Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,407 members • 8,062 posts

All posts for January 2019

Medicine with PBC

I have PBC. Which is better for me, Advil, Tylenol or another similar med?

jagman925

•5 years ago

5 Replies

A Different me!

I have just updated my photo on my profile as I have changed quite a bit since the old one was taken. Gone has the dyed hair and fringe,. I don`t know why but...

I have just updated my photo on my profile as I have changed quite a bit since t...

Oidra

•5 years ago

10 Replies

Hepatologist Appt 🥰

For those who have been wondering, I finally had my appt yesterday. He isn’t the one I’ve been waiting for. Seemed the other one was taking a little too long....

For those who have been wondering, I finally had my appt yesterday. He isn’t the...

gwillistexas

•5 years ago

44 Replies

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Just had a MRE

Just an update....I had a fibroscan several months ago, just after I was diagnosed with PBC, that showed stage 2-3 fibrosis. It was a real shocker considering...

Just an update....I had a fibroscan several months ago, just after I was diagnos...

HealthyChik

•5 years ago

25 Replies

Pain relief after surgery

Hi, I’m new to this, I have surgery booked next month, and I’m worried what pain relief will be best for me after, all the codines give me pancreatitis,...

Hi, I’m new to this, I have surgery booked next month, and I’m worried what pain...

Chickadee69

•5 years ago

8 Replies

Acities

Just a quick one over the last dew days my belly has been making bubby noises really bubbley so much so people can hear them. I haven't been to the go but i...

Just a quick one over the last dew days my belly has been making bubby noises re...

Nick_123

•5 years ago

12 Replies

Meds put up

Hiya guys my urso has been increased today from 750 to 1000 a day. Is that a lot?

Hiya guys my urso has been increased today from 750 to 1000 a day. Is that a lot...

BabyK

•5 years ago

6 Replies

Alp levels

I have been on urso for almost a year. My alp is still high. 225. Is this normal?

I have been on urso for almost a year. My alp is still high. 225. Is this normal...

Tootoot

•5 years ago

10 Replies

Really sore pain

I'm in severe pain right now. On right hand side. Second time today. Is this a pbc thing?

I'm in severe pain right now. On right hand side. Second time today. Is this a p...

BabyK

•5 years ago

13 Replies

Happy with first follow up labs

Hi everyone Just wanted to share my first follow up labs, enzymes are going down after 2 months on urso. AST was 80, now is 50 ALT was 100, now 60 ALP was...

Hi everyone Just wanted to share my first follow up labs, enzymes are going dow...

Sona_akb

•5 years ago

43 Replies

Ursodiol

Hi. Has anyone experienced problems with chemists getting your urso prescription? I have about 4 times now , it makes you anxious worrying if they will get the...

Hi. Has anyone experienced problems with chemists getting your urso prescription...

Mrsfancypants

•5 years ago

11 Replies

Thirst

Hi does anyone suffer with thirst....I am really thirsty, and been like this for a few days now x

Hi does anyone suffer with thirst....I am really thirsty, and been like this for...

Vespa27

•5 years ago

12 Replies

Kidney issues to do with PBC?

Hi all. I’ve had a recent blood test, having been tired over the holiday period. My thyroid medication seems a bit off (I also have under active thyroid), but...

Hi all. I’ve had a recent blood test, having been tired over the holiday period....

Mariontp

•5 years ago

2 Replies

The norm lol

Well woke up this morning...and its another normal day in tbe world of AIH PBC. My joints hurt especially my hip and hands, and I still have this bloody...

Well woke up this morning...and its another normal day in tbe world of AIH PBC. ...

Vespa27

•5 years ago

18 Replies

New York

curious anyone in the New York ,Queens,nassau area

2bear

•5 years ago

Be the first to reply

I just received this and thought it was very intresting

arugula health benefits STORY AT-A-GLANCE Green leafy vegetables have been identified as a viable “new treatment” for fatty liver disease due to the inorganic...

arugula health benefits STORY AT-A-GLANCE Green leafy vegetables have been ident...

Haking

•5 years ago

5 Replies

Does it matter what time of the day I take my medication?

Hi. I’m on urso and ocaliva. I started a year ago for not responding to urso. In the beginning I gradually increased ocaliva dose and had no symptoms. A few...

Hi. I’m on urso and ocaliva. I started a year ago for not responding to urso. I...

Gilz1702

•5 years ago

2 Replies

Medical marijuana

Hi everyone, I know this is a touchy subject but I have a question. A friend of mine who has a medical marijuana card due to cancer shared one of her edibles...

Hi everyone, I know this is a touchy subject but I have a question. A friend of ...

Rottiemommy

•5 years ago

10 Replies

Doctors

Anyone in the Phila, Trenton, Bucjs County area and loves their medical team?

Realtor1

•5 years ago

Be the first to reply

Question

I have PBC with overlap of AIH but I also have high ESR and CRP I think I may have Lupus I have a lot of the symptoms listed anyone have Lupus?

I have PBC with overlap of AIH but I also have high ESR and CRP I think I may ha...

mjk98

•5 years ago

2 Replies

Elasticity sonogram

Does anyone know how to interpret those results?

Realtor1

•5 years ago

1 Reply

No alcohol/ low alcohol

Just wondering is it ok to drink zero alcohol/ low alcohol drinks I.e 0.5 %. Since been diagnosed almost a year ago I have steered clear of any alcohol but was...

Just wondering is it ok to drink zero alcohol/ low alcohol drinks I.e 0.5 %. Sin...

aljosu

•5 years ago

9 Replies

PBC Stage 0, no medication

Hello again! :) Another question for you since you're ever so helpful :-) Is there anyone who has been diagnosed with PBC and it's really early stages, as in...

Hello again! :) Another question for you since you're ever so helpful :-) Is the...

Beatris03

•5 years ago

32 Replies

App version 2 is coming!!

And it is going to be awesome!!!!!! Beyond awesome!!! So, how do you get it? Make sure you are registered with the PBC Foundation. Both registering with us...

And it is going to be awesome!!!!!! Beyond awesome!!! So, how do you get it? M...

PBCRobert

Partner•5 years ago

6 Replies

Experiences of Ocaliva

Hi everyone, What’s your experience of being put on Ocaliva? My Gastro is considering putting me on Ocaliva as the Urso doesn’t seem to be working properly....

Hi everyone, What’s your experience of being put on Ocaliva? My Gastro is consi...

Hils67

•5 years ago

35 Replies

Frequent tests

Hi all. I am wondering if you can help us. We are asking you what tests you have that are common, aside from the obvious PBC ones. So an example would be...

Hi all. I am wondering if you can help us. We are asking you what tests you ha...

PBCRobert

Partner•5 years ago

63 Replies

Travel insurance (I'm in UK)

Hello everyone! I hope you're all well. I haven't been on here for a while, I needed time to accept everything, struggled with panick attacks but A therapist...

Hello everyone! I hope you're all well. I haven't been on here for a while, I ne...

Beatris03

•5 years ago

12 Replies

Appointment

I went to see my consultant today. Prepared all my questions that I wanted answering. My appointment was 9.30, I was out for 9.45....he did not answer...

I went to see my consultant today. Prepared all my questions that I wanted answ...

Vespa27

•5 years ago

16 Replies

Ursidiol cost?

Why is ursidiol so expensive? With my insurance a 30 day supply is 76.00 and a 90 day supply is 106.00. Is that what you all pay? I have not reached my...

Why is ursidiol so expensive? With my insurance a 30 day supply is 76.00 and a 9...

Jess5377

•5 years ago

21 Replies

Urso not working?

Hi all, I'm newly diagnosed with PBC just a little over 2 months ago. I've had elevated liver enzymes (alk phos) for several months. I started Urso November...

Hi all, I'm newly diagnosed with PBC just a little over 2 months ago. I've had ...

lilygrower

•5 years ago

8 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2019

Medicine with PBC

A Different me!

Hepatologist Appt 🥰

Just had a MRE

Pain relief after surgery

Acities

Meds put up

Alp levels

Really sore pain

Happy with first follow up labs

Ursodiol

Thirst

Kidney issues to do with PBC?

The norm lol

New York

I just received this and thought it was very intresting

Does it matter what time of the day I take my medication?

Medical marijuana

Doctors

Question

Elasticity sonogram

No alcohol/ low alcohol

PBC Stage 0, no medication

App version 2 is coming!!

Experiences of Ocaliva

Frequent tests

Travel insurance (I'm in UK)

Appointment

Ursidiol cost?

Urso not working?

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