Hi , I have pudendal neuralgia now since 2010. I have had nerve blocks , CT guided injections , and Lapascropic decompression surgery and nothing has worked, I am in constant pain and was wondering if there were any new treatments for pudendal neuralgia , any new information would be very much appreciated.
M
I notice no one has answered. I am in your shape. I have tried most everything I know of and still have constant pain. I begin to hurt minutes after I am up in the morning until I am knocked out at night. The pain increases during the day. I am not awakened with it at night. I have no life. I mostly stay home. I work in silk floral design and scrap booking, making cards at home. I sometimes work on them to keep from thinking of pain as much as possible. Sometimes, I don't even feel like doing the things I love.
I try to do stretches each day. I am going to a pelvic floor therapist semi regularly. That is my life. I can't go anywhere because that requires riding. I can't visit because of sitting to get there and sitting to visit, same with having others in my home. I do feel alone and desperate. I will keep looking because there has to be something in the future with more medical personnel begin to learn more and more about PNE. I usually get longer distances such as to the therapist and home by riding in the back of the car while my husband drives. We must keep trying to find answers. They will come eventually. I just hope it is not to late for those of us who have suffered this debilitating condition for so many years. I trust you will find help and peace my dear.
I am so sorry to hear of your pain I don't know where you are located but I have seen Dr. Richard Marvel in Annapolis MD I was left with some irrataion to my PN du2 prolapse repair surgery and the stiches are interfering with the nerve I go Tue for out patient surgery to have some of them removed if you can go see him he is one of 5 in the nation that do any type of PN surgery
Hi, I had all those also. In April of this year I had what’s called cryoablation. It is ct guided and they freeze the nerve. It has helped. The dr who did it is in Atlanta, GA. His name is Stephen Prologo and he is an interventional radiologist.
Does he take insurance? I have heard that he does not? Thanks for the info..
How much pain relief have you experienced??
Bettyfl another question... how was recovery from cryoblation? Where did he insert the needle?
Hi there,
The recovery was not bad at all. He uses a ct machine so he can see where to guide the needle. It was in the upper part of the buttock. Mine is left sided only, so that's where he placed it.
hello was this done in office or at the hospital and did you need anistisha? I just had an o/p surgery done to remove stiches that are causing scar tissue built up on the P/N and the sciatica they were only able to get some of the stiches the others were to deep so now I have to wait and see if it what they were able to remove will help....in a lot of pain
I am so sorry you are in so much pain. I am in chronic pain every day too from other illnesses and problems. I got rid of that and these are just as bad so I understand completely. PN or any pelvic floor and back issues are very hard to handle the pain. It was done in the hospital but not under general anesthesia. Gave me meds they iv to relax me. It was only about 20 min for the procedure itself. He can also do an mrn which is like an mri but it can see nerves. Maybe this could be done first.
You might try pudendal neuromodulation with Dr. Kenneth Peters. I am trying this procedure and will let you know how it turns out.
Could you explain more about the procedure- thx
Sorry but I don't believe there is. I have it too and have pretty much given up looking for more treatment or a,cure
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