Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for August 2023

Anyone from bolton

Ovarian Cancer stage 3 and a low grade diagnosed 2021 had carbo pacactaxal Then on maintenance tablets didn't work for me Recurrence 6 rounds caelix Had...

Ovarian Cancer stage 3 and a low grade diagnosed 2021 had carbo pacactaxal The...

123george

•9 months ago

14 Replies

1st reccurence and a 1 year prognosis

my mum is currently tolerating her second line of chemo after a ‘significant’ reccurence just under a year after frontline. Her oncologist has supported her...

my mum is currently tolerating her second line of chemo after a ‘significant’ re...

Worrieddaughter95

•9 months ago

7 Replies

on going chemo

Hi , I have another question please, I have just had my 4th chemo out of 6 and this is the worst I have felt . Fatigue ( extreme) feeling totally wiped out as...

Hi , I have another question please, I have just had my 4th chemo out of 6 and t...

Cazy1010

•9 months ago

13 Replies

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Support Group

Good Morning, I am a newbie. I live in Suffolk, near Ipswich and was wondering whether there were any others near me who would be interested if I were to...

Good Morning, I am a newbie. I live in Suffolk, near Ipswich and was wonder...

Greengecko67

•9 months ago

4 Replies

What's on next week with Ovacome

Hello All Here are details of what we have happening next week. You can sign up to attend any of these events on our website here:...

Hello All Here are details of what we have happening next week. You can sign u...

OvacomeSupport

Partner•9 months ago

1 Reply

Trial with Niraparib and Avastin

I am stage 4 HG SO. I have been living with this disease for over 17 years. I am now considering a drug trial using Niraparib and Avastin combo. I believe it...

I am stage 4 HG SO. I have been living with this disease for over 17 years. I am...

Tealgirl7

•9 months ago

37 Replies

fatigue

Just had my 4th round of chemo out of 6 !!!! Getting there after being delayed over my blood work but it’s this fatigue 😢 even after recovering before next...

Just had my 4th round of chemo out of 6 !!!! Getting there after being delayed o...

Cazy1010

•9 months ago

10 Replies

Hello

This is a bit of a long post.I was diagnosed with a dermoid ovarian cyst several years ago, the last time I saw a gynae specialist they told me it had...

This is a bit of a long post.I was diagnosed with a dermoid ovarian cyst several...

Pat666

•9 months ago

4 Replies

You're invited: Midlands Teal Walk 2023

Good afternoon, Just to let everyone know that you are all invited to our Midlands Teal Walk and Picnic at Coombe Abbey Park, Coventry on Sunday 17th...

Good afternoon, Just to let everyone know that you are all invited to our Midl...

TheOvacomeTeam

Partner•9 months ago

1 Reply

What's happening at Ovacome next week?

Good morning all, Going forward, we will now be posting a weekly update every Wednesday to let you know about any groups, workshops, webinars or events that...

Good morning all, Going forward, we will now be posting a weekly update every W...

OvacomeSupport

Partner•9 months ago

1 Reply

Raised CA-125 and clear ultrasound

Hi all, I am new here. I have been reading through stories similar to mine and I wanted to share mine in the hope I can get your opinions. I recently had...

Hi all, I am new here. I have been reading through stories similar to mine an...

CWoods44

•9 months ago

17 Replies

ovarian cancer symptom?

In February this year I became unwell with raised GGT, weight loss, fever terrible headaches, malaise and random abdominal pain. To rule out ovarian or liver...

In February this year I became unwell with raised GGT, weight loss, fever terrib...

Stills

•9 months ago

7 Replies

itchy 🤯

Hi everybody. I have an itchy scalp that is driving me mad. My skin itches too and I’m 100% certain it’s a side effect of the Rucaparib I am taking. Can anyone...

Hi everybody. I have an itchy scalp that is driving me mad. My skin itches too a...

JustKBO

•9 months ago

20 Replies

Gemzar Side Effects

Does anyone else experience any extreme back pain and/or pain under the breast bone with Gemzar?

Does anyone else experience any extreme back pain and/or pain under the breast b...

TealBlooms

•9 months ago

5 Replies

Clinical Trial with Abemaciclib and Olaparib

Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for...

Hey Queens! I am reaching out to see if anyone is participating in this clinica...

TealBlooms

•9 months ago

6 Replies

First Gynaecology Appointment

Hi everyone. I'm here seeking some advice about what to expect from my first gynaecology appointment. I went to my GP a few months ago after my periods decided...

Hi everyone. I'm here seeking some advice about what to expect from my first gyn...

TrueBlue10

•9 months ago

11 Replies

Question about ovarian cysts

Hi all. I was diagnosed with a borderline ovarian tumour earlier this year. Had to have surgery to remove the tumour and ovary, but elected to keep the second...

Hi all. I was diagnosed with a borderline ovarian tumour earlier this year. Had ...

Colyn

•9 months ago

9 Replies

New episode of Living with Ovarian Cancer Podcast

Hello everyone, Today a new episode of “Living with Ovarian Cancer Podcast” is now available. You can listen via the link below, or wherever you usually...

Hello everyone, Today a new episode of “Living with Ovarian Cancer Podcast” is...

Levanah

•9 months ago

2 Replies

Olaparib tum

Hi fellow Olaparib users . I’ve been on Olaparib for 3 .5 years now . Recently developing bouts of gut discomfort and diarrhoea. Have to say up until now on...

Hi fellow Olaparib users . I’ve been on Olaparib for 3 .5 years now . Recently ...

Rankij11

•9 months ago

8 Replies

Muscular pain and sciatica

Hello, I have high grade serous OC 3c and i'm on my second round of chemo. My symptoms started at the beginning of April and was diagnosed with cancer in...

Hello, I have high grade serous OC 3c and i'm on my second round of chemo. My sy...

Alentejo

•9 months ago

8 Replies

recurrence or not? (Liver & stomach wall)

Hi folks just home after a liver biopsy after a CT scan following raised CA125 of 21 (mine usually sits @ 6-7 & never went higher than 80s) raised CEA @ 57...

Hi folks just home after a liver biopsy after a CT scan following raised CA125 o...

Alibee2

•9 months ago

9 Replies

NICE review of first-line olaparib - your comments needed

Hello All NICE are undertaking a Cancer Drugs Fund guidance review for olaparib. The name of the NICE consultation is: Olaparib for maintenance treatment of...

Hello All NICE are undertaking a Cancer Drugs Fund guidance review for olapar...

OvacomeSupport

Partner•9 months ago

20 Replies

Invitation to low-grade serous OC survey

Good morning all, We have been contacted by STAAR Ovarian Cancer Foundation, based in the US, to ask for our support in publicising a survey for people...

Good morning all, We have been contacted by STAAR Ovarian Cancer Foundation, ba...

OvacomeSupport

Partner•9 months ago

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Niraparib not working

I am 17 years survivor stage 4. I have completed two rounds of carboplaten and paxi taxol. The first in 2006 and the latter in 2022. I have been on near...

I am 17 years survivor stage 4. I have completed two rounds of carboplaten and p...

Tealgirl7

•9 months ago

3 Replies

Lymphodema

Hi. I have stage 4 ovarian cancer and now have in both legs lymphodema. I am finding the lymphodema more testing than the cancer as it from my toes to my...

Hi. I have stage 4 ovarian cancer and now have in both legs lymphodema. I am fi...

Crafter62

•9 months ago

6 Replies

Regular exercise

Need some tips ladies.....I am one who was healthy and regular with my aerobic classes . But after this OC and all the treatments I rarely even walk around ....

Need some tips ladies.....I am one who was healthy and regular with my aerobic c...

Kjhere

•9 months ago

9 Replies

Bowel blockage experience

Dear Women of strength I’m writing this post in case others may find my experience useful in the future. I was diagnosed 3C HGSOC in Nov 2021,(fit aged 57)...

Dear Women of strength I’m writing this post in case others may find my experi...

Narna1

•9 months ago

18 Replies

All about Lynch Syndrome webinar - Monday 4 September

Good afternoon everyone This post is to let you know about an upcoming webinar with Ovacome titled 'All about Lynch Syndrome' on Monday 4 September between...

Good afternoon everyone This post is to let you know about an upcoming webinar ...

TheOvacomeTeam

Partner•9 months ago

3 Replies

Coping tips needed please

Hello Everyone, I constantly feel miserable and down trying to cope with everything I have going on. How do you all cope? Not sure if I’m depressed or not....

Hello Everyone, I constantly feel miserable and down trying to cope with every...

Hidden

•9 months ago

18 Replies

High diastolic blood p Niraparib

Hi, Blood pressure going up again on Niraparib, but it does just seem to be the bottom number, the diastolic. Has anybody got any success stories of sorting...

Hi, Blood pressure going up again on Niraparib, but it does just seem to be the...

Rosado22

•9 months ago

Be the first to reply

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2023

Anyone from bolton

1st reccurence and a 1 year prognosis

on going chemo

Support Group

What's on next week with Ovacome

Trial with Niraparib and Avastin

fatigue

Hello

You're invited: Midlands Teal Walk 2023

What's happening at Ovacome next week?

Raised CA-125 and clear ultrasound

ovarian cancer symptom?

itchy 🤯

Gemzar Side Effects

Clinical Trial with Abemaciclib and Olaparib

First Gynaecology Appointment

Question about ovarian cysts

New episode of Living with Ovarian Cancer Podcast

Olaparib tum

Muscular pain and sciatica

recurrence or not? (Liver & stomach wall)

NICE review of first-line olaparib - your comments needed

Invitation to low-grade serous OC survey

Niraparib not working

Lymphodema

Regular exercise

Bowel blockage experience

All about Lynch Syndrome webinar - Monday 4 September

Coping tips needed please

High diastolic blood p Niraparib

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