Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,424 members • 38,312 posts

All posts for February 2020

Pmr symptoms

Hi I have been diagnosed with pmr.and I am on a reducing dose of prednisone and aldronic acid once a week .since coming down to 6mg prednisone.i am...

Hi I have been diagnosed with pmr.and I am on a reducing dose of prednisone and ...

Wanne

•4 years ago

22 Replies

Magnesium

When I read Carolyn Dean's book The Magnesium Miracle, it was with an eye to osteoporosis and I didn't really pay much attention to magnesium's corrective role...

When I read Carolyn Dean's book The Magnesium Miracle, it was with an eye to ost...

HeronNS

•4 years ago

97 Replies

Actemra, Methotrexate, and the immune system

Getting actemra infusions about every six weeks along with methotrexate (2X/week). Both are immunosuppresive. Any idea if this places me at more of a risk for...

Getting actemra infusions about every six weeks along with methotrexate (2X/week...

grandemr

•4 years ago

10 Replies

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Super GP update

Two weeks ago I wrote of my super treatment from my GP , well as promised he has called me twice to review how I was on 30mg pred and after speaking to me...

Two weeks ago I wrote of my super treatment from my GP , well as promised he has...

Rosbud

•4 years ago

30 Replies

OA, PMR and tapering

Diagnosed with PMR 12/18 and OA (imaging) and inflammatory (sample of inflammation) knee arthritis 6/19. Playing with grandkids in ocean resulted in...

Diagnosed with PMR 12/18 and OA (imaging) and inflammatory (sample of inflammati...

visionatsea

•4 years ago

2 Replies

Desperately getting off short term Tramadol

Hi. I took 400 mg Tramadol a day for three weeks for severe shingles pain and after 2 weeks tried to reduce it but the pain came back. So I carried on at 400...

Hi. I took 400 mg Tramadol a day for three weeks for severe shingles pain and af...

Seraphina56

•4 years ago

24 Replies

Importance of regular eye exams with PMR/GCA

I saw my very well equipped Optician today for a series of eye examinations, my last test was 2018, all was well. I had a peripheral vision test, an eye scan (...

I saw my very well equipped Optician today for a series of eye examinations, my ...

SheffieldJane

•4 years ago

95 Replies

Identifying & Differentiating Patients With Early Inflammatory Arthritis

The Importance of Ultrasound in Identifying and Differentiating Patients With Early Inflammatory Arthritis A Narrative Review (its a big paper)...

The Importance of Ultrasound in Identifying and Differentiating Patients With Ea...

Ruadh

•4 years ago

44 Replies

Swelling on temples and below the eyes

Has anyone ever experienced swelling around the temples and under the eyes accompanied by tenderness & headaches? Im unable to wear my eye glasses with no pain...

Has anyone ever experienced swelling around the temples and under the eyes accom...

Poppy1647

•4 years ago

9 Replies

Thumping back pain

I have painful episodes which render me paralysed for minutes. It starts with a thumping back pain which pulses in time with my heart beat. Then it works up my...

I have painful episodes which render me paralysed for minutes. It starts with a ...

Singr

•4 years ago

7 Replies

Just saying hi.

Hi my name is Sue. I am 59 yrs of age and have recently been diagnosed with osteoporosis. I am taking Letrozole as a 5 year treatment plan for the breast...

Hi my name is Sue. I am 59 yrs of age and have recently been diagnosed with ost...

Plslsg123

•4 years ago

16 Replies

Alendronic acid

Hi I have recently been diagnosed with osteoporosis due to a dexa scan result. I am starting on Alendronic Acid tomorrow morning. I know that taking Turmeric...

Hi I have recently been diagnosed with osteoporosis due to a dexa scan result. I...

Plslsg123

•4 years ago

5 Replies

Dexa Update

Hello all! I said I would let you know the results of my dexa. Prior to going on prednisone in October 2019, I had osteopenia and I just had another dexa...

Hello all! I said I would let you know the results of my dexa. Prior to going ...

Whitner

•4 years ago

25 Replies

About live shingles shot

I have been reading all about the problems with the live shingles vaccine shot. I had the live shot and three months or so later I was diagnosed with PMR. No...

I have been reading all about the problems with the live shingles vaccine shot. ...

Linny3

•4 years ago

47 Replies

Flucuationg blood pressure

In the past several months, I've been reducing my prednisone from 5mg to currently 3mg. I've had high blood pressure for many years and take three medications...

In the past several months, I've been reducing my prednisone from 5mg to current...

Reader7

•4 years ago

6 Replies

6th week update

seen my rheumatologist for the first time yesterday. She says I am a text book for PMR. 6 weeks ago my Dr. put me on 40 mg of prednisone, now I am at 20...

seen my rheumatologist for the first time yesterday. She says I am a text book ...

Chevypickup

•4 years ago

9 Replies

Jacuzzi bath

Hi just wondering if other LVV people have felt worse for what should be a pleasant bubble bath ?? I feel like I’ve been in the boxing ring ! Not what I was...

Hi just wondering if other LVV people have felt worse for what should be a pleas...

Devoid

•4 years ago

45 Replies

Visit to rheumatologist

I see a rheumi every nine months so very lucky. I have a real problem telling her just how I feel. Many days I feel as though I have been beaten, everywhere...

I see a rheumi every nine months so very lucky. I have a real problem telling h...

5lupins

•4 years ago

9 Replies

normal side effects??

My mum has had small nose bleeds, yesterday morning and today and has a strange metallic smell to her urine - does this sound familiar to anyone?...

My mum has had small nose bleeds, yesterday morning and today and has...

Jeromekjerome

•4 years ago

27 Replies

All about Corona virus: see the film!

https://www.youtube.com/watch?feature=youtu.be&v=sqtRjjzxaWI&fbclid=IwAR2-xV3UqHoRglVHrqzp0wnyK8v8p2iHaZpj1m1FsJmVGjBozUHVAndVixQ&app=desktop A friend posted...

https://www.youtube.com/watch?feature=youtu.be&v=sqtRjjzxaWI&fbclid=IwAR2-xV3UqH...

PMRpro

Ambassador•4 years ago

72 Replies

Lower back spasms

Hi PMRPro, PMRPro, do you know what triggers your back episodes? Do you increase your prednisone or just ride it out? I started prednisone a year ago and...

Hi PMRPro, PMRPro, do you know what triggers your back episodes? Do you increas...

Anniegal

•4 years ago

28 Replies

Viagra-GCA

Could any one on this forum please inform me if Viagra has any adverse effects on GCA. Any information would be appreciated.

Could any one on this forum please inform me if Viagra has any adverse effects o...

Howard523

•4 years ago

4 Replies

Methotrexate and Steroids affect immune system does this mean we are more susseptable to Viruses.

Just a thought with all the Virus problems around now, how do we protect ourselves whilst taking drugs that reduce or even stop our Immune System working. Most...

Just a thought with all the Virus problems around now, how do we protect ourselv...

Blomps

•4 years ago

25 Replies

Methotrexate, stomach bloating

Hi Suffering from terrible stomach bloating and trapped wind at end of day. Seems to have started when I was put on Methotrexate. I'm a bit confused with...

Hi Suffering from terrible stomach bloating and trapped wind at end of day. Seem...

JsyAnne

•4 years ago

7 Replies

Curly hair?

Right now, my memory is not my strong suit~~~but I think I have been on Actemra injections weekly for about three months for GCA, along with Medrol. My hair...

Right now, my memory is not my strong suit~~~but I think I have been on Actemra ...

Grammy80

•4 years ago

19 Replies

Woodbridge Tea and Chat

Our next meeting is on Thursday 5th March Dobbies Garden Centre 2.00pm Grundisburgh Road Woodbridge Suffolk IP13 6HX Hope you can come. Please let me know...

Our next meeting is on Thursday 5th March Dobbies Garden Centre 2.00pm Grundis...

Soosie56

•4 years ago

2 Replies

Tapering

Any help please. 64 W diagnosed Aug last year with PMR. From 20mg tapering 1mg less per month, am now stuck on 13mg. Each night interrupted sleep because...

Any help please. 64 W diagnosed Aug last year with PMR. From 20mg tapering 1mg ...

Breester

•4 years ago

17 Replies

Shingles jab

Just a quick question..my surgery has suggested that the shingles jab (live) is ok on a prednisone dose of 4 mgs... thoughts please !

Just a quick question..my surgery has suggested that the shingles jab (live) is ...

tgca

•4 years ago

41 Replies

Personality Change

I was diagnosed with Temporal Arthritis back in August last year and put on 60mg of Prednisolone and at this present time have tapered down to 10mg, since...

I was diagnosed with Temporal Arthritis back in August last year and put on 60mg...

Phed

•4 years ago

30 Replies

Just checking in

It’s been awhile since I posted. Diagnosed with PMR July 2018. I had been doing reasonably well. Have been back to 2-3 shifts in Home Care every 2 weeks for...

It’s been awhile since I posted. Diagnosed with PMR July 2018. I had been doing ...

Heinrich7

•4 years ago

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2020

Pmr symptoms

Magnesium

Actemra, Methotrexate, and the immune system

Super GP update

OA, PMR and tapering

Desperately getting off short term Tramadol

Importance of regular eye exams with PMR/GCA

Identifying & Differentiating Patients With Early Inflammatory Arthritis

Swelling on temples and below the eyes

Thumping back pain

Just saying hi.

Alendronic acid

Dexa Update

About live shingles shot

Flucuationg blood pressure

6th week update

Jacuzzi bath

Visit to rheumatologist

normal side effects??

All about Corona virus: see the film!

Lower back spasms

Viagra-GCA

Methotrexate and Steroids affect immune system does this mean we are more susseptable to Viruses.

Methotrexate, stomach bloating

Curly hair?

Woodbridge Tea and Chat

Tapering

Shingles jab

Personality Change

Just checking in

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