Pains: Hi, I was diagnosed with PA a... - Pernicious Anaemi...

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Pains

roxicat profile image
8 Replies

Hi, I was diagnosed with PA a year ago. I've got a vibrating in my feet like a mobile phone on vibrate, is this normal. Also just received my b12 injection and I've been in agony with my legs especially and my other joints. When I wake in the morning my hands are numb. Has anyone else suffered this. I'm also on blood thinners and have hypothyroidism and had 2 pulmonary embolisms.

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roxicat
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8 Replies
Nackapan profile image
Nackapan

With any change in your symptoms its worth getting them checked out especially with your other health problems.

I can relate to aching joints waking me up .

Also numbness.

Seems to have no pattern.

Definitely different from other aches and pains I've had before .

Do you think your treatment is correct?

Have you had recent blood tests included iron,vit D folate fbc

roxicat profile image
roxicat in reply to Nackapan

Yes I got the PA test, folate was also low received treatment for that. Have had low iron in the past. Have high uric acid. An old woman before my time.

Nackapan profile image
Nackapan in reply to roxicat

Arnt we all!!

Pickle500 profile image
Pickle500

What's your treatment regime like?

It does sound like you need alot more regular B12. Numb hands is a sort of mid-way point of healing so it definitely needs regular injections.

I still get buzzing in my spine and feet but its subsided eith regular injections.

roxicat profile image
roxicat in reply to Pickle500

One every 3 months

Pickle500 profile image
Pickle500 in reply to roxicat

I think you need to push for more - you can ask for every 8 weeks.

Otherwise I'd consider self injection.

Many people here administer one injection a week, including me. Many do every other day.

You may want to consider every other day for a couple of weeks and then one a week. C

Nackapan profile image
Nackapan in reply to roxicat

I pushed for 8 weekly for my 93 year old mum.A huge improvement.

Motheroflittle profile image
Motheroflittle

Yes, I have PA and was experiencing that vibrating too. I explained it to my GP just as you have here. He upped my B12 injections from monthly to every other week and it has really helped. I rarely have vibrations any more. You could try an increase in frequency to see if it helps .

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