neuromodulation: Any one have any... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,422 members5,666 posts

neuromodulation

r5cervelo12 profile image
9 Replies

Any one have any experience with a Neuromodulation? doctors in Ohio.

Written by
r5cervelo12 profile image
r5cervelo12
To view profiles and participate in discussions please or .
9 Replies
Curlygirl54 profile image
Curlygirl54

I'm in the UK and have recently had a Nevro High Frequency spinal cord stimulator.

My posts will give you some idea odf the process here. I can't help you with an Ohio doc I'm afraid

Good luck with your research,

Shirley

r5cervelo12 profile image
r5cervelo12 in reply to Curlygirl54

No worries thanks, what doctor did you see in the UK how was your experience

Ladydidi profile image
Ladydidi

I had Interstim put in October 2014 and it hasn't helped at all. I'll try a couple more stations but I believe I'm going to have it all removed as the battery implanted in my lower hip/back area is pinching and aching when I lie down. However everyone has different luck with that depending on your symptoms. My symptoms are mostly vaginal, urethral and bladder pain. I'm in CA

r5cervelo12 profile image
r5cervelo12 in reply to Ladydidi

I am soory to here its not helped.. I had a spinal trial and its not helped me. I have low back and pelvic floor disfunction but no bladder pain.

People have such different responses to these treatments, which include such a wide spectrum of interventions. My pain MD says that implanted spinal stim doesn't work as well with diffuse pain such as pelvic. But I have one friend with knee and ankle pain who was able to decrease her pain meds 1/2 and stop using crutches.

r5cervelo12 profile image
r5cervelo12 in reply to

I need it to target the Pelvic area I had a bicycle crash, where I landed right on the seat basically with my Pelvic Floor Muscle..

Ouch!!! Good luck finding a skilled provider who can narrow down placement of he stim.

r5cervelo12 profile image
r5cervelo12 in reply to

I don't know where really to start, but I'm going to Cleveland Clinic in March.

I would guess on PN nerve.

Who do you go to?

in reply to r5cervelo12

Don't have any specifics which may pertain to you, but have heard great reports about other specialties at Cleveland. Complex pain survivor since 2005, failed all injections and several surgeries. Rely on limited activity, bed several times daily, many lifestyle accommodations, body work, meds, mild walking twice daily, mild swim twice a week, mild stretching, CBT emphasizing problem-solving, reducing PTSD, mindfulness, and acceptance. Lots of gallows humor!

You may also like...

Spinal neuromodulation

reco’d neuromodulatuin to interrupt the pain signals. Have tried all injections, Pt, meds, Botox,...

Anyone had a MRN? Prolotherapy? Interstim or neuromodulator for pudental nerve issues?

Also- anyone have success with prolotherapy for pudental nerve issues? Anyone have success with...

Pudendal Neuralgia cure

Has anyone had any relief from PN and any treatments that have improved the pain? Has anyone been...

Anyone treated Tarlov Cysts naturally?

I have tried Serrapeptase to no avail. Any tips? I would appreciate any reccomendations for...

Support groups for Pudendal Neuralgia and Chronic Pelvic Pain

Does anyone know of any support groups for Pudendal Neuralgia or Chronic Pelvic Pain in...