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Pernicious Anaemia Society

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Hello all, sone advise please.

I am undiagnosed B12 diffident but started self injecting and it has changed my life. I am fast Approaching 50 and have been obease for more than 3/4 of my...

I am undiagnosed B12 diffident but started self injecting and it has changed my ...

Lowbattry03

•13 days ago

10 Replies

early pregnancy -Hydroxy33

Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get...

Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnan...

AstiSP

•1 month ago

14 Replies

B 12 level... confusing

Is 250 pg/ml an acceptable level of b12 for a person with neuro deficit like random pricking on the skin.. from head to toe... This result is inspite of...

Is 250 pg/ml an acceptable level of b12 for a person with neuro deficit like ran...

Muef

•2 months ago

2 Replies

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super high gastrin level

hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was...

hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, ...

Lhood08

•2 months ago

15 Replies

feeling depressed and disheartened

So I'm having my 2 weeks loading injections (6 injections) for pernicious anaemia at the GP I had no relief of symptoms until yesterday my 4th injection I had...

So I'm having my 2 weeks loading injections (6 injections) for pernicious anaem...

mully

•2 months ago

17 Replies

Just diagnosed. Does this explain my life? Especially my recent experiences?

For as long as I can remember, I have been suffering with various levels of depression and anxiety, lack of energy, poor sleep habits and headaches.Yet both...

For as long as I can remember, I have been suffering with various levels of depr...

Valid94

•2 months ago

29 Replies

Good Supplier Of Folate 🇬🇧

Any recommendations for 5mg supplier of folate please?

B12again

•3 months ago

14 Replies

Share your Story

Hello good people, The Patient Revolution is currently reaching out to patients across the globe to ask people for their stories of industrialized health...

Hello good people, The Patient Revolution is currently reaching out to patie...

Cobalt1312

•3 months ago

2 Replies

Why do my SI suddenly hurt so much more?

Hi all! I’m 20 self injections EOD into my treatment, so I’ve been on hydroxocobalamin for a month and a bit. My first 8 or 9 injections, the pain of...

Hi all! I’m 20 self injections EOD into my treatment, so I’ve been on hydroxocob...

AJackson21

•3 months ago

14 Replies

Imerslund-Gräsbeck one to know about

https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me....

https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had a...

Oneash

•3 months ago

9 Replies

Palve

After suffering from vertigo, years of burning mouth syndrome, being diagnosed with diverticulitis and then 2 yrs of neurological pain, I’ve been told I can...

After suffering from vertigo, years of burning mouth syndrome, being diagnosed w...

Palv

•3 months ago

6 Replies

Autoimmune Diseases

Saw this news article today and found it interesting....

Swift20

•4 months ago

20 Replies

Anyone else have severe daily heartburn?

Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also PA. Currently SI B12 (cyanobalamin ) EOD. Does anyone else with this get severe...

Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also P...

ReallyWondering

•4 months ago

8 Replies

Just diagnosed with autoimmune atrophic gastritis with intestinal metaplasia

I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does...

I assume this is the root cause of my pernicious anemia? I have an appointment t...

ReallyWondering

•4 months ago

25 Replies

Hello!

Hi there! Thanks for allowing me to join. I am new to this group & have not been diagnose with PA at this time but I certainly have the symptoms. I DO have a...

Hi there! Thanks for allowing me to join. I am new to this group & have not bee...

Hidden

•4 months ago

5 Replies

B12 Deficiency and being a Night Owl

Does anyone else here with B12 deficiency prefer to stay up late and sleep late? I am reading about circadian rhythms and all the experts seem to be convinced...

Does anyone else here with B12 deficiency prefer to stay up late and sleep late?...

GracePV

•5 months ago

20 Replies

B12 Specialist in the South East/London

In 2009 I was suffering from tingling in my feet, legs, hand and arms. The GP ordered several tests and all were normal. A friend who runs a health and...

In 2009 I was suffering from tingling in my feet, legs, hand and arms. The GP o...

JERandall

•5 months ago

8 Replies

Blood test interpretation - b9, serum urate and Erythrocyte sedimentation rate

Hi, newbie here. Hoping someone can help me with something... It took me I think 7 blood tests and a year of crying for help for many health issues that have...

Hi, newbie here. Hoping someone can help me with something... It took me I think...

IceSpike

•5 months ago

9 Replies

B12 deficiency - next steps

hi all! I was diagnosed with ME/CFS back in 2016 and had my bloods retested yesterday to rule out any vitamin deficiencies, after never being able to control...

hi all! I was diagnosed with ME/CFS back in 2016 and had my bloods retested yest...

AJackson21

•5 months ago

12 Replies

B12 deficiency, Acid Reflux, heartburn

I’ve recently been diagnosed as B12 deficient. My symptoms were tingling in my feet and calves, hair loss, memory loss, ringing in my ears, exhaustion. This...

I’ve recently been diagnosed as B12 deficient. My symptoms were tingling in my f...

ReallyWondering

•6 months ago

23 Replies

Need Help Please

Hi all. My story is long so here goes. In 2010 I was hit twice by the same car on a hwy and had a lot of issues and pain etc. Ten mths later I literally...

Hi all. My story is long so here goes. In 2010 I was hit twice by the same car ...

Swift20

•7 months ago

22 Replies

Advice on Tests Please

Dear Forum Members, I wonder if you advise which tests are needed for PA. In recent years my ferritin has been below 30, folate deficient and B12 on the low...

Dear Forum Members, I wonder if you advise which tests are needed for PA. In re...

HealthStarDust

•8 months ago

8 Replies

Help please!! Question about breathlessness and heart rate

hi!! So I know that b12 deficiency can cause breathlessness and a fast heart rate but exactly why does this happen? I have looked online and it says it’s the...

hi!! So I know that b12 deficiency can cause breathlessness and a fast heart ra...

Amyflood246

•8 months ago

22 Replies

Alternative therapy recommendations

https://youtu.be/JlgqllPKQUA?si=b3WUwsYVmLWhMXt1Found this today and I feel it's helped. All about getting your lymphatic system moving and it's very simple to...

https://youtu.be/JlgqllPKQUA?si=b3WUwsYVmLWhMXt1Found this today and I feel it's...

Oneash

•9 months ago

13 Replies

low folate. elevated liver enzymes

hello! this is a bit long winded so I’ll try and keep it brief…. About a month ago I was bitten by a spider in my sleep. I thought no more of it, then...

hello! this is a bit long winded so I’ll try and keep it brief…. About a mon...

Hedge_Walker

•9 months ago

1 Reply

I've been SI methylcobalamin for over 3 years but now its clear that obtaining methylcobalamin is not going to happen!

Can someone reassure me that the other two Hydroxocobalamin &Cyanocobalamin are okay? I've just heard that methylcobalamin is the better out of the 3 and like...

Can someone reassure me that the other two Hydroxocobalamin &Cyanocobalamin are ...

Abbeyr28

•9 months ago

25 Replies

Advice for Ongoing Condition?

Have been on the forum for a while, and has been a great help but asking for advice. About 2 years ago I had problems walking, was constantly tired and...

Have been on the forum for a while, and has been a great help but asking for adv...

TomatoTomato

•9 months ago

5 Replies

retesting blood?

good afternoon All, After being diagnosed P.A and having my loading doses, my symptoms are no better, the dizziness is unbearable and I keep dropping things...

good afternoon All, After being diagnosed P.A and having my loading doses, my s...

Sea_cells

•10 months ago

6 Replies

B12 / PA roller-coaster and further tests

Hi all - I'd really appreciate any support and advice you can all offer please as it's all got a bit too much today. I've been feeling unwell for a while...

Hi all - I'd really appreciate any support and advice you can all offer please a...

TheSunshineSanctuary

•10 months ago

8 Replies

Antibody to transcobalamin ii causing functional B12 deficiency?

Summary: I require very high dose/frequency B12 injections just to avoid neurological deterioration; some thoughts about what might be wrong with me...

Summary: I require very high dose/frequency B12 injections just to avoid neurolo...

jeremycat_

•11 months ago

33 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All things Pernicious Anaemia Society posts

Hello all, sone advise please.

early pregnancy -Hydroxy33

B 12 level... confusing

super high gastrin level

feeling depressed and disheartened

Just diagnosed. Does this explain my life? Especially my recent experiences?

Good Supplier Of Folate 🇬🇧

Share your Story

Why do my SI suddenly hurt so much more?

Imerslund-Gräsbeck one to know about

Palve

Autoimmune Diseases

Anyone else have severe daily heartburn?

Just diagnosed with autoimmune atrophic gastritis with intestinal metaplasia

Hello!

B12 Deficiency and being a Night Owl

B12 Specialist in the South East/London

Blood test interpretation - b9, serum urate and Erythrocyte sedimentation rate

B12 deficiency - next steps

B12 deficiency, Acid Reflux, heartburn

Need Help Please

Advice on Tests Please

Help please!! Question about breathlessness and heart rate

Alternative therapy recommendations

low folate. elevated liver enzymes

I've been SI methylcobalamin for over 3 years but now its clear that obtaining methylcobalamin is not going to happen!

Advice for Ongoing Condition?

retesting blood?

B12 / PA roller-coaster and further tests

Antibody to transcobalamin ii causing functional B12 deficiency?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive