Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,114 members • 23,266 posts

All posts for February 2016

IF and GPC explained

https://www.youtube.com/watch?v=nyHfCNKaArg&feature=youtu.be The Australian Facebook founder posted this and I thought it was a clear explanation of how PA can...

https://www.youtube.com/watch?v=nyHfCNKaArg&feature=youtu.be The Australian Face...

BethattheBeach

•8 years ago

4 Replies

Confusion rules! :-(

I have RA but also a low B12. The doctor has prescribed 50mcg cyanocobalamin daily via a phone call, without discussing my symptoms. This didn't seem enough so...

I have RA but also a low B12. The doctor has prescribed 50mcg cyanocobalamin dai...

Moomin8

•8 years ago

4 Replies

GP is insisting I see a Haematologist as not improving on B12 injections. Any recommendations for Yorkshire?

Hi, having decided no point in seeing a haematologist, my GP has now insisted that I do get referred to one as I'm now on my 10th loading injection (Have PA)...

Hi, having decided no point in seeing a haematologist, my GP has now insisted th...

Rett713

•8 years ago

7 Replies

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West of Scotland Thyroid and B12d Support Group: next meeting Thursday 25 February

Our friendly and informal group meets fortnightly. Come and join us this Thursday, 25 February, from 7pm to 9pm at the café at Waitrose, 2 Greenlaw Place,...

Our friendly and informal group meets fortnightly. Come and join us this Thursd...

SailingBy

•8 years ago

5 Replies

Private Active B12 Testing

My 24 daughter has a low b12 count, 234' doctor has dismissed this as in range. Does anyone know how I can get a private test in UK done for her please. I have...

My 24 daughter has a low b12 count, 234' doctor has dismissed this as in range. ...

Meggymoo63

•8 years ago

12 Replies

What happens to nails in pa?

Flake, ridge vertically or horizontally or curl over at the ends? Anyone noticed strange nail events?

Flake, ridge vertically or horizontally or curl over at the ends? Anyone noticed...

Hidden

•8 years ago

16 Replies

I need help please!

I am new here and I need help with my blood test results and my hemoglobin is 13.7 is that a good thing or a bad thing and my hematocrit is 41.2% is that...

I am new here and I need help with my blood test results and my hemoglobin is ...

carolann22

•8 years ago

1 Reply

Normal Progress?

I began loading shots of B12 in mid November, 3 shots a week for 3 weeks, some of my symptoms began to improve, muscle spasms in legs, pins and needles,...

I began loading shots of B12 in mid November, 3 shots a week for 3 weeks, some o...

MALP

•8 years ago

14 Replies

guytane

diagnosed 5 years ago anemic take irion tablets I have worked it out that 2 a day keep my irion levels at about 12 think should b 13 for a man does this mean...

diagnosed 5 years ago anemic take irion tablets I have worked it out that 2 a d...

guytane

•8 years ago

1 Reply

B12 deficiency

Hi I have just been told I have b12 deficiency I had my first injection last week and had a reaction to it dose this meen if I take methyl b12 lozenges I will...

Hi I have just been told I have b12 deficiency I had my first injection last wee...

Shanestoten

•8 years ago

7 Replies

Activated B12 for MTHFR gene mutant

Being a mutant(!), my newly acquired GP believes that I cannot absorb the regular B12 injection so I need to have activated B12. Sadly a loading dose has not...

Being a mutant(!), my newly acquired GP believes that I cannot absorb the regula...

Paolini_Teracini

•8 years ago

4 Replies

Lots of questions

Hi there. I have been diagnosed with PA last week - but just wanted to check whether anybody had been diagnosed incorrectly? The only symptoms I have are...

Hi there. I have been diagnosed with PA last week - but just wanted to check whe...

Lifetimer

•8 years ago

9 Replies

Arsenic Poisoining from Gluten Free foods

I have recently started B12 injections for pernicious anaemia and I am a coeliac. Ive been very interested in finding out the root cause as to why Ive...

I have recently started B12 injections for pernicious anaemia and I am a coeliac...

Jus-tine

•8 years ago

10 Replies

Strange fluttering under ribcage

Diagnosed B12 deficient a year now, on regular 12 weekly jabs, topping up myself as and when required, when the pins and needles return mostly 😐 The last...

Diagnosed B12 deficient a year now, on regular 12 weekly jabs, topping up myself...

Hidden

•8 years ago

11 Replies

Diagnosed with low B12 and Folate

Hi Everyone, l had a blood test in January which showed low B12 and Folate, also low calcium but he said it was ok. My symtoms were very...

Hi Everyone, l had a blood test in January which showed low ...

Jonan71

•8 years ago

8 Replies

Anemia?

Has any one else been told they are iron deficiency and B12 deficient? I've been told that yesterday by the hospital after recent tests. So I said what...

Has any one else been told they are iron deficiency and B12 deficient? I've bee...

Catherine50

•8 years ago

2 Replies

B12 injections leaking?

Whenever I get my B12 injections, quite alot of the liquid comes back out of the hole they injected it into. When I got my injection last Friday, I came home...

Whenever I get my B12 injections, quite alot of the liquid comes back out of the...

KCxo

•8 years ago

8 Replies

Here we go again

had my fist single injection on Monday, I was ok for 2 days but now feeling shattered and tingly is this normal for after a single injection.

had my fist single injection on Monday, I was ok for 2 days but now feeling shat...

Auntyp62

•8 years ago

4 Replies

Injections

Can someone please tell me a reliable source to buy the b12 injections, I have to go for blood tests soon to see what my b12 levels are, if going by my...

Can someone please tell me a reliable source to buy the b12 injections, I have t...

Chelle71

•8 years ago

4 Replies

Symptoms returning. What's next?

I have talked about some of this in previous posts, but I figured I'd make a new one since I've been noticing new symptoms. Basically, I had a blood test...

I have talked about some of this in previous posts, but I figured I'd make a new...

KCxo

•8 years ago

7 Replies

Being Re-tested by Dr

Hi, I really need information on the other tests that can be done other than the stantard B12 and IFA (I was negative for IFA). I have been having loading...

Hi, I really need information on the other tests that can be done other than the...

Galadriel1

•8 years ago

2 Replies

Why Three Monthly?

Interesting post on B12 Deficiency Info website about how we came to have a standard treatment regime of one injection every three months in UK....

Interesting post on B12 Deficiency Info website about how we came to have a stan...

Sleepybunny

•8 years ago

1 Reply

my b12 diagnosis x

Hi everyone I was diagnosed with this this week , and I'm relieved my tiredness and everything else I have suffered back pain muscle pain feeling down is now...

Hi everyone I was diagnosed with this this week , and I'm relieved my tiredness ...

Dawny257

•8 years ago

10 Replies

parietal cell antibody test.

My test was positive but an if test not was not done... what does this tell me please??

My test was positive but an if test not was not done... what does this tell me...

xJJx

•8 years ago

8 Replies

Feeling worse again...

On Friday, I finished my second loading dose of B12 injections after finding out that my levels had dropped to 93 only 2/3 weeks after my first initial loading...

On Friday, I finished my second loading dose of B12 injections after finding out...

KCxo

•8 years ago

5 Replies

Yellowing eyes

Hi as my doctor won't listen and do the right testing I'm worried about my systems as I thought symptoms iv had years r on the list but I thought it was just...

Hi as my doctor won't listen and do the right testing I'm worried about my syste...

Leigh6873

•8 years ago

3 Replies

Should I ask to see a haemotologist as just been diagnosed with PA?

Hi I've just been diagnosed with PA and having loading injections. I have all the symptoms inc. neurological ones that I've had for two years. Should I ask to...

Hi I've just been diagnosed with PA and having loading injections. I have all t...

Rett713

•8 years ago

4 Replies

Guidelines/Files

TAB100

•8 years ago

2 Replies

Latest Blood Results

Hello All, My latest blood results are: Serum Folate 18.36 ug/l (>5.38ug/l) Vit B12 680 ng/l (211-911ng/l) Active B12 151 pmol/l (25-165 pmol/l) Serum C...

Hello All, My latest blood results are: Serum Folate 18.36 ug/l (>5.38ug/l) Vi...

brightsideoflife88

•8 years ago

1 Reply

B12 injections - how soon before I notice a difference

I have just been diagnosed with B12 and vitamin D deficency. I have had my first injection and have another 5 over the next 3 weeks and started Fultium-D3...

I have just been diagnosed with B12 and vitamin D deficency. I have had my first...

carer999

•8 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2016

IF and GPC explained

Confusion rules! :-(

GP is insisting I see a Haematologist as not improving on B12 injections. Any recommendations for Yorkshire?

West of Scotland Thyroid and B12d Support Group: next meeting Thursday 25 February

Private Active B12 Testing

What happens to nails in pa?

I need help please!

Normal Progress?

guytane

B12 deficiency

Activated B12 for MTHFR gene mutant

Lots of questions

Arsenic Poisoining from Gluten Free foods

Strange fluttering under ribcage

Diagnosed with low B12 and Folate

Anemia?

B12 injections leaking?

Here we go again

Injections

Symptoms returning. What's next?

Being Re-tested by Dr

Why Three Monthly?

my b12 diagnosis x

parietal cell antibody test.

Feeling worse again...

Yellowing eyes

Should I ask to see a haemotologist as just been diagnosed with PA?

Guidelines/Files

Latest Blood Results

B12 injections - how soon before I notice a difference

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How Often do you feel you actually need your B12 injection?

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