Posts - My Ovacome | HealthUnlocked

My Ovacome

17,739 members • 19,979 posts

All posts for April 2024

surgery with doctor with bad patient review

have surgery coming up and my doctor just got a 1 star review on google by a patient. The patient wrote that he doesnt listen and doesnt think outside the box...

have surgery coming up and my doctor just got a 1 star review on google by a pat...

Vivibeatris

•7 hours ago

4 Replies

Strange, possibly hopeful realisation

This post mentions alternative remedies. Any evidence is anecdotal, based on my experience. Always check with your oncologist before using something they...

This post mentions alternative remedies. Any evidence is anecdotal, based on my ...

candyapplegrey

•12 hours ago

2 Replies

Theraglass

Due to start Gemcitabine in June for 2nd recurrence since surgery. Finished 7 months of caylex/ carbo in November. Really enjoying past 5 months of no...

Due to start Gemcitabine in June for 2nd recurrence since surgery. Finished 7 mo...

Theraglass

•15 hours ago

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4 days after debulking surgery

hi all, Mum had her debulking surgery on Thursday evening and it was very successful. Full removal of ovaries, uterus, omentun, appendix etc. However she is...

hi all, Mum had her debulking surgery on Thursday evening and it was very succe...

georgiageorgia182

•15 hours ago

9 Replies

first recurrence

hi peeps , I started new rounds of chemo for floating cluster cells , detected after they drained 2.5 L of fluid from my belly. CA 125 820 I’m on...

hi peeps , I started new rounds of chemo for floating cluster cells , detected a...

Vegana

•1 day ago

2 Replies

Fevers

My mum has been fighting this disease since 2016. At diagnosis she was high grade OC stage 3c. After initial surgery and chemo she was in remission for 5...

My mum has been fighting this disease since 2016. At diagnosis she was high gra...

ShamilaS

•2 days ago

6 Replies

Thank you

I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to...

I am overwhelmed with gratitude to all those that have responded to my post yest...

PWT1

•2 days ago

11 Replies

Ip chemo

Hi have many of you ladies had ip chemotherapy thanks in advance

Molste

•3 days ago

1 Reply

Had enough

I’ve not posted before but have read a lot of your messages over the last two and a half years . I think you are all stronger , braver and more positive than I...

I’ve not posted before but have read a lot of your messages over the last two an...

PWT1

•3 days ago

44 Replies

GemCarbo and picc line advice please!

Hi ladies, I've seen my oncologist today (well, one of his minions anyway) to find out about my treatment plan for my first recurrence. They've told me that...

Hi ladies, I've seen my oncologist today (well, one of his minions anyway) to fi...

Kjpip

•3 days ago

11 Replies

HGS stage 3b

Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy...

Has anyone been through similar. I was diagnosed in May 2020 after total hyste...

0151tmac69

•4 days ago

3 Replies

What's on at Ovacome next week? (week commencing Monday 29 April 2024)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•4 days ago

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Caelyx.... successful outcomes????

I have just finished six rounds of monthly Caelyx only. This is my fourth line of chemo ie. Third recurrence.While my CA125 didn't go down to normal level it...

I have just finished six rounds of monthly Caelyx only. This is my fourth line o...

Seedlings

•4 days ago

21 Replies

wanting to share the news

Hi , I have had my CT scan and blood work again I just to say there is no evidence of disease!!!!!! It was last year had my removal of all my bits and then...

Hi , I have had my CT scan and blood work again I just to say there is no eviden...

Cazy1010

•5 days ago

14 Replies

1c ovarian cancer

hi I’ve been diagnosed with stage 1 c ovarian luscious cancer and had a full hysterectomy but my consultant has informed me that chemotherapy is not a option...

hi I’ve been diagnosed with stage 1 c ovarian luscious cancer and had a full hys...

Marketlover

•5 days ago

19 Replies

debulking surgery

Hi lovely ladies 💟 My mums off for debulking surgery tomorrow, and I'd love to know if anyone has any tips on anything that made the recovery easier or...

Hi lovely ladies 💟 My mums off for debulking surgery tomorrow, and I'd love ...

georgiageorgia182

•6 days ago

17 Replies

can pleural effusion alone come back?

when I was first diagnosed with HGS OC in December 2021, it had spread till the lungs. There were 2 small nodules in the lungs along with pleural effusion in...

when I was first diagnosed with HGS OC in December 2021, it had spread till the ...

Goodgirl98

•6 days ago

4 Replies

Recurrence

I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences...

I know with over OVCA (or any cancer), everyone hopes for “one and done”, but l...

Leniko

•6 days ago

6 Replies

Recurrence

I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences...

I know with over OVCA (or any cancer), everyone hopes for “one and done”, but l...

Leniko

•6 days ago

25 Replies

Elahere

I have ovarian cancer since 10/2020. Have done all kinds of chemo plus radiation everything was good till this passes week. Had a pet scan and the cancer...

I have ovarian cancer since 10/2020. Have done all kinds of chemo plus radiation...

MyDogKalie

•8 days ago

4 Replies

Rising CA125

I had CT scan in February and it was clear however my CA125 is at 92 been slowly rising it worries me. Im getting bloods and CT scan every 3 months. Anyone...

I had CT scan in February and it was clear however my CA125 is at 92 been slowly...

0151tmac69

•8 days ago

6 Replies

Recurrence?im scared

I don't know where to start because I'm scared to death. I already made a post about my situation but I need to talk more about it with people who understand...

I don't know where to start because I'm scared to death. I already made a post ...

Belindajames

•8 days ago

4 Replies

fallopian cancer return

hi everyone. After chemo, surgery and chemo, was cancer free we thought. But now it has return in the lymph nodes after 6 months and my dr wants to do carbo...

hi everyone. After chemo, surgery and chemo, was cancer free we thought. But n...

Jacquiemoo

•8 days ago

6 Replies

Caelyx/ carboplatin side effect retention of fluids

Dearest,Hope all good. Since i was in the hospital, 11 days for a bacteria in my porth-a-cath, my body did a huge retention of liquids in my feet and legs....

Dearest,Hope all good. Since i was in the hospital, 11 days for a bacteria in my...

Pumpkininja

•9 days ago

8 Replies

4th round chemo worse since surgery, started feeling sick & stomach pains 😫

Hello lovely ladies I had 3 rounds of chemo along with Avastin & although I had many side effects, I was fortunate that sickness/nausea wasn't one of them. 5...

Hello lovely ladies I had 3 rounds of chemo along with Avastin & although I had ...

Kazzh

•9 days ago

21 Replies

Hi is there any sucess stories of people who haven't had the BRAC 1or 2 gene thanks

Diagnosed Jan 2024

Molste

•10 days ago

13 Replies

Small hernia

I have Stage 3 low grade ovarian cancer and had debulking surgery 18 months ago. I got over the surgery very quickly and have been very lucky with no...

I have Stage 3 low grade ovarian cancer and had debulking surgery 18 months ago...

Frinks

•10 days ago

13 Replies

Bevacizumab v Niraparib

I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with...

I've had chemo/debulking surgery/ chemo, and have just come to the end of the po...

LovemyJackRussell

•11 days ago

20 Replies

peewee

hello is anyone on Rucaparib and if so do you know if it's ok to dye your hair? Not just highlights but tint as well I am 5 months on from chemo

hello is anyone on Rucaparib and if so do you know if it's ok to dye your hair? ...

Reinbach

•11 days ago

3 Replies

New vlog/Dr Dr site - important statistic but not to do with OC survival

Ok. Everywhere I look I see people running the marathon, organising a campaign, going on TV, all to raise awareness for prostate cancer. But awareness of this...

Ok. Everywhere I look I see people running the marathon, organising a campaign, ...

candyapplegrey

•11 days ago

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Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for April 2024

surgery with doctor with bad patient review

Strange, possibly hopeful realisation

Theraglass

4 days after debulking surgery

first recurrence

Fevers

Thank you

Ip chemo

Had enough

GemCarbo and picc line advice please!

HGS stage 3b

What's on at Ovacome next week? (week commencing Monday 29 April 2024)

Caelyx.... successful outcomes????

wanting to share the news

1c ovarian cancer

debulking surgery

can pleural effusion alone come back?

Recurrence

Recurrence

Elahere

Rising CA125

Recurrence?im scared

fallopian cancer return

Caelyx/ carboplatin side effect retention of fluids

4th round chemo worse since surgery, started feeling sick & stomach pains 😫

Hi is there any sucess stories of people who haven't had the BRAC 1or 2 gene thanks

Small hernia

Bevacizumab v Niraparib

peewee

New vlog/Dr Dr site - important statistic but not to do with OC survival

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