PMRGCAuk | HealthUnlocked

PMRGCAuk

21,494 members•40,784 posts

Feeling low and trying not to spoil Christmas.

Hi everyone think IAM just needing a moan, down at 1, 1/2 mg pred and feeling very low, could be because my daughter's are going there in-laws for Xmas and...

Hi everyone think IAM just needing a moan, down at 1, 1/2 mg pred and feeling ve...

Harrywogan

•3 days ago

116 Replies

Adrenals?

I have just spent a very interesting hour reading about possible adrenal insufficiency but none of the examples seem to reflect my own experience. So, I’ll...

I have just spent a very interesting hour reading about possible adrenal insuffi...

Janann25

•4 days ago

58 Replies

Polymyalgia Rheumatica (PMR) Summary

As soon as I was diagnosed with PMR I concentrated all my spare time into reading everything I could find on the subject. I became totally immersed for three...

As soon as I was diagnosed with PMR I concentrated all my spare time into readin...

CocoaChanel

•14 days ago

86 Replies

travel insurance companies!!

so we contacted our travel insurers today to update them on my husband’s appointment with the consultant last week, who has referred him for a CT scan for the...

so we contacted our travel insurers today to update them on my husband’s appoint...

Doraflora

•16 days ago

89 Replies

Glucose monitors

Hi everyone, On the suggestion of one of the kind members in the group, and following my recent PMR diagnosis and the start of15mg Pred with accompanying...

Hi everyone, On the suggestion of one of the kind members in the group, and foll...

Bridekirk

•5 days ago

46 Replies

Between a Rock and a Hard Place with PMR tapering

Hi Everone , special thanks to PMR Pro , Snazzy D and Dorset Lady for constantly advising as well as others on this marvellous forum . I`m suffering badly...

Hi Everone , special thanks to PMR Pro , Snazzy D and Dorset Lady for constantly...

Marek1

•5 days ago

43 Replies

Baths

Does anyone else have difficulty in getting in an out of a bath ? Five years with PMR . Ive walked my dog , tried to keep moving but I've no strength in my...

Does anyone else have difficulty in getting in an out of a bath ? Five years wit...

Ullswater

•17 days ago

73 Replies

Getting to grips with the dietary advice. Newly on Prednisilone

Having started to come to terms with the dietary considerations while on Prednisilone in the past couple of weeks. If that wasn't complicated enough, my recent...

Having started to come to terms with the dietary considerations while on Prednis...

Bridekirk

•9 days ago

50 Replies

Intermittent fasting for steroid-induced type 2 diabetes

I have had PMR since March 2019, stress-induced. I quickly became diabetic after starting prednisone. I'm currently on Metformin and have an Hb1Ac of 43, so...

I have had PMR since March 2019, stress-induced. I quickly became diabetic after...

HelenDaisy

•19 days ago

69 Replies

omeprazole and alendronic acid ??

Something that has been puzzling me since I was diagnosed 10 days ago is why we are advised to start taking omeprazole and alendronic acid before we are sure...

Something that has been puzzling me since I was diagnosed 10 days ago is why we ...

CocoaChanel

•28 days ago

82 Replies

Steroids and changes in personality?

Hi, well the steroid journey has not been without difficulties and I must say, now that I’m at 0.25mg on my taper, I wonder if anyone else has suffered from...

Hi, well the steroid journey has not been without difficulties and I must say, n...

Spazzy55

•10 days ago

48 Replies

Christmas Greetings & Thanks

Firstly....Thankyou to Pro & DL who continuously respond, reassure, advise and monitor our 'comings & goings' on here. Thankyou to all those other...

Firstly....Thankyou to Pro & DL who continuously respond, reassure, advise and m...

Kendrew

•2 days ago

18 Replies

Thank You All!

I just wanted to reiterate what lots of people are saying on here in the last few days. THANK YOU! When you think you have nowhere to turn to, the forum has...

I just wanted to reiterate what lots of people are saying on here in the last fe...

greencyclist62

•16 hours ago

12 Replies

GCA for 14 years but still struggling.

I am severely deaf but and saw consultant yesterday. MRI shows no reason for heavy head. It feels as though I have a weight in it sometimes and now wondering...

I am severely deaf but and saw consultant yesterday. MRI shows no reason for hea...

5lupins

•3 days ago

25 Replies

Merry Christmas and cheers!!! to 2025~!🍻

My dear friends, It has been a bit more of a roller coaster ride, but I'm counting on 2025. A few things are still in the air for me. I've missed...

My dear friends, It has been a bit more of a roller coaster ride, but I'm count...

Grammy80

•3 days ago

22 Replies

Stress overload. How much pred to increase.

Dear friends. You may remember my recent post telling you about the death of my darling daughter plus three surgeries in the works. Ptosis surgery is OKd and...

Dear friends. You may remember my recent post telling you about the death of my ...

Nightingales

•1 month ago

74 Replies

Adrenals at 6.5 mg?

I know I should know by now, but I've just dropped from 7 to 6.5. It's been 7 days. I feel like shite. Pain in head, occipitals to behind ear. Neck, shoulders,...

I know I should know by now, but I've just dropped from 7 to 6.5. It's been 7 da...

Missus835

•1 month ago

75 Replies

Dizziness

Hi everyone, I would love some advice please. I am 75 and have had PMR for approximately 3 years with various bumps along the way, but am now on a slow taper...

Hi everyone, I would love some advice please. I am 75 and have had PMR for appr...

Sukian

•6 days ago

33 Replies

PMR at 50

I turned 50 in August and was diagnosed with PMR in October. Slightly distressed because it sounds as though it should be rare at this age and I have always...

I turned 50 in August and was diagnosed with PMR in October. Slightly distressed...

Risotto2

•20 days ago

60 Replies

hydrocortison anybody ? And Correct provisional diagnosis is everything.

after 7.5 years ( 72 years) on various dosis of prednisolone for PMR, I was fortunate enough to meet a rheumatologist ( second opinion) who told me “I now do...

after 7.5 years ( 72 years) on various dosis of prednisolone for PMR, I was fort...

Kaaswinkel72

•8 days ago

36 Replies

Newly diagnosed

Hi. I have just been diagnosed with PMR after over 12 months suffering. I first approached my GP around 12 months ago thinking I made had RA, but the triage...

Hi. I have just been diagnosed with PMR after over 12 months suffering. I first...

Bridekirk

•16 days ago

51 Replies

Personal update

Right so I have been on this 15mg of pred for 10 days now. I would say a noticeable start with much of the pain alleviating over three days. Yesterday and...

Right so I have been on this 15mg of pred for 10 days now. I would say a noticea...

Bridekirk

•8 days ago

35 Replies

pregnenolone

Had anyone tried Pregnenolone tablets taken with Prednisone when tapering.I have read good some good reviews but still a bit unsure.

Had anyone tried Pregnenolone tablets taken with Prednisone when tapering.I have...

Glyngin

•14 days ago

46 Replies

Overheard in Waitrose (conversation about how long PMR lasts)

I overheard two ladies having a conversation in a shop recently along the lines of "he's got something called polymyalgia and the doctor says if it isn't gone...

I overheard two ladies having a conversation in a shop recently along the lines ...

tangocharlie

•1 month ago

72 Replies

Merry Christmas, & thanks!

to DL & PMRPro, who have patience beyond my understanding, a very Merry Christmas & many thanks indeed! To all…a pain free as possible, & fun Christmas, eat...

to DL & PMRPro, who have patience beyond my understanding, a very Merry Christma...

Pixix

•1 day ago

13 Replies

Concentration

Hello. Could someone help me to understand why it is so difficult to concentrate? Is it the Pred or the PMR? I have been trying to balance my bank statement...

Hello. Could someone help me to understand why it is so difficult to concentrate...

Hidden

•1 month ago

71 Replies

Side effects.of low adrenaline

Would you mind sending links to any information re side effects of lia adrenaline when reducing prednisolone. Thank you.

Would you mind sending links to any information re side effects of lia adrenalin...

RachelJDH

•4 days ago

24 Replies

Blood test results

Morning all. How does anyone access their blood results? I have never seen mine. GP says he can't access them as they are hospital bloods. I can never get...

Morning all. How does anyone access their blood results? I have never seen mine....

Zappata

•26 days ago

60 Replies

Just a cold?

I am feeling very rough at the moment and wonder if it is more than a cold. About a week ago my nose started running - not blocked but streaming - then the...

I am feeling very rough at the moment and wonder if it is more than a cold. Abo...

Pippah45

•26 days ago

59 Replies

Off topic

Morning all. This is directed at PMRpro, but I don’t know how to tag someone into a post. We had a conversation a few days ago about service charges at...

Morning all. This is directed at PMRpro, but I don’t know how to tag someone i...

Doraflora

•1 month ago

66 Replies

See all posts

Write a post or ask a question

Pinned Posts

See all

Patience

A Rough Guide to PMR GCA uk history : so far May 2020 - by a...

PMR Guidelines 2015: https://www.rheumatology.org/Portals/0/...

Message from PMRGCAuk Admin

Community Guidelines for our PMRGCAuk HealthUnlocked Forum

About us

Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide informati...

Support us!

All our services to PMR and GCA sufferers, and their families, are offered free of charge. But we are a very small charity and need all the help we can get to carry on our work.

Donate now