Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,407 members • 8,061 posts

All posts for June 2012

Shape your weight.........right, but only if you have energy to exercise as well!!

Doctor has refered me to a shape your weight programme, said I need to lose weight gained over the last 10 weeks. I lost weight during my stay in hospital due...

Doctor has refered me to a shape your weight programme, said I need to lose weig...

Alley27

•12 years ago

16 Replies

Have just recently been diagnosed with peripheral neuropathy and carpal tunnel , i was diagnosed with pbc, sjogrens raynauds ra some yrs ago

Could anyone suggest a specialist who would help in diagnosing the cause of these new problems so that i can consider treatment options. thanks.

Could anyone suggest a specialist who would help in diagnosing the cause of thes...

bridgetthemidget

•12 years ago

7 Replies

Chest infection again does anyone else keep having them ?

I'm on my second chest infection for this year ! I know I smoke there I said it out loud but I an not a heavy smoker How many of you out there are ? I have...

I'm on my second chest infection for this year ! I know I smoke there I said it...

cowren

•12 years ago

5 Replies

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Hi, can anyone help me please.

Hi, Ive come on here as my sister has pbc and I dont know who to turn to. Her GP and consultant are pretty useless. Can anyone help me please. I live in the...

Hi, Ive come on here as my sister has pbc and I dont know who to turn to. Her GP...

bolt

•12 years ago

12 Replies

Fundraising for the PBC Foundation

Hi everyone, Hope you dont think I am being cheeky, and I do appreciate times are hard for everyone with the current recession.............but one of my...

Hi everyone, Hope you dont think I am being cheeky, and I do appreciate times a...

busylady

•12 years ago

9 Replies

Been back to see the specialist.

Been for my follow up appointment today and my lfts are slighty up.I am going to have some investigation done on my spleen due to it being enlarged,also going...

Been for my follow up appointment today and my lfts are slighty up.I am going to...

donnathompson

•12 years ago

7 Replies

DOES ANYONE EXPERIENCE HEAD SWEATS,UTTER EXHAUSTION, LOSS OF APPETITE AND WEIGHT?

HAVE HAD THESE SYMPTOMS FOR MONTHS AND GETTING WORSE,DIAGNOSED WITH PBC 2001 AND HAVE ATTENDED LIVER UNIT AT KINGS COLLEGE HOSP SINCE 2008, LFTS HAVE BEEN...

HAVE HAD THESE SYMPTOMS FOR MONTHS AND GETTING WORSE,DIAGNOSED WITH PBC 2001 AND...

lucy01

•12 years ago

13 Replies

Does any one know if the LighterLife Diet is suitable for someone with PBC?

Please accept my apologies for having already put this question in error as an answer to a previously answered question. Its my first time of visiting this...

Please accept my apologies for having already put this question in error as an a...

mumofthree

•12 years ago

21 Replies

Hi all, do any of you use artificial sweeteners, ie in tea, coffee, diet food?

I went to see my consultant yesterday and he was very pleased with my bloods, he told me in 2010 I was a candidate for the transplant list, i can't remember...

I went to see my consultant yesterday and he was very pleased with my bloods, he...

Hidden

•12 years ago

11 Replies

Insight or advice needed

Hi to fellow pbcer's ....I was told yesterday that I have stage 3 fibrosis?! Any insight or advice would be much appreciated. I know what fibrosis is......

Hi to fellow pbcer's ....I was told yesterday that I have stage 3 fibrosis?! An...

PBC2012

•12 years ago

25 Replies

Does anyone know of a PBC foundation or support groups in the States?

dinnyd

•12 years ago

3 Replies

I seem to have become allergic to most medication ie Antibiotics etc which cause pain itch fast heart beat and generally unwell anyone else

member1

•12 years ago

6 Replies

pbc workshops

went to a pbc workshop today and what an amazing time i had came away a different person and a lot of questions answered would highly recommend it to anyone...

went to a pbc workshop today and what an amazing time i had came away a differen...

debg

•12 years ago

5 Replies

WHATS THE POINT?

I have been in hospital that many times this year that life really doesn't seem worth living, i would gladly take whatever to get out. this is not a life it's...

I have been in hospital that many times this year that life really doesn't seem ...

Derann

•12 years ago

16 Replies

esa ? tribrunal

i scored 6 points on my esa assesment ,i have appealed against there decision in january . i am still waiting for there answer, ? does anyone know how lond...

i scored 6 points on my esa assesment ,i have appealed against there decision in...

andypandyw

•12 years ago

11 Replies

A different day a different concern or wuestion

Hi everyone, I have had a few mild days since my last post and ,unfortunely, a few bad days. Before my diagnosis of PBC I wad beginning to get quite severe...

Hi everyone, I have had a few mild days since my last post and ,unfortunely, a...

PBC2012

•12 years ago

7 Replies

can someone tell me the stages of PBC? my doctor just seems to "not hear" when i ask about it.

Derann

•12 years ago

16 Replies

BIOPSY QUESTION

I had a biopsy done in December 2011 which radiologist stated was a form of hepatitis. I then had that same biopsy sent to Johns Hopkins and they stated...

I had a biopsy done in December 2011 which radiologist stated was a form of hepa...

general1

•12 years ago

8 Replies

Is anyone on here attending cardiff pma workshop tommorow

Only asking as I'm going on my own Xx

cowren

•12 years ago

2 Replies

IS MY DR CORRECT FOR PBC

My gastro dr told me that I have 4th stage pbc that was 2years ago but I have no symptons biop of liver was done and now I'm on 500mg 3x a day of urso because...

My gastro dr told me that I have 4th stage pbc that was 2years ago but I have no...

BECCAFROMWISCONSIN

•12 years ago

7 Replies

Anyone ever come off of Urso??

I have been on Ursodiol for 4 1/2y and would dearly love to get off of it. Have seen bits and pieces on here about some of you not taking it. Have any of you...

I have been on Ursodiol for 4 1/2y and would dearly love to get off of it. Have...

Tumbleweed41

•12 years ago

31 Replies

Pain in left side

I spoke to my GI doctor last week about the pain, alot of times severe,in myright side (liver area ) he said that the liver is not a muscle so the pain is not...

I spoke to my GI doctor last week about the pain, alot of times severe,in myrigh...

PBC2012

•12 years ago

19 Replies

I cannot seem to get my diet down to where I am at least comfortable after a meal

I know low salt, carbs, etc. But it doesn't matter what I eat or how much, I am genuinely miserable after a meal. I do have a hiatal hernia so eating has...

I know low salt, carbs, etc. But it doesn't matter what I eat or how much, I am ...

PBC2012

•12 years ago

20 Replies

A PBC Vacation

How many PBC's on this site are from the United States specific East Coast? I had this idea I love to travel and would love to plan a PBC cruise for us. I...

How many PBC's on this site are from the United States specific East Coast? I h...

Judy48

•12 years ago

7 Replies

Bleeding swollen gums

A couple of weeks ago my front crown became loose and my gum around it was very sore. I was also feeling a little sick with urso. I stopped taking my evening...

A couple of weeks ago my front crown became loose and my gum around it was very ...

wongie

•12 years ago

7 Replies

Should I take this Urso?

Went to gp today to ask about the itching I get on a night time. I have PBC/AIH crossover. Doc gave me some Urso to take at night, but I always read the...

Went to gp today to ask about the itching I get on a night time. I have PBC/AIH ...

Alley27

•12 years ago

14 Replies

A big thank you from MoPo

Yesterday, on my birthday, I was feeling a bit down and sorry for myself and I wrote a blog entitled "Life is passing me by". I want to say thank you so much...

Yesterday, on my birthday, I was feeling a bit down and sorry for myself and I w...

MoPo

•12 years ago

5 Replies

Hi everyone :) , has anyone with pbc been diagnosed with hepatitus ?

bink

•12 years ago

5 Replies

Alone and isolated

Does anyone else feel alone and isolated? I spend most of my time laying down in pain and exhausted but, when that rare occasion occurs that I feel somewhat...

Does anyone else feel alone and isolated? I spend most of my time laying down in...

PBC2012

•12 years ago

17 Replies

Life is passing me by

It's my birthday today and for some reason I feel really tearful. Perhaps it's because the years are passing by so quickly and for the last six months I have...

It's my birthday today and for some reason I feel really tearful. Perhaps it's ...

MoPo

•12 years ago

16 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2012

Shape your weight.........right, but only if you have energy to exercise as well!!

Have just recently been diagnosed with peripheral neuropathy and carpal tunnel , i was diagnosed with pbc, sjogrens raynauds ra some yrs ago

Chest infection again does anyone else keep having them ?

Hi, can anyone help me please.

Fundraising for the PBC Foundation

Been back to see the specialist.

DOES ANYONE EXPERIENCE HEAD SWEATS,UTTER EXHAUSTION, LOSS OF APPETITE AND WEIGHT?

Does any one know if the LighterLife Diet is suitable for someone with PBC?

Hi all, do any of you use artificial sweeteners, ie in tea, coffee, diet food?

Insight or advice needed

Does anyone know of a PBC foundation or support groups in the States?

I seem to have become allergic to most medication ie Antibiotics etc which cause pain itch fast heart beat and generally unwell anyone else

pbc workshops

WHATS THE POINT?

esa ? tribrunal

A different day a different concern or wuestion

can someone tell me the stages of PBC? my doctor just seems to "not hear" when i ask about it.

BIOPSY QUESTION

Is anyone on here attending cardiff pma workshop tommorow

IS MY DR CORRECT FOR PBC

Anyone ever come off of Urso??

Pain in left side

I cannot seem to get my diet down to where I am at least comfortable after a meal

A PBC Vacation

Bleeding swollen gums

Should I take this Urso?

A big thank you from MoPo

Hi everyone :) , has anyone with pbc been diagnosed with hepatitus ?

Alone and isolated

Life is passing me by

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