What question (s) do you wish your doctor would at least ask you?
Even after all this time, my hep doc has never once asked me how my itching or my fatigue was. I often wonder if he even thinks that these occurrences are really part of having PBC.
I clearly remember one visit many years ago, I was so fatigued and felt so badly this particular day. The nurse actually told me "but you look good"! Who would ever say that to someone with PBC if they really understood how much that invalidates us. For me, that is one of the most difficult stigmas of this disease..."we look good". If only people could, for one day, feel like we do sometimes.
That's my 'soap box' for today....
How do you know what stage you are at with PBC
PBC and Cholinergic Urticaria
Does anyone else out there feel like a fraud sometimes?
How are ones coping that are experiencing advanced fibrosis and cirrhosis?
exhaused and irritable
