sugar up

blood sugar up also weight is getting out of control not due to eating too much.or am I kidding myself.

blood sugar up also weight is getting out of control not due to eating too much....

Bluemoon2023

•11 hours ago

3 Replies

What is goimng on?

Good morning, PMR left my body probably @ 2 years ago however, I still have a few issues...My right hand has been very stiff and sore for awhile and then it...

Good morning, PMR left my body probably @ 2 years ago however, I still have a ...

whitefishbay

•11 hours ago

3 Replies

Thank You

Thank you for all your helpful reassuring replies. 😊

Anieand

•14 hours ago

1 Reply

Low Carb From the Start!

I have had PMR since May 2017 so yes, I'm celebrating my 7th anniversary! I DO wish I had started eating low carb from the moment I took my first Prednisone...

I have had PMR since May 2017 so yes, I'm celebrating my 7th anniversary! I DO ...

Louisa1840

•14 hours ago

2 Replies

Off Prednisone!

I have been on Prednisone for 2 1/2 years. I finally took my last dose about a month ago. I am wondering if it takes a while for this to get out of your...

I have been on Prednisone for 2 1/2 years. I finally took my last dose about a ...

BigLoser

•1 day ago

9 Replies

Methotrexate and sun exposure

Hi I'm looking for a bit of advice. I'm going to Croatia on Thursday for a pre-surgery holiday and have just been reading about the link between Methotrexate...

Hi I'm looking for a bit of advice. I'm going to Croatia on Thursday for a pre-...

Dance62

•1 day ago

33 Replies

burning Ali g spine

I have been diagnosed with GCA Dec 22, started prednisolone 30mg and have tapered a few times but have struggled below 12 and a half, I have recently had to go...

I have been diagnosed with GCA Dec 22, started prednisolone 30mg and have tapere...

Mumdadlove

•1 day ago

4 Replies

painful shoulders after dead slow taper to 2mg.

I was diagnosed with PMR in March 2019. I’ve finally managed to get to 2.25mg prednisone on a slow taper taking a month for 0.25mg drop. I also take...

I was diagnosed with PMR in March 2019. I’ve finally managed to get to 2.25mg pr...

HelenDaisy

•1 day ago

7 Replies

Methotrexate and skin sensitivity to sun.

There was a discussion on this last year and I am after some advice.I have been on MTX for 2 years and until last September I could be in the sun with no...

There was a discussion on this last year and I am after some advice.I have been ...

Oxfordboy2

•1 day ago

6 Replies

covid plan

hello all. Further to my message yesterday about cold v flare, I have just tested positive for COVID so I am after advice. Rest, obviously but I am planning to...

hello all. Further to my message yesterday about cold v flare, I have just teste...

marionofnorwich

•1 day ago

19 Replies

Should I take a bisphosphonate? A scientific analysis and discussion of why ...

There has been quite a lot of dicussion about this recently and I thought I would give you this link to read the background. But this quote certainly gives a...

There has been quite a lot of dicussion about this recently and I thought I woul...

PMRpro

Ambassador•1 day ago

24 Replies

blood sugar

I was on 25mg pred about to drop to 30 when vision became blurred put up to 30 after blood test showed I needed towas told to do blood sugar level and its 9.2...

I was on 25mg pred about to drop to 30 when vision became blurred put up to 30 a...

Alliekat65

•1 day ago

8 Replies

Low carbs

Im 2 years in on my PMR journey with a really bad flare last July. Which took me back to the beginning. After reading on here about eating a low carb diet. I...

Im 2 years in on my PMR journey with a really bad flare last July. Which took m...

LilyRose19

•2 days ago

13 Replies

Nutrition advice for pred users

I came across this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9080102/ Nutritional recommendations for patients undergoing prolonged glucocorticoid...

I came across this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9080102/ Nutri...

agingfeminist

•2 days ago

9 Replies

Pred side effects…memory

I have been on Prednisone for 5/years for PMR and GCA . I have had a pretty good run with no major side effects until this last flare 20 mg and my mind is not...

I have been on Prednisone for 5/years for PMR and GCA . I have had a pretty good...

Darcy2000

•2 days ago

5 Replies

Androlic acid

8 yrs ago I was diagnosed with breast cancer , I had lumpectomy , chemo , radio therapy . ongoing hormonal blockers for another 4 yrs, my oncologist wants me...

8 yrs ago I was diagnosed with breast cancer , I had lumpectomy , chemo , radio ...

SjDexDolly

•2 days ago

10 Replies

Dexa Scan Results

"This patient has low bone mass." No surprise really. I know what to expect or do I? I am tapering from 10mg yet again and down to 7mg Quite a few...

"This patient has low bone mass." No surprise really. I know what to expect ...

discoballs

•2 days ago

14 Replies

First Rheumy Visit, Lymphocyte/Neutrophil

Luckily, my rheumatologist was one I saw while in the hospital. She listened, explained, and answered questions. She is treating me for GSA even though my...

Luckily, my rheumatologist was one I saw while in the hospital. She listened, e...

Moaningxcat

•2 days ago

9 Replies

How long to stay on lower dose when tapering

Been on pred for over 7 yrs, got down to 4 mgs Dec 2022, then haf gca symtons rheumy increase to 49 again, had several issues in 2023, back, gluteal tears,...

Been on pred for over 7 yrs, got down to 4 mgs Dec 2022, then haf gca symtons rh...

arvine

•2 days ago

8 Replies

How long to stay on lower dose when tapering

Been on pred for over 7 yrs, got down to 4 mgs Dec 2022, then haf gca symtons rheumy increase to 49 again, had several issues in 2023, back, gluteal tears,...

Been on pred for over 7 yrs, got down to 4 mgs Dec 2022, then haf gca symtons rh...

arvine

•2 days ago

5 Replies

trigger fingers

I have been dealing with pmr for 8-9 years. Started at 15 mg. Been up and down from that for the last few years. I reached 7 mg this month. Started getting a...

I have been dealing with pmr for 8-9 years. Started at 15 mg. Been up and down f...

Linny3

•2 days ago

9 Replies

Dexa scan refusal

Hi, this is my first post after being diagnosed with PMR November 2023. The information from everyone on this forum has been invaluable, thank you. I started...

Hi, this is my first post after being diagnosed with PMR November 2023. The inf...

Yorkgirl2

•2 days ago

79 Replies

flare and a cold - what do I do?

hello all. In year 4 of PMR which started April 2020 , had just got down to 3mg in April 2022 and then got COVID. I didn’t know about sick day rules (or this...

hello all. In year 4 of PMR which started April 2020 , had just got down to 3mg ...

marionofnorwich

•2 days ago

7 Replies

Prednisolone and Dsyphagia

Hi Has any had any swallowing issues while reducing from prednisolone. That seems to be my latest annoying problem. It seems to be getting worse.

Hi Has any had any swallowing issues while reducing from prednisolone. That seem...

Raewynne

•2 days ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

Dreams or nighmares

Aching calf muscles

Itchy skin symptom?

Lower stomach pain

How long for a reduction to stick?

NHS Ambulance service

blood sugar up

What is goimng on?

Thank You

Low Carb From the Start!

Off Prednisone!

Methotrexate and sun exposure

burning Ali g spine

painful shoulders after dead slow taper to 2mg.

Methotrexate and skin sensitivity to sun.

covid plan

Should I take a bisphosphonate? A scientific analysis and discussion of why ...

blood sugar

Low carbs

Nutrition advice for pred users

Pred side effects…memory

Androlic acid

Dexa Scan Results

First Rheumy Visit, Lymphocyte/Neutrophil

How long to stay on lower dose when tapering

How long to stay on lower dose when tapering

trigger fingers

Dexa scan refusal

flare and a cold - what do I do?

Prednisolone and Dsyphagia

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