Chronic fatigue

[Bluemoon_2012]

My CFS is seriously getting worse, some days I find it hard to get out of bed. Any useful suggestions?

[cyberbarn]

Are you under any consultants for your care?

Now that people are taking Long Covid seriously they are finding aspects of cross over between ME/CSF and long covid. For instance they have found that some people with long covid have POTS (postural orthostatic tachycardia syndrome) and many with ME/CSF have been pointing out that they have this too. There are some medications that cardiologists can use to treat this and other dysautonomias.

Our GP has recently agreed to try one of these medications and we are just trying to adjust the dose to get some more improvement in my son's CFS.

But other than pacing which I am sure you already know about, we just try to make sure that he does something every day that brings joy, pleasure, laughter, or similar. Sometimes it is just going outside to see the sunset, other times it is listening to comedy on the radio.

I hope you can find one thing a day that helps you get out of bed.