Uncomfortable feeling in pelvic floor and penis

[Merc7582]

Hi. I have been suffering with the following symptoms for nearly two years: burning and building pressure, particularly behind the penis and in the perineum, but also inside the urethra - at the base of the penis, underneath, and in the anus. This is a twisting, nervy, pressure pain that builds in intensity. There is a raw, broken feeling - a high pitched sensation, like nails down a blackboard. It feels like a cold thumb hit by a hammer - a numb burning, throbbing sensation. There is increased sensitivity - to touch and to movement, and a hot liquid sensation inside the urethra - foreign body sensation. It feels like there is a ball of fire behind the penis and in the perineum, moving around. There is an itching and tickling sensation; spasms that shoot inside penis and back to anus.

Sometimes, there is a very odd feeing in my pelvic floor - like the bottom is falling out; like going down on a rollercoaster. This only really occurs when I am falling asleep in bed at night and in the dawn hours. Occasionally, I suffer cystitis-like symptoms - it burns, stings and hurts when urinating. After urinating, it feels like fireworks are going off in the urethra and perineum - burning, tingling and spasms. But momentarily, there is a sense of relief; a release of pressure. Going to the toilet also sets off the symptoms.

The symptoms are worst in the hour before I get-up in the morning, in the evening and after a long period of sitting-down: the attacks build in intensity - scratching and burning sensation, pressure and desperate to pee. It feels like hot liquid moving around inside the urethra.

I take 3x 500mg Pregabalin a day.

I wonder if anyone suffers from similar symptoms and if so, if you have any tips, recommendations or success stories.

Thank you.

[Catness]

Hello, I’m female so can’t exactly understand what’s going on but in my own investigations trying to figure out what’s wrong with my I have come across the term ‘pudendal neuralgia’ and it certainly seems to fit with your symptoms too! Possibly go to the GP and suggest it or see a neurologist perhaps?

[Merc7582 in reply to Catness]

Thank you, seen different GP but they all seem very vague about PN very frustrating just keep giving me nerve tablets but they don’t seem to help at the moment, I’m just hoping one day it will disappear or get milder. Thanks for reply x

[Catness in reply to Merc7582]

I’m not a medical person but I’ve read that if it is PN it can get worse if left untreated. Are you able to see a pelvic physiotherapist? They may be able to really help you. Also there is a private pain and neurological clinic in London’s King Edward VII hospital which deals with pain, chronic pain and neurological pain and I will be paying to see a consultant there as they have a good knowledge of PN. Best of luck.