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PMRGCAuk

21,757 members•41,246 posts

Prednisolone and hair issues

Good morning everyone This is sheer vanity. I am who I am and this is me. However since being on Prednisolone for nearly 6 months my lovely curly hair has...

Good morning everyone This is sheer vanity. I am who I am and this is me. Howev...

Groggrim

•1 day ago

65 Replies

Unbelievable

My husband went to pick up my tablets yesterday and there was no prednisolone when I rang them up I was told I had been on them to long so I wasn't getting...

My husband went to pick up my tablets yesterday and there was no prednisolone wh...

Sydneychihuahua

•5 days ago

66 Replies

Still unbelievable

Hi everyone got in touch with the surgery about not getting my meds they said why did I need 5mg and 1mg tablets???? This was the receptionist I couldn't be...

Hi everyone got in touch with the surgery about not getting my meds they said wh...

Sydneychihuahua

•2 days ago

45 Replies

tummy issues

hi everyone I’m down to 1 mg pred now but I notice that as I decrease my IBS flares. Anyone else have this problem please. Thanks janet

hi everyone I’m down to 1 mg pred now but I notice that as I decrease my IBS fla...

Uglow

•9 days ago

77 Replies

Does anyone wear a medical wristband for Polymyalgia / Steroids?

I’m just curious to know if anyone wears one and if I should get one for myself. Thank you.

I’m just curious to know if anyone wears one and if I should get one for myself...

AncientAunt

•6 days ago

63 Replies

fuzzy headed in the morning

I have had a pmr diagnosis for about 10 weeks now. When I get up in the morning, generally, I feel fine, but as I start to do jobs, I feel overwhelmed by...

I have had a pmr diagnosis for about 10 weeks now. When I get up in the morning,...

jennycat

•15 days ago

87 Replies

Anyone diagnosed with Large Vessel Vasculitis - No symptoms of headaches or aches and pains to joints but advised to take Methotrexate?

After an unhelpful consultation last August when I was diagnosed with GCA ( later just referred to as Large Vessel Vasculitis in correspondence) I finally had...

After an unhelpful consultation last August when I was diagnosed with GCA ( late...

Obscureclouds

•3 days ago

40 Replies

We fell in love when I was 15 and now he's gone

New Year's Eve 2024 was when he died. Heart finally succumbed to flu and the last 3 years of deterioration and caring came to an end.Still coping on 3.5mgs...

New Year's Eve 2024 was when he died. Heart finally succumbed to flu and the las...

Poshdog

•19 days ago

92 Replies

Off topic …but related…

Hello dear PMR group. I want to expose an anecdote and would love to hear your opinions on this matter… Two days ago, during a 4.5 hour flight, my husband and...

Hello dear PMR group. I want to expose an anecdote and would love to hear your o...

Alliswellforever

•26 days ago

87 Replies

Interesting two days!....

Had an ACTH test yesterday at local hospital , the test was 6 months overdue......lovely nurses....while there, same dept as infusion for bones ....checked why...

Had an ACTH test yesterday at local hospital , the test was 6 months overdue.......

Longtimer

•1 day ago

17 Replies

New and different symptoms - flare?

Hi, posting to see what others with GCA think. Diagnosed January 2024, started prednisolone on tapering regime. All going well until May 2024 and down to 15...

Hi, posting to see what others with GCA think. Diagnosed January 2024, started ...

Diver249

•12 days ago

55 Replies

Holiday to Rome - tips please!

We are going to Rome for 7 days next week for the first time. I'm told that the average person walks 25000 steps a day while there. My average is more like...

We are going to Rome for 7 days next week for the first time. I'm told that the ...

Broseley

•15 days ago

62 Replies

Adrenal function

I have just been reading an excellent article in the FAQ section on adrenal function and Prednisolone. Thanks to whoever wrote it.I have been reducing 0.5mg...

I have just been reading an excellent article in the FAQ section on adrenal func...

Groggrim

•5 days ago

36 Replies

What's your question you'd like an answer to? What would you like to be researched regarding PMR?

I went to a meeting on this topic yesterday called 'Measuring what matters' and the people in the audience came up with some good and varied questions, but it...

I went to a meeting on this topic yesterday called 'Measuring what matters' and ...

tangocharlie

•5 days ago

35 Replies

Tapering prednisone advice

I have GCA since 2011 and have been on prednisone since then, 13 years. I am at 20 mg and have been for quite some time but need to get lower or off of pred...

I have GCA since 2011 and have been on prednisone since then, 13 years. I am at...

Sally001

•25 days ago

75 Replies

Reduce calcium along with pred?

I have been taking calcium tablets (800 strength whatever that is) only been taking vit k since October after reading about it on here . I’ve read lots of...

I have been taking calcium tablets (800 strength whatever that is) only been ta...

Phoebenooby

•20 hours ago

14 Replies

Re Vitamin K2

Have been taking vitamin K2 for a few months having read that many of you also take them along with other supplements. Is anyone aware of any contraindications...

Have been taking vitamin K2 for a few months having read that many of you also t...

Ana-16

•27 days ago

76 Replies

Glucose Goddess 'Eat smart' progs on Channel 4 - for those interested in ways of controlling blood sugar levels

I watched an episode last night, part 2 of a series. Using volunteers as case studies/guinea pigs, she (Jessie Inchauspe) extols the 'hacks' she sets out in...

I watched an episode last night, part 2 of a series. Using volunteers as case s...

tangocharlie

•21 days ago

67 Replies

Happy New Year

Hi all. Not had the best Christmas. Last time I was on I mentioned headaches, problem with my eye kids and feelings of weakness. On advice from some of you...

Hi all. Not had the best Christmas. Last time I was on I mentioned headaches, pr...

Bridekirk

•1 month ago

80 Replies

Bad news from Rheumy just now.,😱

Bit like Spike Milligan on his headstone,,,,,told you I was ill!Shouldn’t be so blaise about it but just had phonecall from Consultant with regards to results...

Bit like Spike Milligan on his headstone,,,,,told you I was ill!Shouldn’t be so ...

Angelsmummy

•23 days ago

67 Replies

Help with GCA diagnosis

Hello, my first time here, hoping for some help! I developed symptoms of GCA (temple pain, scalp pain, headache, jaw claudication, swollen squiggly temple...

Hello, my first time here, hoping for some help! I developed symptoms of GCA (te...

Curlacious

•1 month ago

82 Replies

Magazines can print inaccurate information too!

I've just been reading a well known women's weekly magazine, and come across this!! Oh dear! Somewhat worrying and yet another reminder of the lack of...

I've just been reading a well known women's weekly magazine, and come across thi...

Kendrew

•19 days ago

60 Replies

Red 5 mg tablets anyone ?

For the last 12.5 years, my 5 mg pred tablets have been red, 2.5s are black and 1s are white. This helps enormously when trying to reduce etc. My pharmacy are...

For the last 12.5 years, my 5 mg pred tablets have been red, 2.5s are black and ...

suzy1959

•3 days ago

25 Replies

Chest pain

Hi all, has anyone experienced chest pain as part of their PMR? I've always had chest pain with my PMR and assumed that it was "normal" for some of us. I had...

Hi all, has anyone experienced chest pain as part of their PMR? I've always had...

Progfan

•17 days ago

56 Replies

Follow up to steroid injection

I promised to get back to the forum following my steroid injection last Monday in my right knee.: all went well with the injection itself and, by the time I...

I promised to get back to the forum following my steroid injection last Monday i...

tempusfugi

•10 days ago

41 Replies

Left hip pain down leg

Hi all what a 3 weeks!My husband had a stroke on the 8th Jan, totally out the blue, no high BP on blood thinners cholesterol not high, very distressing. They...

Hi all what a 3 weeks!My husband had a stroke on the 8th Jan, totally out the bl...

Den73

•9 days ago

38 Replies

Adrenalin glands still working or is it Prednisone

Now that I’ve been on prednisone for almost 13 weeks, I’ve noticed that some of the negative effects from the prednisone are quite strong at times. The...

Now that I’ve been on prednisone for almost 13 weeks, I’ve noticed that some of...

Gatorchief

•21 days ago

57 Replies

should I go to the Isles of Scilly ?

I’ve got GCA , PmR and LVV. mum down to one and a half pred . Just wondering if it’s too risky to go to Scilly as they only have a tiny hospital? Husband’s...

I’ve got GCA , PmR and LVV. mum down to one and a half pred . Just wondering i...

Gardening2811

•8 hours ago

7 Replies

Enteric coated Prednisolone

Due to my chronic gastritis, I wish to use enteric coated Prednisolone but GP says it makes no difference. I question that that comment applies to someone who...

Due to my chronic gastritis, I wish to use enteric coated Prednisolone but GP sa...

Nuts25

•9 days ago

36 Replies

Living Well with GCA

Hello all, Hope you are keeping strong. I am 64 (65 next month) and was diagnosed in November 2024 while working in China. The diagnostics were great there...

Hello all, Hope you are keeping strong. I am 64 (65 next month) and was diagn...

GingerPoodle1

•2 days ago

18 Replies

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