Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,114 members • 23,266 posts

All posts for November 2018

Why is my skin crawling with itch after a shower? Desperate for solutions. Ignore last post as I missed information.

Every part of my skin crawls for 30-60mins after a shower. Particularly arm and leg folds. I have raised red spots with white heads on these folds. Scratch my...

Every part of my skin crawls for 30-60mins after a shower. Particularly arm and ...

Maggie333

•6 years ago

7 Replies

More advise

Sorry to be a bother just trying to work things out for myself please be patient with me . Can anyone tell me how they felt their body was healing after...

Sorry to be a bother just trying to work things out for myself please be patient...

Andypandy30

•6 years ago

6 Replies

B12 level 103 - How long will it take to recover with injections?

I have been feeling rotten for a long time but didn't understand why. My symptoms where extreme fatigue, heart palpitations, diarrhoea, numbness in my hands,...

I have been feeling rotten for a long time but didn't understand why. My sympto...

budmgf

•6 years ago

6 Replies

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Curious about genetic folate deficiency

Hello, I hope it's all right to post as I don't have a diagnosis of PA, but my maternal grandmother died from it aged 40 in the 1920s. I am fortunate to have...

Hello, I hope it's all right to post as I don't have a diagnosis of PA, but my m...

jinnie64

•6 years ago

3 Replies

Which blood test for vitamins and minerals

Just found out this wasn’t done at my surgery even tho I asked for it apart from folate . Any one know best private test I can do to test these and supplement...

Just found out this wasn’t done at my surgery even tho I asked for it apart from...

Andypandy30

•6 years ago

6 Replies

Newby seeking guidance on Vitamin B12 results

Hi - I've been directed by an Administrator on Thyroid UK to ask about my recent blood test for Vitamin B12. My GP says it's fine but she thinks perhaps it's...

Hi - I've been directed by an Administrator on Thyroid UK to ask about my recent...

marlathome

•6 years ago

14 Replies

Successful ordering of 1mg Rotexmedica Hydroxycobalamin to UK

Thank you to denisemilden in advance for the advice. Just wanted to post with my experience of trying to order to UK via the pharmacy websites .... I tried...

Thank you to denisemilden in advance for the advice. Just wanted to post with my...

grayvic

•6 years ago

8 Replies

Pa

Hi. I haven’t been on lately but I have a few questions. I’ve was diagnosed with Pernicious Anemia in 2012. I’ve had vitamin B-12 injections and my b-12 is...

Hi. I haven’t been on lately but I have a few questions. I’ve was diagnosed with...

Mono21

•6 years ago

16 Replies

IRON INFUSION

Hello, Am due to have an iron infusion next Thursday. I would be interested to hear from people who have had/are having iron infusions, whether it has made a...

Hello, Am due to have an iron infusion next Thursday. I would be interested to h...

JGBH

•6 years ago

17 Replies

No PA or B12 deficiency but I am still going to supplement with oral B12 - should i get any other tests before this to rule out for sure?

As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12,...

As part of my wider investigations, Ive been looking at possibility of PA but fr...

GoingthruTreacle

•6 years ago

12 Replies

chest tightness/ pain and palpitations

can anyone advise me on how they treat these.....would a pain killer help....i currently rub vicks and tiger balm on my chest and use a hot water bottle...i...

can anyone advise me on how they treat these.....would a pain killer help....i c...

jarlethblue

•6 years ago

10 Replies

Needing support please

Hi I’m not great . Iv noticed the last couple of days feeling very anxious . I dint know why . The only thing iv changed I’s folic acid . I’ve taken 2 400 mcg...

Hi I’m not great . Iv noticed the last couple of days feeling very anxious . I d...

Andypandy30

•6 years ago

9 Replies

How to store Methylcobalamin

Hello I have received a box of Methylcobalamin ampoules/vials from Arnika by way of Intravita, and am confused as to the method of storage. The...

Hello I have received a box of Methylcobalamin ampoules/vials from Arnika b...

ARRozental

•6 years ago

10 Replies

Watery eyes !

I'm a happily retired 67 years old <young-at-heart> male I use distant glasses for vision but not for reading or writing Noticed a bulge on below the lower...

I'm a happily retired 67 years old <young-at-heart> male I use distant glasses ...

baboigeorge83

•6 years ago

1 Reply

Study: Frequent B12 injections for autism increase cobalt levels...so get enough B12, but don't overdo SI

If anyone else has more information, pro or con, I'd love to hear it. From the study it seems that much of the extra cobalt was released in the urine.......

If anyone else has more information, pro or con, I'd love to hear it. From the...

genesurf

•6 years ago

6 Replies

Tiredness and feeling angry

I have been diagnosed with PA for 2 years and I’m really struggling with certain symptoms which is the tiredness and feeling so angry all the time! Has anyone...

I have been diagnosed with PA for 2 years and I’m really struggling with certain...

Isobellecooper

•6 years ago

7 Replies

Advice on SI, please help!

Well after only having 5 loading doses and my b12 levels at 150 I’m having to find other ways to get my b12. Ive had a test for PA 8 weeks ago and I’m still...

Well after only having 5 loading doses and my b12 levels at 150 I’m having to fi...

Shannonf247

•6 years ago

2 Replies

poor balance while walking

Hi, Does anyone had poor balance while walking due to low vitamin b12?

wanderboy

•6 years ago

13 Replies

Confused blood results

Hello, I have just had my b12 checked again, im on no supplements or injections, for last 12 months my b12 have been dropping rapidly after injections were...

Hello, I have just had my b12 checked again, im on no supplements or injection...

Padeficiant12

•6 years ago

9 Replies

Advice Needed Re: Test Results Please?

Hi, I'm a new member and I wonder if anyone can offer any advice please? I'm a 56 year old male and have been suffering from some symptoms which, according to...

Hi, I'm a new member and I wonder if anyone can offer any advice please? I'm a 5...

Tiffytech

•6 years ago

3 Replies

Methylcobalamin B12 Ampoules for UK delivery?

Hi I'm new to this forum, I'm looking for advice on where to buy Methycobalamin B12 for self-injection. The suppliers in the UK (now licensed to sell what...

Hi I'm new to this forum, I'm looking for advice on where to buy Methycobalamin ...

grayvic

•6 years ago

3 Replies

In reply

I've had a rash of bumps a bit like acne on my neck and chin and around hairline.I don't normally suffer from spots. It can be a side effect of injections....

I've had a rash of bumps a bit like acne on my neck and chin and around hairline...

Nackapan

•6 years ago

4 Replies

bumps

I come out in little red bumps before im due my b12 anyone else get these

LQinn

•6 years ago

2 Replies

New and so confused - B12 abnormally high after being extremely low

Hi everyone, this forum has been very helpful for me up to now and I think you are all excellent at getting the information across as I am really at my wits...

Hi everyone, this forum has been very helpful for me up to now and I think you a...

Njc15274858

•6 years ago

12 Replies

GP wants to stop my B12 injections

I was diagnosed under active thyroid since 2011. I’m well treated and all levels are good. However after discovering I was in the very lowest (but within)...

I was diagnosed under active thyroid since 2011. I’m well treated and all levels...

Flowers2

•6 years ago

1 Reply

New doctor

Yesterday i went to the doctors again and see an actual doctor, not a nurse, he was a new doctor, told him how terrible ive been feeling, and that the nurse...

Yesterday i went to the doctors again and see an actual doctor, not a nurse, he ...

Padeficiant12

•6 years ago

2 Replies

New to the group

Morning, I’m just popping by to say hi. I’m new to the group. I’ve had my diagnosis of pernicious anaemia from around 9 years now. On my B12 injection since my...

Morning, I’m just popping by to say hi. I’m new to the group. I’ve had my diagno...

Summerrain14

•6 years ago

7 Replies

Test results need your help please do interpreting them !!!

I have never done this test before but recently I have done them and results have come back . Please I need your help to explain what does it mean!? Iam on...

I have never done this test before but recently I have done them and results hav...

Ari3

•6 years ago

3 Replies

b12 deficiency treatment

Hi Everybody, I had my blood test today and result shows that i have b12 deficiency. My b12 is 170. My major symptoms are walking imbalance, shortness of...

Hi Everybody, I had my blood test today and result shows that i have b12 deficie...

wanderboy

•6 years ago

8 Replies

active b12 tests?

hi all, wondering the accuracy of active b12 tests? also, where can i pick these up that are reliable in the uk? thank you :))) x

hi all, wondering the accuracy of active b12 tests? also, where can i pick these...

WilfriedZaha

•6 years ago

19 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2018

Why is my skin crawling with itch after a shower? Desperate for solutions. Ignore last post as I missed information.

More advise

B12 level 103 - How long will it take to recover with injections?

Curious about genetic folate deficiency

Which blood test for vitamins and minerals

Newby seeking guidance on Vitamin B12 results

Successful ordering of 1mg Rotexmedica Hydroxycobalamin to UK

Pa

IRON INFUSION

No PA or B12 deficiency but I am still going to supplement with oral B12 - should i get any other tests before this to rule out for sure?

chest tightness/ pain and palpitations

Needing support please

How to store Methylcobalamin

Watery eyes !

Study: Frequent B12 injections for autism increase cobalt levels...so get enough B12, but don't overdo SI

Tiredness and feeling angry

Advice on SI, please help!

poor balance while walking

Confused blood results

Advice Needed Re: Test Results Please?

Methylcobalamin B12 Ampoules for UK delivery?

In reply

bumps

New and so confused - B12 abnormally high after being extremely low

GP wants to stop my B12 injections

New doctor

New to the group

Test results need your help please do interpreting them !!!

b12 deficiency treatment

active b12 tests?

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