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My Ovacome

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Ovaries and tube removal

Hi i have never been in hospital till Feb '24 when i had both my ovaries and tubes removed

Hi i have never been in hospital till Feb '24 when i had both my ovaries and tub...

Doglady13

•2 months ago

4 Replies

Janet

My mother aged 73, has been suffering with extreme fatigue, weakness in legs together with extreme breathlessness and loss of appetite for a short number of...

My mother aged 73, has been suffering with extreme fatigue, weakness in legs tog...

JanetKaur

•4 months ago

8 Replies

New episode of Living with Ovarian Cancer Podcast

Hello everyone, Today a new episode of “Living with Ovarian Cancer Podcast” is now available. You can listen via the link below, or wherever you usually...

Hello everyone, Today a new episode of “Living with Ovarian Cancer Podcast” is...

Levanah

•9 months ago

2 Replies

Want to take advantage of all our features? Just log in!

New podcast episode now live!

Hello Teal Sisters, Today a new episode of “Living with Ovarian Cancer Podcast” is now live. You can listen via the link below, or wherever you usually...

Hello Teal Sisters, Today a new episode of “Living with Ovarian Cancer Podcast...

Levanah

•10 months ago

2 Replies

No scan offered!

I have a recurring ovarian cancer. I'm treatable but not curable.I had radiotherapy in January to reduce a recurrence and my Ca125 went down to 21. It's now...

I have a recurring ovarian cancer. I'm treatable but not curable.I had radiother...

loobilou

•10 months ago

31 Replies

CA 125 high 3 weeks after optimal Surgery

hi ladies, wishing everyone a bright new week. I was diagnosed with stage 2A clear cell carcinoma. Had cytoreductive surgery with no visible disease left...

hi ladies, wishing everyone a bright new week. I was diagnosed with stage 2A cle...

Elifebru

•11 months ago

10 Replies

How to cope with fear of cancer returning

Hi! I’ve now received the “all clear”, but the fear is still there. Has the cancer really gone? Will it come back? When will it return? Will I catch it in...

Hi! I’ve now received the “all clear”, but the fear is still there. Has the can...

Hailun

•11 months ago

34 Replies

I have a concern with my ca -125, post op

My ca-125 started out 536, then thru chemo dropped to 219, then 56. Had surgery only dropped to 50. Back on chemo dropped to 19, 3 weeks later and finishing...

My ca-125 started out 536, then thru chemo dropped to 219, then 56. Had surgery...

Jacquiemoo

•1 year ago

21 Replies

New episode of “Living with Ovarian Cancer Podcast” is out!

At last, I’m back with my Podcast and this one is a brilliant episode to get started with again. I know many of you have asked about when I’d be recording...

At last, I’m back with my Podcast and this one is a brilliant episode to get sta...

Levanah

•1 year ago

10 Replies

Preventative ovary removal hereditary link

Just wondered if people on this site may have experience of family members deciding to have elective surgery for removal of their ovaries based on possible...

Just wondered if people on this site may have experience of family members decid...

Mirrorplace

•1 year ago

31 Replies

We have some goodies for you, just in time for Christmas !

Still looking for that elusive Christmas gift, then Ovacome might be able to help. With a selection of pretty jewellery and beautiful teal scented candles you...

Still looking for that elusive Christmas gift, then Ovacome might be able to hel...

TheOvacomeTeam

Partner•10 years ago

Be the first to reply

Updated Guidelines and Terms of Use.

The HealthUnlocked MyOvacome guidelines and terms of use have been updated. Please take a few moments to read through the changes. Community Guidelines...

The HealthUnlocked MyOvacome guidelines and terms of use have been updated. Plea...

TheOvacomeTeam

Partner•10 years ago

8 Replies

Lobbying workshop for Ovacome members, Saturday 18 January 2014

Calling all Ovacome members, Ovacome works with national stakeholders to campaign for improvements but we know that through telling your story, you can make...

Calling all Ovacome members, Ovacome works with national stakeholders to campa...

TheOvacomeTeam

Partner•10 years ago

3 Replies

New Team Member

Hi Everyone My name is Susan. I am a new member of the Ovacome team. I will be working alongside Ruth as a Support Line Nurse. I have had a range of...

Hi Everyone My name is Susan. I am a new member of the Ovacome team. I will be...

SusanOvacome

•11 years ago

12 Replies

Providing advice

Hello everyone! We have had a few comments and reports in the office which I wanted to share and discuss with you all. It centres around the fine lines of...

Hello everyone! We have had a few comments and reports in the office which I w...

LouiseOvacome

My Ovacome Team•11 years ago

9 Replies

Ovacome Summer Newsletter 2013

Our latest newsletter is now available to read and download from our website: http://www.ovacome.org.uk/resources/the-ovacome-magazine.aspx Hard copies...

Our latest newsletter is now available to read and download from our website: ...

SoniaOvacome

•11 years ago

3 Replies

My trip to Washington

I am going to Washington,USA in July to bring back a new project that empowers women living with ovarian cancer to train health professionals. Survivors...

I am going to Washington,USA in July to bring back a new project that empowers w...

Hidden

•11 years ago

14 Replies

HealthUnlocked Inner Circle

If you are interested in creating your own community of friends you can use the Inner Circle section of this site. It enables you to keep a journal that is...

If you are interested in creating your own community of friends you can use the ...

Hidden

•11 years ago

3 Replies

World Ovarian Cancer Day: May 8th 2013

Join us for a tour of London on Tuesday to help spread awareness of the first World Ovarian Cancer Day. We will be taking pictures and handing out ribbons at...

Join us for a tour of London on Tuesday to help spread awareness of the first Wo...

SoniaOvacome

•11 years ago

11 Replies

Ovacome Members' Day 2013

Hello everyone, Ovacome's Members' Day will be taking place on Saturday 18th May at the National Council for Voluntary Organisations, Regent's Wharf, 8...

Hello everyone, Ovacome's Members' Day will be taking place on Saturday 18th...

SoniaOvacome

•11 years ago

5 Replies

World Ovarian Cancer Day, May 8th 2013

May 8th marks the first World Ovarian Cancer Day, where organisations from around the world will unite to educate their communities about ovarian cancer and...

May 8th marks the first World Ovarian Cancer Day, where organisations from aroun...

SoniaOvacome

•11 years ago

6 Replies

Patient questionnaire on radical debulking surgery

Hello, We would like to invite ladies who have had radical debulking surgery to take part in a questionnaire. The interventional procedures team at the...

Hello, We would like to invite ladies who have had radical debulking surgery...

SoniaOvacome

•11 years ago

13 Replies

In Memory donations

Hello ladies, I want to let you all know that Ovacome is looking at new ways of allowing people to donate in memory or in tribute of loved ones. It is...

Hello ladies, I want to let you all know that Ovacome is looking at new ways...

SoniaOvacome

•11 years ago

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Avastin for 1st line treatment - NICE says no!

Dear All, Sadly the news from NICE towers is not good. They have declined Avastin as a treatment for 1st line ovarian cancer treatment. The reasons for...

Dear All, Sadly the news from NICE towers is not good. They have declined Av...

LouiseOvacome

My Ovacome Team•11 years ago

9 Replies

Saturday's champagne tea party!

I had such a good time at the Champagne Tea with Ovacome on Saturday. This has become an important annual fund raising event for Ovacome now in its fourth...

I had such a good time at the Champagne Tea with Ovacome on Saturday. This has ...

Hidden

•11 years ago

2 Replies

Fundraising for other charities here

Hi Everyone, I wanted to start a question and ask the community about something with regard to this site which really causes us some ... challenges. As...

Hi Everyone, I wanted to start a question and ask the community about somethi...

LouiseOvacome

My Ovacome Team•11 years ago

9 Replies

New Ovacome leaflet!

Ovacome now has a new leaflet with awareness raising messaging and which promotes the work of the charity. It has eight full colour pages in an A5 format. If...

Ovacome now has a new leaflet with awareness raising messaging and which promote...

Hidden

•11 years ago

9 Replies

Can you help with a short survey on the impact of ovarian cancer on sexual activity?

We have had a request to promote a short survey on the impact ovarian cancer has had on sexual activity. We know from previous research and studies that this...

We have had a request to promote a short survey on the impact ovarian cancer has...

SoniaOvacome

•11 years ago

3 Replies

Support groups

There is lots of interest in support groups at the moment, and Ovacome has a list of them on the website in the resources section...

There is lots of interest in support groups at the moment, and Ovacome has a lis...

Hidden

•11 years ago

4 Replies

Ovarian cancer awareness month

Hello ladies, I just wanted to keep you all posted on the latest activity at Ovacome HQ with ovarian awareness month just around the corner! We are...

Hello ladies, I just wanted to keep you all posted on the latest activity at...

SoniaOvacome

•11 years ago

3 Replies

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Posts - My Ovacome | HealthUnlocked

My Ovacome

All things My Ovacome posts

Ovaries and tube removal

Janet

New episode of Living with Ovarian Cancer Podcast

New podcast episode now live!

No scan offered!

CA 125 high 3 weeks after optimal Surgery

How to cope with fear of cancer returning

I have a concern with my ca -125, post op

New episode of “Living with Ovarian Cancer Podcast” is out!

Preventative ovary removal hereditary link

We have some goodies for you, just in time for Christmas !

Updated Guidelines and Terms of Use.

Lobbying workshop for Ovacome members, Saturday 18 January 2014

New Team Member

Providing advice

Ovacome Summer Newsletter 2013

My trip to Washington

HealthUnlocked Inner Circle

World Ovarian Cancer Day: May 8th 2013

Ovacome Members' Day 2013

World Ovarian Cancer Day, May 8th 2013

Patient questionnaire on radical debulking surgery

In Memory donations

Avastin for 1st line treatment - NICE says no!

Saturday's champagne tea party!

Fundraising for other charities here

New Ovacome leaflet!

Can you help with a short survey on the impact of ovarian cancer on sexual activity?

Support groups

Ovarian cancer awareness month

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Pinned Posts

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Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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