Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,424 members • 38,312 posts

All posts for March 2019

Acceptable pain/tapering

I appreciate all your timely replies but haven’t yet been able to get to them. And i want to respond and be thorough.

I appreciate all your timely replies but haven’t yet been able to get to them. A...

Lejazzhot

•5 years ago

4 Replies

Respiratory infection triggering symptoms

After almost a year free of symptoms I contracted a respiratory tract infection that has left me with inflammatory pain in my shoulder, feet and hands. So far...

After almost a year free of symptoms I contracted a respiratory tract infection ...

SheilasPMR

•5 years ago

9 Replies

Acceptable Pain/ Tapering

Hi. I’ve tapered from 20mg to 13, 1mg at a time (supervised by a rheumatologist along with collective experience & advice of this forum) With each reduction,...

Hi. I’ve tapered from 20mg to 13, 1mg at a time (supervised by a rheumatologist ...

Lejazzhot

•5 years ago

5 Replies

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Time of Reducing

I have two issues. I read how many individuals have been diagnosed after me and seem to have come down to a lower dose of pred quickly. My rhemy has told me it...

I have two issues. I read how many individuals have been diagnosed after me and ...

Robinsnest72

•5 years ago

21 Replies

Prednisone reduction and voice problems?

Has anyone had any issues with their voice when reducing prednisone. Every time I go down my voice is like a mouse. Can’t get it out at times and when I do...

Has anyone had any issues with their voice when reducing prednisone. Every time ...

Mishycake

•5 years ago

28 Replies

Spring Fling...uh...Flare!

Diagnosed with PMR Sept 2013. Started on 20 mg pred, and tapered down below 10 mg in first year. Since that time, I have had several flares, most were...

Diagnosed with PMR Sept 2013. Started on 20 mg pred, and tapered down below 10...

Purplecrow

•5 years ago

33 Replies

Diabetes

Got a call from my GP to say l am on the verge of diabetes. I am on 35mgs of presnosone and can't go down for another month. How do l work with the diabetes...

Got a call from my GP to say l am on the verge of diabetes. I am on 35mgs of pr...

Ryliefew123dogcat

•5 years ago

42 Replies

Seeing yellow.

I was just thinking about the various assortment of strange symptoms that I had for years prior to my GCA diagnosis two years ago. I remembered I had a very...

I was just thinking about the various assortment of strange symptoms that I had ...

Aleish

•5 years ago

8 Replies

OMEPRAZOLE HAIR LOSS

Yes, I am losing hair while taking OMEPRAZOLE. Started falling two weeks after I started to take. Also I have osteoporsis, and very bad in left hip. This med...

Yes, I am losing hair while taking OMEPRAZOLE. Started falling two weeks after ...

Hemenway

•5 years ago

46 Replies

Double vision update

Back from my lovely opticians. No problem found with my eyes thank goodness very relieved. Thinks it may be vascular. Have rheumatologist appointment on...

Back from my lovely opticians. No problem found with my eyes thank goodness very...

Trish21

•5 years ago

9 Replies

Baker’s Cyst ?

Diagnosed PMR May 2018, currently on 6.5 Pred Woke up today with painful lump behind right knee, went on google and wondering if this is a Baker’s Cyst as I...

Diagnosed PMR May 2018, currently on 6.5 Pred Woke up today with painful lump be...

Fifegran

•5 years ago

27 Replies

Very Important information for GCA sufferers

Hello there, I’ve not posted for a few months,- sorry, but I think this is important information for anyone with GCA I was originally diagnosed with...

Hello there, I’ve not posted for a few months,- sorry, but I think this is im...

Suzita76

•5 years ago

25 Replies

Self help for groin pain

I just finished year three of PMR and am currently reducing 7.5/7. For a month I have had nagging groin pain on one side. Of course, my first thought is always...

I just finished year three of PMR and am currently reducing 7.5/7. For a month I...

bunnymom

•5 years ago

4 Replies

Who was that person last year?

Warning this is a long one and might even help you sleep. Haven’t posted for a while. Looking back I realise I was in a very dark place with PMR, GCA and...

Warning this is a long one and might even help you sleep. Haven’t posted for a...

Singr

•5 years ago

84 Replies

Prolia

Bone density showed severe osteoporosis. Beenon steroids since December 2017. Wondering if anyone has taken prolia and had any side effects. I haven’t started...

Bone density showed severe osteoporosis. Beenon steroids since December 2017. Wo...

Sunshinemaggie9

•5 years ago

29 Replies

PMR and flu injection

Hallo All, thank you for all the informative posts. I was diagnosed with PMR in November 2018. Started on 25mg pred, now on 7.5mg, also taking Menacal....

Hallo All, thank you for all the informative posts. I was diagnosed with PMR in ...

Nolsie

•5 years ago

5 Replies

Double vision

I had an episode of double vision last evening. It lasted about 30 seconds or so. I have had a few episodes of my eyes going into spasm, like I am wearing...

I had an episode of double vision last evening. It lasted about 30 seconds or so...

Trish21

•5 years ago

4 Replies

Been wondering about this for quite a while

So - PMR usually has a lifespan of between 2 - 6 years and more, so why do they put you on a steroid tapering plan that will get you off them inside a year -...

So - PMR usually has a lifespan of between 2 - 6 years and more, so why do they...

Theziggy

•5 years ago

15 Replies

One mess after another

After a flare of PMR after 3 months off pred; I was back on 20mg and feeling fine. Until this past couple of weeks that is. I have cardiomyopathy and a...

After a flare of PMR after 3 months off pred; I was back on 20mg and feeling fin...

polymy

•5 years ago

12 Replies

Cardiff meeting

The next meeting is on Friday 5th April at 11.30 in the Central Library.

slewis

•5 years ago

Be the first to reply

GCA symptoms?

I was diagnosed with PMR but not GCA back in January. I saw the opthamologist a week ago and he said if I had it I would notice a sharp pain from my jaw...

I was diagnosed with PMR but not GCA back in January. I saw the opthamologist a ...

pollymarierose

•5 years ago

18 Replies

Pain reduced by Preds?

HI All, I was diagnosed 2015 PMR/GCA - responded to preds nicely. Rheumy and GP agreed with diagnosis. Changed Rheumy about 2 years in, and new Rheumy wasn't...

HI All, I was diagnosed 2015 PMR/GCA - responded to preds nicely. Rheumy and GP ...

lesley2015

•5 years ago

28 Replies

Night agony.

My nights get worse. Stiffness and pain. Every where. Supposed to be osteoarthritis. But I feel I still got a lot of PMR. 😬 Only been diagnosed fairly...

My nights get worse. Stiffness and pain. Every where. Supposed to be osteoar...

Rocketronzy

•5 years ago

57 Replies

PMRGCAuk London Support Group meeting Monday 15 April

PMRGCAuk London Support Group meeting When: Monday 15 April 2019, 13:00 – 16:00 Where: Artizan Street Library Ground Floor room 1 Artizan Street London E1...

PMRGCAuk London Support Group meeting When: Monday 15 April 2019, 13:00 – 16:00...

Green_girl

•5 years ago

Be the first to reply

Good scan result

I’d been having what I thought might be symptoms of GCA for the last few months. My Rheumy usually does ultra sound scans in his office but decided that we...

I’d been having what I thought might be symptoms of GCA for the last few months....

GerriMc

•5 years ago

11 Replies

Help please

Hi guys, this is my first post although I have been observing from afar for at least two years. I am into my third year of this journey we call PMR and feel I...

Hi guys, this is my first post although I have been observing from afar for at l...

Chrissiedon

•5 years ago

50 Replies

Recent MRI/MRA

I was wondering if my MRI/MRA of the head with contrast which I just had for pulsatile tinnitus ( nothing unusual was found) can also be a diagnostic tool for...

I was wondering if my MRI/MRA of the head with contrast which I just had for pul...

3daysinjuly

•5 years ago

20 Replies

Tomatoes and Peppers

I am trying to get some actual facts as to whether tomatoes and peppers are bad for us. Getting mixed messages.

I am trying to get some actual facts as to whether tomatoes and peppers are bad ...

GlynisE

•5 years ago

127 Replies

Sunshine On The PMR/GCA Journey. There If We Look!

Different for us all with our life experiences & lucky me to have survived this far I feel! Tricky this illness is! Hard to keep on the learning curve!! Good...

Different for us all with our life experiences & lucky me to have survived this ...

Hidden

•5 years ago

53 Replies

Gca steroids

Update on last post, l got a call from rheumatologist this afternoon and l have an appointment for a scan tomorrow, l will keep you all updated as to how it...

Update on last post, l got a call from rheumatologist this afternoon and l have...

Fifelassieo

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2019

Acceptable pain/tapering

Respiratory infection triggering symptoms

Acceptable Pain/ Tapering

Time of Reducing

Prednisone reduction and voice problems?

Spring Fling...uh...Flare!

Diabetes

Seeing yellow.

OMEPRAZOLE HAIR LOSS

Double vision update

Baker’s Cyst ?

Very Important information for GCA sufferers

Self help for groin pain

Who was that person last year?

Prolia

PMR and flu injection

Double vision

Been wondering about this for quite a while

One mess after another

Cardiff meeting

GCA symptoms?

Pain reduced by Preds?

Night agony.

PMRGCAuk London Support Group meeting Monday 15 April

Good scan result

Help please

Recent MRI/MRA

Tomatoes and Peppers

Sunshine On The PMR/GCA Journey. There If We Look!

Gca steroids

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