Another day of conflicting advice: Having reduced... - PMRGCAuk

PMRGCAuk

20,545 members38,572 posts

Another day of conflicting advice

Temoral profile image
2 Replies

Having reduced slowly to 3.25, I had the horrid flu virus with a possible GCA flare with headache similar to the pre diagnosis ones, unbelievable fatigue and very low mood. Raised by 1mg and symptoms settled. Saw GP today to try and ascertain whether it was a flare and he thought no, but just tapering when every ache and pain will return! Said he couldn't send me for an inflamation blood test because I had raised my dose. Advised me to contact rheumy and cancel next week's synth test as it would be meaningless as I had I raised dose. So rang rheumy secretary who directed me to day unit for decision. They redirected me to secretary as it was rheumy decision. Secretary emailed rheumy who was on study leave...he replied to say go ahead with the test as it didn't matter if I was still on 4mg......so, let's see what happens next...

Written by
Temoral profile image
Temoral
To view profiles and participate in discussions please or .
Read more about...
2 Replies
PMRpro profile image
PMRproAmbassador

Really not sure 1mg would make that much difference but I'm also not sure the markers would be raised anyway. The headache is difficult but I'd be more inclined to suspect adrenal insufficiency to be honest. Being ill with the virus would really test your adrenal function.

Temoral profile image
Temoral in reply to PMRpro

Thank you...as usual, you make more sense than they do...

You may also like...

GCA -conflicting advice

until 2 weeks ago when I had a black out and collapsed,. The next morning I had weakness and...

Conflicting advice

a blood test first of all. Had a mammogram which was clear. Dr said no action on blood test but i...

Conflicting advice

in my other joints which had been masked by steroids. A few weeks ago I had a visit to A and E and...

conflicted!

2020. She gave me a blood test form to complete in the event of a flare So do I take it and risk...

conflicting opinions …

Hi All I have had a weird headache and some blurry eye for the past few days . Had bloods done ESR