Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

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All posts for January 2017

B12 and PA

So.....a friend of mine has just told me she gets the B12 injections for the PA even though her B12 level is normal . She does not live here in Leeds but is...

So.....a friend of mine has just told me she gets the B12 injections for the PA ...

yvonneu

•7 years ago

11 Replies

Sore eyes

So I take a four day break from methyb12 sublingual spray to retest the theory that it's making my eyes sting and they stopped after a few days. I took a ten...

So I take a four day break from methyb12 sublingual spray to retest the theory t...

Steap

•7 years ago

4 Replies

B12 ampoule

Hi,if i open and ampoule 1ml (50mg/ml concentration) methylcobalamin b12 can i use 0.50ml for one shot and next week the other 0.50ml for other shot if keep...

Hi,if i open and ampoule 1ml (50mg/ml concentration) methylcobalamin b12 can i u...

Gybryl

•7 years ago

3 Replies

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Opinion on blood tests please...

These are my grandsons blood tests he was 4.5 years old at the time of these tests ..which was 5 months ago. GP acknowledges that there are a few things not...

These are my grandsons blood tests he was 4.5 years old at the time of these tes...

pugdogs10

•7 years ago

6 Replies

GP has stated that I know more than he does re Pernicious Anaemia !!!

Just returned from GP, as follow up to 5 loading shots over 5 weeks and a re-test for IFA positive ( 10/10/16 ) and B12 level ( 340 @ 10/10/16 ). The Lab did...

Just returned from GP, as follow up to 5 loading shots over 5 weeks and a re-tes...

Barry1955

•7 years ago

1 Reply

Worried - Problems Reading/mild Dyslexia-like symptoms?

I'm really worried about this because I still don't know for sure if it could be a problem with B12 deficiency or something a lot worse. I've been taking...

I'm really worried about this because I still don't know for sure if it could be...

Dorus

•7 years ago

13 Replies

B12 loading injections but now neuro symptoms returning after 5 weeks.

Hi all. First post here. I visited my doctor due to numbness in both legs on standing/walking. This got progressively worse over time. It started as a one off...

Hi all. First post here. I visited my doctor due to numbness in both legs on sta...

Holly2201

•7 years ago

7 Replies

Help b12 deficiency ? Thyroid

Hi recently been diagnosed with b12 and folate deficiency. Had loading dose and receiving 3 monthly injections plus daily folic acid tablets. However i am...

Hi recently been diagnosed with b12 and folate deficiency. Had loading dose and ...

Cerianseren

•7 years ago

7 Replies

Rules & Regs.

Good morning. Am going to Germany & hoping to stock up on Hydroxo.ampoules. Thing is I'm only going for a short 2 day break & only taking hand luggage. Has...

Good morning. Am going to Germany & hoping to stock up on Hydroxo.ampoules. Thin...

1capricorn3

•7 years ago

3 Replies

Not b12 def now?

So there was a mix up with the blood tests at my surgery last week I went to test for h.plyroi and PA but instead nurse just tested my b12/folate again lol...

So there was a mix up with the blood tests at my surgery last week I went to tes...

Emmy1991

•7 years ago

9 Replies

GP does not do loading dose as per BNF guidelines due to pressure on appointment availability !1

Hi all, Finally had a reply from my letter to GP questioning why my loading dose of 6 jabs was over 6 weeks, not 2 weeks as per guidelines. ( I enclosed...

Hi all, Finally had a reply from my letter to GP questioning why my loading dos...

Barry1955

•7 years ago

11 Replies

Interesting development... RE: B12 injections

Hi everybody. Had to go to surgery this morning to drop a letter from my ophthalmologist. While there a nurse saw me (she had tried to phone me but did not get...

Hi everybody. Had to go to surgery this morning to drop a letter from my ophthal...

JGBH

•7 years ago

11 Replies

Wrong injection

What is the possible result of wrong injection

Mojeedabidemi

•7 years ago

2 Replies

Bloods

Can anyone give me advice on these bloods, no reference ranges were given, I have rang my daughters Gp to get ranges but the receptionist isn't qualified to...

Can anyone give me advice on these bloods, no reference ranges were given, I hav...

Pixielula

•7 years ago

20 Replies

Macrocytosis

Hey guys.... how do you know if you have macrocytosis, what part of the blood test?

Hey guys.... how do you know if you have macrocytosis, what part of the blood te...

Pixielula

•7 years ago

4 Replies

Horrendous Experience at Haematologist Appointment

Hi there, I am writing this having just returned from an awful experience at haematologist appt. Having been diagnosed with PA about 2 and a half years ago,...

Hi there, I am writing this having just returned from an awful experience at hae...

hjcohen

•7 years ago

13 Replies

PA and dental problems?

Hi everyone. I was recently told I had pernicious anemia after suffering from symptoms for years. Over the past maybe 3-4 years my dental health has gone down...

Hi everyone. I was recently told I had pernicious anemia after suffering from sy...

yogamom1

•7 years ago

3 Replies

Hair Help

Hi, I've accepted that on a bad day I can look 20 years older than I really am but one thing that does upset me is my hair. It's always been very fine but...

Hi, I've accepted that on a bad day I can look 20 years older than I really am b...

Sleepybunny

•7 years ago

7 Replies

Frigtening development .

I have a new symptom that is scarring the life out of me,I've developed over night a huge lump on my neck under my jaw area , it's very painful what could this...

I have a new symptom that is scarring the life out of me,I've developed over nig...

Poorlysic

•7 years ago

5 Replies

fluctuating B12 levels but positive reading for pernicious anaemia

My latest blood test depicted a normal level for B12 but the previous two were low. The doctor informed me, however, that I tested positive for pernicious...

My latest blood test depicted a normal level for B12 but the previous two were l...

yvonneu

•7 years ago

31 Replies

Not sleeping after B12 injections

Hi, I was diagnosed with Prenicious Anaemia and low vit D in June, started the injection and Vit D tablets and taken injections regularly every three months....

Hi, I was diagnosed with Prenicious Anaemia and low vit D in June, started the ...

MANALMasri

•7 years ago

6 Replies

B12 serum and MMA

My 18 year old son had a partial cell blood test come back negative- also had endoscopy just before Xmas and diagnosed with inflammation of stomach lining . ,...

My 18 year old son had a partial cell blood test come back negative- also had en...

SarahFerguson

•7 years ago

6 Replies

Question about Active B12 test

How long can blood sample be left without results being affected before it is tested for Active b12? What happens to Active B12 results if sample has been left...

How long can blood sample be left without results being affected before it is te...

Sleepybunny

•7 years ago

4 Replies

Methylcobalamin and folate

If you're taking methylcobalamin does the need to take folic acid or methyfolate still exist if you have decent folate levels?

If you're taking methylcobalamin does the need to take folic acid or methyfolate...

Steap

•7 years ago

7 Replies

Can anybody give any advise

Hi all. New to this site. I have PA and have just finished a course of 11 loading injections . I'm still feeling awful giddy .low energy brain fog tearful...

Hi all. New to this site. I have PA and have just finished a course of 11 loadin...

Handbag1066

•7 years ago

13 Replies

Question about self-injecting

I am now injecting B12 every week on the recommendation of a private GP. It has changed my life, I feel fantastic and am finally able to fully embrace my life...

I am now injecting B12 every week on the recommendation of a private GP. It has ...

Bodley

•7 years ago

2 Replies

More Tumours on Thyroid

No I'm not posting on the wrong site! I have PA and had tumours so big on the left side of my thyroid that it was choking me, so they took the left side away....

No I'm not posting on the wrong site! I have PA and had tumours so big on the le...

Paulaw22

•7 years ago

8 Replies

Hope this doesn't sound daft

Does raised serum and active b12 levels after taking b12 suppliments prove you are able to absorb b12 taken sublingualy? I keep reading that taking b12 skews...

Does raised serum and active b12 levels after taking b12 suppliments prove you a...

Steap

•7 years ago

5 Replies

A bit confused

I was diagnosed with B12d in July2016. Doctor gave me 5 loading injections and then said he would test my blood in 6 months. So after reading here and taking...

I was diagnosed with B12d in July2016. Doctor gave me 5 loading injections and t...

exhausted99

•7 years ago

6 Replies

B12 and vitamin D deficiency

I was diagnosed with B12 deficiency in May 2016. Had my loading doses and have continued to have 12 weekly injections, however I have continued to have pain in...

I was diagnosed with B12 deficiency in May 2016. Had my loading doses and have c...

Paffette71

•7 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2017

B12 and PA

Sore eyes

B12 ampoule

Opinion on blood tests please...

GP has stated that I know more than he does re Pernicious Anaemia !!!

Worried - Problems Reading/mild Dyslexia-like symptoms?

B12 loading injections but now neuro symptoms returning after 5 weeks.

Help b12 deficiency ? Thyroid

Rules & Regs.

Not b12 def now?

GP does not do loading dose as per BNF guidelines due to pressure on appointment availability !1

Interesting development... RE: B12 injections

Wrong injection

Bloods

Macrocytosis

Horrendous Experience at Haematologist Appointment

PA and dental problems?

Hair Help

Frigtening development .

fluctuating B12 levels but positive reading for pernicious anaemia

Not sleeping after B12 injections

B12 serum and MMA

Question about Active B12 test

Methylcobalamin and folate

Can anybody give any advise

Question about self-injecting

More Tumours on Thyroid

Hope this doesn't sound daft

A bit confused

B12 and vitamin D deficiency

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