Meandfluffy

[Judiraburn]

After reading all the posts of pelvic pain and all the different diagnoses, (but no mention anywhere about levator muscle avulsion) And I as a long time sufferer of pelvic floor problems, I have become aware that through medical research that over 34% of women who have had children have levator avulsion. Why why why why are the medical providers (namely urogynecologists so ignorant to that fact???!! And why oh why haven’t they learned how to repair and relieve this 34% of their long-suffering pain??? Experiments are ongoing in other countries, i.e., Australia and Europe on how to repair the defect. Mine was repaired by a general surgeon in the late ‘70s before levator avulsion was widely known about. My doctor said he had never seen such an entity but he tried. The repair didn't “hold” long but he tried. It is in such a place that it can only be repaired with tissue from your own body or cadaver tissue. Mine was repaired once with my own tissue and i was finally “whole” again. Unfortunately, a later surgery (fistula”) the colorectal surgeon and urologist who forcefully used stents to mark my ureters ripped off the levator repair. The avulsion continues to this day. The surgeon who originally repaired it correctly has retired. To find one who is actually smart enough to do it (even Duke) says there is not a known repair. I even showed them the studies in Australia and was told they can’t do it. Am I lost to this continuing pain which affects my bladder, vagina, bowel, anus, rectal descent, buttocks, back of thighs, nerve pain down my legs, back and multiple “prolapse” surgeries that reoccur into eternity? I pleaded with the researcher in Australia to please help me. His response, it would be a nightmare getting a US citizen into their studies due to government subsidization, etc. red tape, etc. My point: Please please are there any US doctors who are capable to do this repair. If there is a way to post a research paper on this post, I have an article I’d like to post. It’s not a photo; it’s a printed article.

[Alaine1 Administrator]

Hi Judiraburn,

I’m one of the admins on here for the charity. You can send the article to me privately so I can see if it is suitable - we would most likely only accept the article if it was from a reliable source and peer reviewed which is the minimum standard for most journal articles to be a considered credible. I hope this helps.

[Judiraburn in reply to Alaine1]

Did the article get through to you the last time I sent it?

[Alaine1 Administrator in reply to Judiraburn]

No unfortunately not, can you try again?

[Judiraburn in reply to Alaine1]

Can you PM me a different e-mail address. For some reason when I attach and reply to “HealthUnlocked” there is a problem sending an attachment. [e-mail] or FB Messenger judi raburn

[Alaine1 Administrator in reply to Judiraburn]

Unfortunately I have to use the messenger system set up on health unlocked. If you give me the exact name of the article I can find it that way. It’s probably the easiest way around the system to be honest

[Amigos123]

I googled this as I had never heard of it.

Your right, the surgery I found was in Australia.

I’m so sorry you suffer, I can’t help thinking if it was a man problem

There would be more interest.

I hope there is help for you by someone 😕

The article I found showed what was done in surgery.

[Luckee]

I am so sorry for your suffering. While I’m not personally familiar with the problems you mentioned, my pelvic therapist will, I’m sure. She just cane back from a conference in Chicago that she said was attended by the “who’s who” of gynecologists, surgeons and therapists. I’d be happy to share your post with her and see if she has any names of doctors she can recommend you could contact. Would it be ok to show her your post? The doctors are likely all in the US. Just a thought. Sending prayers.

[Judiraburn in reply to Luckee]

Thank you. Yes, definitely you may share to whoever and wherever you think I might find help.