Feels like thin ice....

[Grammy80]

Yesterday I cut my Prednisone by 10mg. I've taken injections of Actemra on the 5th, 12th and yesterday. Last night I noticed bleeding in my left (blind) eye. It was a bit worse this a.m. so I made an appointment with the ophthalmologist. Not GCA-related, just severely dry eyes so I picked up another script for drops..that makes three RX and more often...but that is OK. I love this fellow...I will see him on October 5 for a visual field and an in-depth exam. He saw me immediately today and said...be sure and call if anything unusual...gives me peace.

If you pray, please do, if you don't just wish good things, I know you all do. This time even if I have problems, vision or otherwise, I have to keep tapering. It isn't 'just all about the sight' this time. With the Actemra...I may be fine and I don't usually worry too much. I'll be a bit more confident in 4-6 days, I think.

💖💖 Just connecting with you all...makes me feel better. 😴😴 'Nite

[SheffieldJane]

🙏🙏🙏🙏🙏❤️😘💖

[Grammy80 in reply to SheffieldJane]

Thanks so much, Jane....when do you sleep? or do you? xo 💖🥰

[SheffieldJane in reply to Grammy80]

In between saying high on here if I’m lucky.

[HeronNS in reply to Grammy80]

I have often wondered that myself!

[calicojoy41]

WOW , 10MG. DROP THAT IS BIG. SO GLAD YOU GOT IN TO THE DOCTOR RIGHT AWAY FOR YOUR EYES. THIS WAS ALOT OF SCARY NEWS, I WILL SAY PRAYERS AND THOUGHTS TO YOU. HOPE YOU REST WELL TONIGHT. KEEP US POSTED😘🥰😍

[MrsNails]

Just woke up 5.45am here in the U.K. Thinking of you Grammy 🙏🏼💗🍀

[bussell]

Thoughts and prayers are with you, dear Grammy.

[Kendrew]

Just seen your post Grammy. 8.00am here in UK and first time in ages I've slept so well otherwise I'd have seen your message sooner. Sending you love and praying for a good outcome. 🙏❤️

[DorsetLady PMRGCAuk volunteer]

I don’t pray, but I’ll wish you the best of luck., as always ….🌷

[Seacat30]

May the good fairies favour you xxx

Fairy

[123-go]

Hi, lovely Grammy 😀. Sending special thoughts and well wishes to you.xx

[jinasc]

Keep your pecker up and stay positive mate 🤔🤞🤞

[autumnlass]

I’ve just lit a candle for you Grammy80. … blessings to you. xx

[HappyDiamonds]

Sending love and positive thoughts to you Grammy 🙏

[Luciejc]

I am a devout, practicing Catholic and believe in the power of prayer. I place my trust in God and pray for his Divine Mercy. Marilyn, you are in my thoughts and prayers especially when I attend Mass. I will light a candle in church and ask our Blessed Mother, Mary and the saints to intercede for you. You have a special place in my heart.❤️

[Rache]

Love and good wishes to you, lovely Grammy xxx

[Nextoneplease]

Thoughts and prayers from me Grammy 🤗 Stay positive x

[Sharitone]

Will definitely pray for you, Grammy❤️

[2013mayo]

Hi Grammy,Yes I will pray for you of course,

Hoping it helps. Already have.

🙏

Xx

[JanetRosslyn]

Love and prayers 🙏 x

[powerwalk]

Prayers and best wishes x

[Hollyseden]

Best wishes and gentle hugs Grammy

[Bcol]

Thoughts, hugs and best wishes Grammy

[Pixix]

Sending hugs, S x

[Hidden]

Praying for you. 🤗

[RoadTrip]

Best wishes, wishing you well and hoping things start to improve and reduction holds. Jenny.

[Nextoneplease]

Been thinking about you Grammy 🤗 Hope all’s well xx

[Grammy80 in reply to Nextoneplease]

Thanks...it has been interesting..but I'm trying really hard to look ahead. I'm not feeling so great, tired, and kind of zoned out. Two days ago got a bit of infection in my left leg..looking better. I'm on antibiotics for that....and dropping 10mg at once...I have body parts I didn't know about. I'm hanging in there. Today will be my first day with in-home help...I'm looking forward to that. Thanks!💖

[Nextoneplease]

Good to hear from you Grammy 😊 Sounds like you’re making the best of a difficult time x

Hope the help is ….well, helpful !!!

Take good care of yourself 🤗

Nextoneplease xx