Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,424 members • 38,312 posts

All posts for October 2018

Pred brain

I have only been on pred for 5 weeks but not seen any sign of pred brain so far.... but today I have managed to put boiling water meant for my tea on my...

I have only been on pred for 5 weeks but not seen any sign of pred brain so far....

Yellowbluebell

•6 years ago

64 Replies

Cannabis.....

On UKTV, tonight, the news featured the topic of medicinal cannabis. Apparently, Parliament is passing a law, tomorrow. Many are going to be disappointed, as...

On UKTV, tonight, the news featured the topic of medicinal cannabis. Apparently,...

karools16

•6 years ago

6 Replies

Tapering dilemma

Hello have not been on the site for a while but wonder if you'll forgive me and give me the benefit of your experience and excellent knowledge. I have been...

Hello have not been on the site for a while but wonder if you'll forgive me and ...

tinwoman

•6 years ago

29 Replies

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Artificial Intelligence. "Diagnosis On Demand". The Computer Will See You Now! BB2 Thurs. 9-10.00pm.

Looks like an interesting program on where health provision/diagnosis may be going! BBC 2. Thursday 1st November. 9pm-10pm. I was not impressed by my recent...

Looks like an interesting program on where health provision/diagnosis may be goi...

Hidden

•6 years ago

19 Replies

Thank you.

I thought I had posted yesterday to say thank you to everyone who responded to my post on insomnia but it doesn't seem to show here so maybe my brain is so...

I thought I had posted yesterday to say thank you to everyone who responded to m...

maria40

•6 years ago

6 Replies

From GCA to Myasthenia Gravis

Had PMR since 2009 and treated for GCA from 2013 including negative TAB. Been on a pred roller coaster since with 3 or 4 episodes of double vision per year and...

Had PMR since 2009 and treated for GCA from 2013 including negative TAB. Been on...

Rancho

•6 years ago

9 Replies

Some whitening of finger and toe nails whist on Prednisolone

I'm wondering if anyone as experienced any whitening of finger and toe nails whist on prednisolone. This as just come since I've been on this steroid. Been on...

I'm wondering if anyone as experienced any whitening of finger and toe nails whi...

Dappa

•6 years ago

9 Replies

I can top anyone’s moving horror

Laughing is a must when reading this book. I am in my new apartment since Oct 16th. I am not sure if I was to write out the whole story I would run out of...

Laughing is a must when reading this book. I am in my new apartment since Oct ...

Hidden

•6 years ago

34 Replies

Bone density

i am coming off steroids 10mg daily for over a decade. I have osteopenia but at mid 60s average for my age so I am told. The question is does bone density...

i am coming off steroids 10mg daily for over a decade. I have osteopenia but at ...

Dimplevegus

•6 years ago

1 Reply

Yes!

Right on !

aladymo

•6 years ago

29 Replies

Private Rhuemy’s names and areas covered

Hi All , I am looking for a private consultation , PMR . If any one can help with tried and tested Rhuemy’s it would be appreciated , I live in Birmingham uk ,...

Hi All , I am looking for a private consultation , PMR . If any one can help wit...

Gaz227

•6 years ago

10 Replies

Harrow, Pinner Group

A new PMRGCAuk Group is being launched in November: PMRGCAuk Harrow/Pinner Meet Up Group. The first meeting will be on Thursday 22 November from 11.30 to 1.30...

A new PMRGCAuk Group is being launched in November: PMRGCAuk Harrow/Pinner Meet ...

Roy46

•6 years ago

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Pred and Liquorice

Info with OH's pred states to avoid liquorice; anyone have experience of this please? AFIK iquorice can raise blood pressure but OH is wondering re some...

Info with OH's pred states to avoid liquorice; anyone have experience of this pl...

Nuff1

•6 years ago

21 Replies

Appt after 2nd bloods

Saw my gp today after 2nd bloods came back slightly reduced and he has said he is happy they are moving down and that he wouldn’t be looking at begining any...

Saw my gp today after 2nd bloods came back slightly reduced and he has said he i...

Yellowbluebell

•6 years ago

9 Replies

Is it a flare or snething else , so much pain

Hi All , I hope today is a good day . I recently posted that the Rhuemy said to my GP I will probably be in a low dose of pred for life . I still try every now...

Hi All , I hope today is a good day . I recently posted that the Rhuemy said to ...

Gaz227

•6 years ago

31 Replies

SAFE Site?!

Is UR SITE SAFE?! My newly updated Mozilla Firefox, claims THIS site is NOT Identifying itself PROPERLY...SO, WHY should I TRUST IT HERE??

Is UR SITE SAFE?! My newly updated Mozilla Firefox, claims THIS site is NOT Ide...

SeahawksFan

•6 years ago

27 Replies

Achilles Tendonitis (tendonosis)

I haven't posted for a while. I'm an active 74-year-old working male psychologist and have been diagnosed with PMR since January 2018. I had a flare at 7mg...

I haven't posted for a while. I'm an active 74-year-old working male psychologis...

lew49

•6 years ago

24 Replies

Insomnia

I've been suffering from acute insomnia for the past week ; it's not Pred, I know what that insomnia feels like and I'm now down to 8.5 and don't get it. This...

I've been suffering from acute insomnia for the past week ; it's not Pred, I kno...

maria40

•6 years ago

17 Replies

Now I think I know what DOSM is. I feel like I've been beaten.

In an effort to improve my fatigue I was reading on a website about adrenal insufficiency. ( I am currently at 7) It was mentioned that walking a short...

In an effort to improve my fatigue I was reading on a website about adrenal insu...

bunnymom

•6 years ago

57 Replies

Sour sweat odor

Has anyone experienced a change in perspiration odor? I have GCA and the smallest of physical tasks makes me sweat profusely it seems now and my sweat turns...

Has anyone experienced a change in perspiration odor? I have GCA and the smalle...

GCA_Patien

•6 years ago

7 Replies

Thank you for the advice

I read a suggestion to take some pred earlier in the morning than breakfast to help with the early morning stiffness. On Friday I'd had a very stressful day...

I read a suggestion to take some pred earlier in the morning than breakfast to h...

dancersize

•6 years ago

2 Replies

Low Dose Asprins and GCA

I have read an article that Nesher and colleagues have reported that low dose asprins can help with GCA side effects. As we know they do cause stomach...

I have read an article that Nesher and colleagues have reported that low dose as...

Berylholley

•6 years ago

9 Replies

Back/heart spasm and pain

Saw post from Daisy chain and understand how these things can be worrying. Last week I was away on a study break and experienced quite severe pains running...

Saw post from Daisy chain and understand how these things can be worrying. Last ...

Singr

•6 years ago

10 Replies

PMR flare, advice appreciated please!

Hi folks, I am after some advice on how to proceed. After 10 months on Pred I got down to 10mg, stayed there for 4 weeks as per Rheumy taper and it was all...

Hi folks, I am after some advice on how to proceed. After 10 months on Pred I go...

peace_lover

•6 years ago

6 Replies

Parotid glands

I have had PMR for 2yrs. I have had 3 parotid gland infections in last 15 months. Could there be link with PMR? Anyone else had this? Ultrasound shows no...

I have had PMR for 2yrs. I have had 3 parotid gland infections in last 15 months...

Jillbowles

•6 years ago

2 Replies

When you stop Pred do the side effects go away?

I was wondering if once I (hopefully) get off Pred completely, some of the more irritating side effects go away? I’m grateful for the fact Pred keeps me mobile...

I was wondering if once I (hopefully) get off Pred completely, some of the more ...

Loco99

•6 years ago

17 Replies

Pregabalin 75mgs

Hi, if anyone has had unpleasent side effects of taking Pregabalin , I should be interested to hear what the possible downsides are? Thanks

Hi, if anyone has had unpleasent side effects of taking Pregabalin , I should b...

Ventdunord

•6 years ago

10 Replies

About cataracts

Hi there can anyone advise when I can expect to be referred to the hospital to get my cataracts done only I went to specsavers although not due eye test or new...

Hi there can anyone advise when I can expect to be referred to the hospital to g...

Jamie345

•6 years ago

24 Replies

Different tapering method

Has anyone heard of this way to taper? Three days at a dose then go down by 1mg? At higher doses, don't think it would work at low doses! My rheumy wants me...

Has anyone heard of this way to taper? Three days at a dose then go down by 1mg...

gtate1914

•6 years ago

16 Replies

Long time pmr sufferer

It’s now ten years since I was diagnosed. I am still on a low dose 3mgs prednisolone but I have to up it when things get a bit painful. My rheumatologist said...

It’s now ten years since I was diagnosed. I am still on a low dose 3mgs predniso...

Mipsie

•6 years ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2018

Pred brain

Cannabis.....

Tapering dilemma

Artificial Intelligence. "Diagnosis On Demand". The Computer Will See You Now! BB2 Thurs. 9-10.00pm.

Thank you.

From GCA to Myasthenia Gravis

Some whitening of finger and toe nails whist on Prednisolone

I can top anyone’s moving horror

Bone density

Yes!

Private Rhuemy’s names and areas covered

Harrow, Pinner Group

Pred and Liquorice

Appt after 2nd bloods

Is it a flare or snething else , so much pain

SAFE Site?!

Achilles Tendonitis (tendonosis)

Insomnia

Now I think I know what DOSM is. I feel like I've been beaten.

Sour sweat odor

Thank you for the advice

Low Dose Asprins and GCA

Back/heart spasm and pain

PMR flare, advice appreciated please!

Parotid glands

When you stop Pred do the side effects go away?

Pregabalin 75mgs

About cataracts

Different tapering method

Long time pmr sufferer

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