Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for September 2023

Rucaparib

Hello ladies, is there anyone else on Rucaparib and experiencing major fatigue? I take 300mg twice a day am/pm. Increased ca-125 from 66 to 113 to 160 in 3...

Hello ladies, is there anyone else on Rucaparib and experiencing major fatigue? ...

sarah040866

•8 months ago

4 Replies

Tips of surgery and recovery

Hello, My surgery is scheduled for 10 October. It sounds like a big op, so feeling frightened, especially after reading experiences shared about how ones body...

Hello, My surgery is scheduled for 10 October. It sounds like a big op, so feeli...

Alentejo

•8 months ago

18 Replies

All clear now for two years

Just sending a positive story. Diagnosed 2b HG clear cell, endometrioid 2020. Big op, chemo, diagnosed my own recurrence after 6 months. Another op, then RT....

Just sending a positive story. Diagnosed 2b HG clear cell, endometrioid 2020. ...

candyapplegrey

•8 months ago

21 Replies

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Olaparib side effects - cough and breathlessness

Hi all. I've been taking Olaparib since May this year and have had a constant cough and breathlessness. It's getting me down a bit and I was wondering if...

Hi all. I've been taking Olaparib since May this year and have had a constant c...

Demelzatheseagull

•8 months ago

1 Reply

1 year since my operation so celebrated on holiday's 🙌🌄 🇬🇷

Just an update, it was a year on 7th September that I had my debulking after 4 chemo then 2 following the operation with avastin added to last infusion. I'm...

Just an update, it was a year on 7th September that I had my debulking after 4 c...

Newbery3

•8 months ago

36 Replies

Germline BRCA awaited.

Hi,Can anyone say what the above actually means? Is it to find out if I am BRCA mutated or BRCA not mutated my letter says that I am HRD negative tumor. Thanks...

Hi,Can anyone say what the above actually means? Is it to find out if I am BRCA ...

Hidden

•8 months ago

14 Replies

Giant ovarian cyst- very worried

Hi Everyone , Its my first time posting here but I read some posts and it seems like a very supportive community . I am 42 and not menopausal. I ended...

Hi Everyone , Its my first time posting here but I read some posts and it see...

martiksa

•8 months ago

9 Replies

Scared I may have ovarian cancer

Ca125 an platelets raised. Severe abdominal pain an bloating scared I may have ovarian cancer awaiting an urgent specialist appointment 😢 is there anyone out...

Ca125 an platelets raised. Severe abdominal pain an bloating scared I may have o...

MK82

•8 months ago

5 Replies

positive vibes needed :(

my mom… have ovarian cancer since 2017, till 2021 in remission, affer each summer carbo taxol and 6 month off… that this may she has shock from palitaxel and...

my mom… have ovarian cancer since 2017, till 2021 in remission, affer each summe...

Inguc_is

•8 months ago

3 Replies

Recurrence in spleen

Had chemo and debulking surgery 2 years ago. Stage 3 HGS OC. 1st recurrence 3 months ago with lesions in spleen and peritoneum. Consultant advises watch and...

Had chemo and debulking surgery 2 years ago. Stage 3 HGS OC. 1st recurrence 3 ...

hilaryjane

•8 months ago

5 Replies

Zejula

I was just wondering if anyone has been on Zejula for longer than 3 years?

Betti99

•8 months ago

2 Replies

Hair re growth!!

Apologies for asking a trivial question amongst all the more serious issues!! 2 yrs post chemo my hair is not recovering. Had growth but super thin. Don't have...

Apologies for asking a trivial question amongst all the more serious issues!! 2 ...

suzannebirch

•8 months ago

4 Replies

Help please!! Rucaparib to Letrozole.

Hi everyone. Hope all you warriors are doing well. I wondered if any of you have any words of wisdom for us? My mum was diagnosed in May 2019, had chemo...

Hi everyone. Hope all you warriors are doing well. I wondered if any of you ha...

Jayk26

•8 months ago

11 Replies

Finishing Olaparib

I'm 2 yrs NED and have been taking Olaparib for that time. Oncologist now finishing me as he says that it will have longer term effects on bone marrow. BRCA...

I'm 2 yrs NED and have been taking Olaparib for that time. Oncologist now finish...

suzannebirch

•8 months ago

6 Replies

A Big Thankyou

Just a message to thank everyone who has written in reply to my last post. It was really great to get all of your hugs and supportive messages. They have...

Just a message to thank everyone who has written in reply to my last post. It w...

BadgerBright

•8 months ago

1 Reply

nirapnrib

What side effects have you got when in nirapnrib

Curry55

•8 months ago

3 Replies

Drain update

Hi all,Finally had to BEG for drain to be inserted after 2 days of doing nothing! There was no excuse apart from very poor communication between departments....

Hi all,Finally had to BEG for drain to be inserted after 2 days of doing nothing...

Nov5

•8 months ago

1 Reply

DDS query

hi all, I asked a few days ago if anyone knew what DDS was. No one seemed to know, not even McMillan. I finally got an answer from oncologist secretary...

hi all, I asked a few days ago if anyone knew what DDS was. No one seemed to kn...

Beaver54

•8 months ago

12 Replies

mum update

hey all, I posted last week about mum requiring a biopsy re. 8cm lump to right ovary with surrounding. They discussed her again at mdt last week and the...

hey all, I posted last week about mum requiring a biopsy re. 8cm lump to right ...

Kerri1402

•8 months ago

2 Replies

gemcitabine

looks like the cancer is back! Im having a fluid drain in 15 sept and my cancer nurse is trying to bring my sppointment with oncologist firward.....

looks like the cancer is back! Im having a fluid drain in 15 sept and my canc...

SKpaints1

•8 months ago

10 Replies

Clear cell reoccurrence 6-don't think I'll ever be out of the woods :(

Hi Everyone, I had a laparotomy just over 3 weeks ago. A large tumour growing between my stomach and bowel was removed. I've recovered really well since, no...

Hi Everyone, I had a laparotomy just over 3 weeks ago. A large tumour growing...

Hidden

•8 months ago

5 Replies

Sorry I have not posted for a while

I am really sorry no one has heard from me for a while. Sadly I have not been too well being struck down with a nasty coughing /flu like virus( not Covid). So...

I am really sorry no one has heard from me for a while. Sadly I have not been to...

BadgerBright

•8 months ago

13 Replies

What's on at Ovacome next week? (week commencing 11 September 2023)

Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone This is our weekly post to let you know about the differe...

OvacomeSupport

Partner•8 months ago

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UPDATE on Abdominal distension.

Some may remember my post a few days ago. I was experiencing some abdominal distension, which I suspected maybe ascites. However, my GP assured me there was...

Some may remember my post a few days ago. I was experiencing some abdominal dis...

Nov5

•8 months ago

7 Replies

cystitisy like feelings

Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I...

Hello , I wondered whether anyone has experienced feelings in the bladder and o...

Norelo8

•8 months ago

6 Replies

CA125 plus MRI = trouble (despite contrary advice)

Hi All, this is from the Uk - good old NHS! My positivity is slipping! No, I WILL keep a PMA😌 I’m off on holiday soon 😁 but…. The story so far is too long...

Hi All, this is from the Uk - good old NHS! My positivity is slipping! No, I W...

Irisisme

•8 months ago

20 Replies

Hello, do you find the cost of olaparib very high?

I have been prescribed olaparib and my insurance covers it, but my cost is extremely high. I am trying for assistance.

I have been prescribed olaparib and my insurance covers it, but my cost is extre...

Jacquiemoo

•8 months ago

2 Replies

Elahere and increased CA 125?

just started immunotherapy with Elahere. Does anyone know whether increases in CA 125 occur in early treatment. Mine increased by 30% following first...

just started immunotherapy with Elahere. Does anyone know whether increases in ...

1dog4cats

•8 months ago

12 Replies

Olaparib side effects

Hi there, this is my first post, though I've been following lots of the advice already given. I'm about to start Olaparib . I expect side effects, but when...

Hi there, this is my first post, though I've been following lots of the advice a...

PippaRory

•8 months ago

10 Replies

Advice please

Hi there, my mum was diagnosed with HGSOC stage 4 in October 21. She had debulking surgery followed by 6 rounds of carbo/taxol. She recovered well and...

Hi there, my mum was diagnosed with HGSOC stage 4 in October 21. She had debulki...

Pitchperfec

•8 months ago

14 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2023

Rucaparib

Tips of surgery and recovery

All clear now for two years

Olaparib side effects - cough and breathlessness

1 year since my operation so celebrated on holiday's 🙌🌄 🇬🇷

Germline BRCA awaited.

Giant ovarian cyst- very worried

Scared I may have ovarian cancer

positive vibes needed :(

Recurrence in spleen

Zejula

Hair re growth!!

Help please!! Rucaparib to Letrozole.

Finishing Olaparib

A Big Thankyou

nirapnrib

Drain update

DDS query

mum update

gemcitabine

Clear cell reoccurrence 6-don't think I'll ever be out of the woods :(

Sorry I have not posted for a while

What's on at Ovacome next week? (week commencing 11 September 2023)

UPDATE on Abdominal distension.

cystitisy like feelings

CA125 plus MRI = trouble (despite contrary advice)

Hello, do you find the cost of olaparib very high?

Elahere and increased CA 125?

Olaparib side effects

Advice please

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