Cluneal nerves

[EffieT]

I am wondering whether my sitting pain is caused by cluneal nerve irritation or entrapment. I had pudendal nerve blocks but they actually increased the pain. Does anyone have any information on that? I'd be grateful.

[Buddy90]

I, too, have severe pelvic floor pain caused by cluneal nerve irritating the levator muscle, causing it to spasm. I had no relief from a shot to the nerve nor 2 rounds of Botox injections into the muscle. I have been taking Lyrica and muscle relaxers which do not provide much relief. It has taken 18 months and many doctors to diagnose. I believe it was due to a hip replacement.

[EffieT in reply to Buddy90]

Thank you for your response. I am still waiting for an accurate diagnosis after 2 years. Doctors in Canada are not really aware of pelvic nerve issues sadly. Good luck in your healing journey.

[Mrshappyme]

whats cluneal nerve ? as i feel like all my nerve endings are playing up when i stand up fpr a while and my head even feels like theres a nerve in there and i feel all strange and and unwell feeling comes acros me when i stand for 30 mins and i sit down for a hour and i start to feel a lot better and my head even start sto feel better. can you or any one give me any ideas what this could be caursing this i have a prolaspe bladder and my bowels are playing me up so waiting on camra to rule out anything bad . i think the proplase is to do with the bowels but the nerve feeling im trying to find out what is causeing the nerve feeling in my head

[EffieT in reply to Mrshappyme]

I'm sorry to hear of your pain. You are probably seeing a urogynaecologist already. I hope they are able to find the cause and treat it.

[Kezw]

Hi Effie , I too had Pudendal nerve block ( done with ultrasound imaging ) which made my nerve pain a lot worse . My pain is very consistent with Cluneal nerve . Am in the U.K. and no doctors here seem to treat these nerves . Doctors in Nantes , France are very skilled at treating this . Currently am seeing chiropractor in the hope he can help release areas of compression. Hope you are not too bad pain wise

[EffieT in reply to Kezw]

Tank you for your response. I have not yet found anyone who knows about Cluneal nerves. I have researched and come to the conclusion that my pain patterns would suggest them. I am continuing with pelvic physio and hoping to see a Uro/Gyn specialist soon. Are you going to France for treatment? Is the Chiropractor helping?

[Kezw in reply to EffieT]

Hi Effie , had to stop seeing chiropractor. He did some useful things like working on my misaligned sacroiliac, but I was getting bad flare of pelvic nerves. Had a video appointment with dr in Nantes, she thinks that Pudendal and Inferior Cluneal are likely causes of my pain . They need to see me for physical examination and nerve block . Due to Covid their lists are very long , so may not get to see them until next year . Have you made any progress with diagnosis or treatment?

[EffieT in reply to Kezw]

Thank you for your response. I'm so happy that you have at least a path forward for treatment. I found a similar problem with my chiropractor. The back massage/treatment made the pelvic pain worse.I also feel that my cluneal and pudendal nerves are the problem. I have been waiting for an appointment to see a Neuropelveologist in September. Meanwhile, I'm continuing with Pelvic Physio, but I don't think it's doing much.

I hope you can get an appointment with the doctors in France soon. I presume you are in the UK so it should be a short trip. Do keep me updated. I'd love to hear about your treatment. Take care and try to enjoy the summer!