Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,056 members • 23,204 posts

All posts for February 2024

Notifications Alerts

Have they turned to blue text for everyone ?Much harder to read for me

Nackapan

•3 months ago

23 Replies

Dr Chandy

I made mention of him the other day and it just entered my head that there may new comers who havnt seen this and I was prompted because of a mention of ME I...

I made mention of him the other day and it just entered my head that there may n...

OldmanD

•3 months ago

11 Replies

Keep taking the tablets!

I've just been down to the G.P. for my freebie B12 jab. (s.i. at home weekly) I told her that I've been feeling really tired lately, like I did before my P.A....

I've just been down to the G.P. for my freebie B12 jab. (s.i. at home weekly) I ...

topazrat

•3 months ago

23 Replies

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Results of 14 day trial.

20 days ago I started a 14 days trial of 1.5 mg of methylcobalamin and 0.5 mg adenosylcobalamin 5 times a day and setting an alarm to inject in the night. The...

20 days ago I started a 14 days trial of 1.5 mg of methylcobalamin and 0.5 mg a...

WIZARD6787

•3 months ago

5 Replies

Hello

Hi, can you tell me the effects of cyanocobalamin 100 mcg? I take it orally, can it make you fat? if someone has been taking this treatment for some time

Hi, can you tell me the effects of cyanocobalamin 100 mcg? I take it orally, can...

Ela23el

•3 months ago

11 Replies

Being Lazy

Shout out to those that use the find what works methodology. I am trying to avoid the work of designing how to heal more. Current 7.5 mg adenosylcobalamin,...

Shout out to those that use the find what works methodology. I am trying to avoi...

WIZARD6787

•3 months ago

3 Replies

Loose Woman

Today Colleen talked about fatigue She was told the menopause. Is a vegan. Told pre diabetic type 2 I've emailed loose women as a good platform. Was her...

Today Colleen talked about fatigue She was told the menopause. Is a vegan. Tol...

Nackapan

•3 months ago

16 Replies

folate and b12

hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption...

hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l ...

Confused1806

•3 months ago

3 Replies

PA and Metformin

Hi Brains Trust! As of a visit to my GP this morning, I'm staring down the barrel of Type 2 diabetes and, whilst having already begun to implement a...

Hi Brains Trust! As of a visit to my GP this morning, I'm staring down the barr...

Suzibelle

•3 months ago

34 Replies

Could it be B12 deficiency?

I have been guided to this forum from Thyroid Uk and I’m hoping that, with your help, I can make sense of the fatigue and weakness I have been experiencing....

I have been guided to this forum from Thyroid Uk and I’m hoping that, with your ...

SpringerMom

•3 months ago

4 Replies

GP discussion re too much B12

I administer my adult daughters B12 monthly due to her having been misdiagnosed with MS and having peripheral neuropathy. Her GP finally agreed to see her face...

I administer my adult daughters B12 monthly due to her having been misdiagnosed ...

pinkpaddleboarder

•3 months ago

29 Replies

Is this possible......

I'm just over a month into EOD injections. One of my main symptoms is odd feeling soles of my feet and weird sensations in my feet (I described them as...

I'm just over a month into EOD injections. One of my main symptoms is odd f...

Madman070578

•3 months ago

37 Replies

Vitamins

Does anyone know the link to the guide on all the other vitamins you must take alongside SI B12? Tried looking through them all and can't find, TIA

Does anyone know the link to the guide on all the other vitamins you must take a...

Rach77788

•3 months ago

19 Replies

Body Temperature Regulation.

How body temperature regulation made it in the symptoms list of the neurological effects of B12 deficiency I have not yet come across. I have experienced body...

How body temperature regulation made it in the symptoms list of the neurological...

WIZARD6787

•3 months ago

4 Replies

Did anyone get leg cramps after b12 injections?

I just started 1/6 of my loading doses on Monday and Monday evening I had muscle twitching and cramps in my legs, they subsided by the morning of Tuesday but I...

I just started 1/6 of my loading doses on Monday and Monday evening I had muscle...

Hellaheels

•3 months ago

4 Replies

Suspected B12 deficiency

Hello everyone I found this group via thyroid UK group. It was there that they helpfully made me aware of my low b12 results. Please see results from...

Hello everyone I found this group via thyroid UK group. It was there that they ...

RedOne1

•3 months ago

31 Replies

Have the new guide-lines on B12 deficiency/ Pernicious Anaemia been published yet?

They have been so delayed. .

wedgewood

•3 months ago

12 Replies

have I over done b12 injections?

I’ve had 3 b12 injections as levels have been a little low. Active b12 119 pmol. Normally have regular periods but now haven’t had one in 6 weeks. Has...

I’ve had 3 b12 injections as levels have been a little low. Active b12 119 pmol....

Coolcat12345

•3 months ago

5 Replies

EOD on the NHS?

I went for my first 4 weekly B12 injection at my GP surgery today. I was expecting some push back from the nurse but she gave the jab willingly. I asked if...

I went for my first 4 weekly B12 injection at my GP surgery today. I was expecti...

Pa234aw

•3 months ago

25 Replies

Been on b12 injections for four months …

And I just went to the cinema for the first time in ten years!! I’ve been so ill (housebound and mostly in bed) for the last ten years with ‘ME’, that I...

And I just went to the cinema for the first time in ten years!! I’ve been so il...

Pepperpots302

•3 months ago

5 Replies

When to test?

Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly...

Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syn...

edeuweed

•3 months ago

2 Replies

Anxiety and P.A.

I had not really been prone to anxiety or depression until 3 years ago when after lots of difficult times in addition to my physical health issues, I started...

I had not really been prone to anxiety or depression until 3 years ago when afte...

Suesue246

•3 months ago

23 Replies

Prednisone for treatment of AIG

I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently,...

I've just been started on Prednisone or Prednisolone, immunosuppressant steroids...

Rexz

•3 months ago

21 Replies

I find this helpful.

Some do heal with minimal treatment. It is hard as there is no way to know how their life might be different with different treatment. I do not buy into it...

Some do heal with minimal treatment. It is hard as there is no way to know how...

WIZARD6787

•3 months ago

5 Replies

Imerslund-Gräsbeck one to know about

https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me....

https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had a...

Oneash

•3 months ago

9 Replies

How is PA diagnosed?

How is PA diagnosed? How do we know if we have it?? I don’t think I have it but I do need to keep my ferritin in check due to absorption issues because of my...

How is PA diagnosed? How do we know if we have it?? I don’t think I have it but...

ThyroidObsessed

•3 months ago

11 Replies

New Concept?

I just finished a successful 14 day trial. Injecting 2 mg 5 times a day including setting an alarm is a different world for me and trials are definitave in 14...

I just finished a successful 14 day trial. Injecting 2 mg 5 times a day includin...

WIZARD6787

•3 months ago

12 Replies

Iron Infusions

Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my...

Hi all, just wondering if anyone in this group has ever had an iron infusion? W...

KatieG75147

•3 months ago

19 Replies

Better Late Than Never

On 22nd February was World Encephalitis Day. Encephalitis is inflammation of the brain where there are headaches, confusion, vomiting, fever, altered states of...

On 22nd February was World Encephalitis Day. Encephalitis is inflammation of the...

Narwhal10

•3 months ago

36 Replies

diabetes & B12 Deficiency

Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path and have assumed that eventually the B12 injections will make me feel better....

Hi all, for the last 4 months I’ve been on the B12 deficiency (possibly PA) path...

Pa234aw

•3 months ago

8 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2024

Notifications Alerts

Dr Chandy

Keep taking the tablets!

Results of 14 day trial.

Hello

Being Lazy

Loose Woman

folate and b12

PA and Metformin

Could it be B12 deficiency?

GP discussion re too much B12

Is this possible......

Vitamins

Body Temperature Regulation.

Did anyone get leg cramps after b12 injections?

Suspected B12 deficiency

Have the new guide-lines on B12 deficiency/ Pernicious Anaemia been published yet?

have I over done b12 injections?

EOD on the NHS?

Been on b12 injections for four months …

When to test?

Anxiety and P.A.

Prednisone for treatment of AIG

I find this helpful.

Imerslund-Gräsbeck one to know about

How is PA diagnosed?

New Concept?

Iron Infusions

Better Late Than Never

diabetes & B12 Deficiency

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive