Periphial neuropathy

[Bridgenov]

Diagnosed with this in my hands and feet for two years and the medication I take is pre-Gabalin. It’s hardly helping and I’ve been advised there is nothing else I can take everything I touch is like Barbwire can anybody recommend anything further

[Cb1963]

I'm afraid to say unless you have done the rounds on the other medication that's similar you might be at the end of the road for a cure, I've suffered for over 7 years with this condition and it's painful and tricks all the nerves with different sensations, put lidocaine patches on the back of my calf muscles for 12 hours, and take mirtrazapine at night time, I put on quiet a few pounds especially when put onto pregabalin, the mirtrazapine helps a little at night time to try and get some sleep, have you been tested for B12 deficiency? Or have you been explained why you've ended up with PN,I'll be honest with you it just seems so difficult to get treatment to be free from pain and I understand your possible feelings, I find getting anxious or stressed dose not help as this also sets my muscles into spasms, the condition itself makes you feel tired and trying to find a cold spot under the covers is like playing footsie, there is also gabbapentin and amitriptalyne (excuse the spelling) that's used but I ended up waking up and having hallucinations on that particular one, I'm sorry it's not the best answer but what's the point in trying to deceive you, I hope someone else can give you more positive feedback and hopefully you'll find a medication that may help you, and of course some folk respond differently to tablets, perhaps I'm just a little unlucky, I wish you all the best and hopefully you'll get through this difficult time, thank you.

[la40 in reply to Cb1963]

Know how you feel, don't think doctors have any answers to this, just have to put up with it. Nice to find someone who has tried everything and is honest. Best wishes to you.

[Itsallinthehips]

It’s an awful drug same as gabapentin and amatriptalne (sorry can’t spell) they all made me completely crazy it was horrible 😒

[LCAL]

Hi bridge

I have MS and also neuropathy and I get monthly lidocaine Iv treatments. They work immediately for some ppl butt foot other ppl like myself take up to a week to work. It makes that deep suicide like nerve pain very tolerable!!!

[Hidden]

Some information that might help: nhs.uk/conditions/periphera...

[Jtal19305]

Hi Bridge-

Do you know the cause of this periphial neuropathy? I have similar pain in my feet due to a "failed" back surgery a few years ago. I have burning pain mainly in the soles and outer part of my left foot but the pain will jump to my right foot. I have tried lyrica (pre-gab.) and gabapentin to no avail, and weened off of those drugs as they causeed me more harm than good. Other options include opiod pain medications such as Oxycondone taken throughout the day (e.g., 4x10 mg) which does ease pain of this nature but not 100% relief and not continious relief but some relief none the less. If this is not available for you or you cannot tolerate these type of meds, you could look like at other options such as spinal cord stimulator or surgery (I would be very cautios with this approach) if the there is an obvious legion or compression causing your neuropathy. I find shots into the back do not work and are a waste of time, money and can cause damage long term even though the pain clinics push these shots they are essentially useless to perhaps some relief for a few days until the numbing effects of the injected drug wears off. I can't see how people are convinced these shots are the solution. Of course, physical therapy, massage, heat and cold, and accupunture may help but often this is not a full solution as is the case with my pain syndrome. Well, I hope you find relief. JT

[joebeddall]

I know how you feel.I have the same problem,tried every recommended medication and Pregablin has given me most relief.Dosen't seem to be any progress in finding a cure.I keep my eye on this page to keep upto date.

[orange33]

Thank god I have found other people with this condition. Thought I was the only person in the county. I also have RA with this. Not on any other meds except for RA.

Seen Nero Doc. Had tests. Came on slowly. Don't know where to turn now.

[orange33]

Hello I was diagnosed with this condition 16months ago. Until then I was guiet active. It came on slowly. Had all the usual tests,MRI CT etc. I also have RA. Been offered amitriptyline to calm muscles at night. Hands and feet very badly affected pain pills not much use. Have to use walker and buggy now. I use revitive circulation booster which may help. Thinking of Acupuncture now.

America seem to understand this condition.

I hope you don't find this text depressing. The very best to you.