Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,114 members • 23,266 posts

All posts for October 2016

I'm new here, just started B12 injections as i have a lot of neurological symptoms. My Doctor is a moron, Am i on the right track ?

Hi Everyone, 10 years ago i started having tinnitus. 6 Years ago my heart started having a lot of PVC's(Premature Ventricular Contractions). 2 Years ago i...

Hi Everyone, 10 years ago i started having tinnitus. 6 Years ago my heart starte...

MangoDenmark

•8 years ago

20 Replies

Understanding MMA results

I asked for an MMA blood test/b9 to be run since the doctors won't do much else than "standard blood tests" and I am just wanting opinions and a better...

I asked for an MMA blood test/b9 to be run since the doctors won't do much else ...

dreamthief

•8 years ago

2 Replies

numbness in eyelids

I have had numbness on my right eyelid and tingling. could this be related to b12 i also had floaters which are improving . it seems a bit better with sub...

I have had numbness on my right eyelid and tingling. could this be related to b1...

19191919

•8 years ago

6 Replies

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I'm new here - Tight chest/chest pain/pressure when starting B12 injections

Hi all, Im not sure that my chestpain is from B12 injections, but its a possibility, and i would like to ask you all, if any of you has gotten tight chest...

Hi all, Im not sure that my chestpain is from B12 injections, but its a possibil...

MangoDenmark

•8 years ago

11 Replies

Lump on tongue

I noticed a lump on my tongue about 6 weeks ago. At the time my mouth was a bit sore with a red lesion in the roof of my mouth. These symptoms went after my...

I noticed a lump on my tongue about 6 weeks ago. At the time my mouth was a bit ...

jalbey

•8 years ago

2 Replies

Weird symptoms

Hi was wondering whether any of you have a spacey dizzy feeling in your head and an internal vibrating feeling throughout their body. Also an onset of extreme...

Hi was wondering whether any of you have a spacey dizzy feeling in your head and...

draxina

•8 years ago

5 Replies

Sharps Boxes

I've been given a piece of information that I thought it very important too share with everyone. If you have a full sharps box I'd make use of the Doc's or...

I've been given a piece of information that I thought it very important too shar...

Penni

•8 years ago

10 Replies

b12 injection self

hi dear, where it is best to inject i.e. thigh, tummy or hip? what are risks if you get something wrong e.g. air bubble goes in your muscle?

hi dear, where it is best to inject i.e. thigh, tummy or hip? what are risks if ...

suresh786

•8 years ago

9 Replies

Latest blood results

My wife has hypoparathyroidism - full removal of thyroid glands and all 4 parathyroid glands (calcium regulating glands) in Nov 1996 (20-years ago). I posted...

My wife has hypoparathyroidism - full removal of thyroid glands and all 4 parath...

mmamuk

•8 years ago

3 Replies

Whilst waiting for diagnosis is doing a guten free candida diet making me worse? Am i treating a symptom?

Hi I have trouble with foods bread, fat, starchy carbs and yeast etc but i also have problems when out and didficult to eat anything! Im waiting to have...

Hi I have trouble with foods bread, fat, starchy carbs and yeast etc but i al...

Mandlou

•8 years ago

5 Replies

Retested

Seen Gp today who called me in re.high PV reading. (Bloods done 6 weeks ago and been for 5 loading doses since).she has took blood again, including b12 , even...

Seen Gp today who called me in re.high PV reading. (Bloods done 6 weeks ago and ...

wongy215

•8 years ago

3 Replies

In sympathy

In reply to Volley, I was told more than 12 months ago that regular 3 monthly injections would stop and that I could not have a B12 test for two years. In the...

In reply to Volley, I was told more than 12 months ago that regular 3 monthly in...

rosebudsmith

•8 years ago

8 Replies

Neuropathy

Before having B12 injections 3 months ago had persistent headaches tingling in arms and legs,memory loss, vertigo and a string of other symptoms,are these...

Before having B12 injections 3 months ago had persistent headaches tingling in a...

may61

•8 years ago

6 Replies

It's always a battle

I have been in extreme pain for 7 months in arms and legs and have great difficulty doing anything especially walking. Other symptoms have been appearing over...

I have been in extreme pain for 7 months in arms and legs and have great difficu...

exhausted99

•8 years ago

2 Replies

This hypochondriac is starting to believe in herself

Well,well,well...what can I say......after years of asking for help with my exhaustion, fuggy head, nausea,bloating etc and being fobbed off, eventually being...

Well,well,well...what can I say......after years of asking for help with my exha...

Justified

•8 years ago

8 Replies

Coming from anxiety to here for b12 knowledge

I have been taking supplements and got two injections then went for test. Result 376pg/ml. What is optimal for the people with anxiety. Is it best to take the...

I have been taking supplements and got two injections then went for test. Result...

suresh786

•8 years ago

6 Replies

B12 and Diabeties

Can B12 deficiancy have any effect on sugar levels?

Hackneybob

•8 years ago

6 Replies

Whats best while waiting for injections patches , spray etc?

Hi My mum is going to get injections waiting fir specialist to tell gp. I was thinking of ordeeing her some b12 but what would best fir by passing any...

Hi My mum is going to get injections waiting fir specialist to tell gp. I was...

Mandlou

•8 years ago

5 Replies

B12 level anyone?

Hey guys so I'm still in constant pain and finally managed to get a doctors appointment! I spoke to my doctor about testing me for b12 deficiency which after...

Hey guys so I'm still in constant pain and finally managed to get a doctors appo...

Raven321

•8 years ago

10 Replies

B12 & blood clots

Hello I have recently a pulomry embolisam , & I also have PA I have just read that two much b12 can cause blood clots ? Does anyone else have any knowledge...

Hello I have recently a pulomry embolisam , & I also have PA I have just read th...

Hidden

•8 years ago

12 Replies

Cherylclaire with good news!

The good news is this: my MMA blood results came back as high, confirming B12 deficiency - despite B12 blood test, taken at the same time, reading over 2000....

The good news is this: my MMA blood results came back as high, confirming B12 d...

Cherylclaire

Forum Support•8 years ago

19 Replies

Loading problems

New here. B12 of 132 with constant headaches ,pins and needles, heavy legs etc Doctor loaded with 2 injections of colabin h for two weeks, and followed by...

New here. B12 of 132 with constant headaches ,pins and needles, heavy legs etc D...

may61

•8 years ago

6 Replies

Please help me with understanding blood test results!

Hello, I would really appreciate some help understanding my blood results. Bit of history, I have always had low ferritin since I was a teen (now age 35), my...

Hello, I would really appreciate some help understanding my blood results. Bit o...

nolecki

•8 years ago

11 Replies

Don't give up!

Hi all, I just wanted to encourage all those struggling to get B12 treatment to not give up. I have just looked at the date on my first post on the PAS forum....

Hi all, I just wanted to encourage all those struggling to get B12 treatment to ...

tlscutt

•8 years ago

3 Replies

Cheapest source of Cyanacobalamin

I've just gone to order some more injectable B12 from the German supplier on Amazon that I got it from last time, but the postage is now nearly £14! Does...

I've just gone to order some more injectable B12 from the German supplier on Ama...

Hypopotamus

•8 years ago

12 Replies

I'm desperately seeking advice...feel like we're going round in circles

My 19 year old daughter started presenting with pins & needles in her arms and legs, fatigue and tinnitus when she came home after her first year at uni in...

My 19 year old daughter started presenting with pins & needles in her arms and l...

Me2801

•8 years ago

12 Replies

Are there any Doctors reading these posts?

Evening again (2nd post tonight) Just a thought ...With so many posts on here complaining about doctors/surgeries 'not listening'/'understanding' PA etc etc is...

Evening again (2nd post tonight) Just a thought ...With so many posts on here co...

Gilmarnay

•8 years ago

17 Replies

How will more frequent b12 help?

Evening everyone I have PA. When my blood was last tested (mid July) it was 'high' at 2000 (the max they count I believe) so my nurse is questioning why I...

Evening everyone I have PA. When my blood was last tested (mid July) it was 'hi...

Gilmarnay

•8 years ago

12 Replies

B12 deficiency symptoms

I have recently been to the Doctor armed with recommendations from Martyn. She was prepared to listen and was happy for me to have a blood test. I explained...

I have recently been to the Doctor armed with recommendations from Martyn. She w...

TomAinger

•8 years ago

13 Replies

demyelation of white matter in brain update

I am seeing two neurogist who have different opinions.... One suspects B12 deficiency caused demyelination problem shown in MRI another wants to rule out MS....

I am seeing two neurogist who have different opinions.... One suspects B12 defic...

xyz011

•8 years ago

11 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2016

I'm new here, just started B12 injections as i have a lot of neurological symptoms. My Doctor is a moron, Am i on the right track ?

Understanding MMA results

numbness in eyelids

I'm new here - Tight chest/chest pain/pressure when starting B12 injections

Lump on tongue

Weird symptoms

Sharps Boxes

b12 injection self

Latest blood results

Whilst waiting for diagnosis is doing a guten free candida diet making me worse? Am i treating a symptom?

Retested

In sympathy

Neuropathy

It's always a battle

This hypochondriac is starting to believe in herself

Coming from anxiety to here for b12 knowledge

B12 and Diabeties

Whats best while waiting for injections patches , spray etc?

B12 level anyone?

B12 & blood clots

Cherylclaire with good news!

Loading problems

Please help me with understanding blood test results!

Don't give up!

Cheapest source of Cyanacobalamin

I'm desperately seeking advice...feel like we're going round in circles

Are there any Doctors reading these posts?

How will more frequent b12 help?

B12 deficiency symptoms

demyelation of white matter in brain update

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