Posts - My Ovacome | HealthUnlocked

My Ovacome

17,728 members • 19,971 posts

All posts for July 2023

Chemotherapy-induced peripheral neuropathy - Opportunity to share experiences for upcoming Ovacome magazine

Good afternoon everyone We are planning on including an article all about chemotherapy-induced peripheral neuropathy in the upcoming edition of the Ovacome...

Good afternoon everyone We are planning on including an article all about chemo...

TheOvacomeTeam

Partner•9 months ago

18 Replies

Complex ovarian cyst surgery

I have had this complex 2 cm cyst on my left ovary for 14 years now. It was under observation with periodic ulatrasounds. Now as I’ve entered menopause last...

I have had this complex 2 cm cyst on my left ovary for 14 years now. It was unde...

Annie2609

•9 months ago

2 Replies

Always thinking the worst

Hi all, as a newbie only a few months since OC diagnosis and treatment I am struggling with my brain over thinking things. After several pain-free weeks I...

Hi all, as a newbie only a few months since OC diagnosis and treatment I am str...

Jholly4

•9 months ago

16 Replies

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suspected ovarian cancer at 26yo

hi, I have had ovarian cancer symptoms for around 2 weeks now, my ultrasound was normal and so was my ca125 but I feel something is wrong! I literally look...

hi, I have had ovarian cancer symptoms for around 2 weeks now, my ultrasound was...

CookieMonster97

•9 months ago

9 Replies

1st recurrence

I had my first recurrence after 4.5 years. It was a shock as I thought I was going to be ok. Two tumours appeared in the pelvic area. The surgeon did her best...

I had my first recurrence after 4.5 years. It was a shock as I thought I was goi...

Bluesparrow

•9 months ago

18 Replies

5 years NED

Hi I'm sorry for posting this when so many are struggling, but when I was diagnosed I was searching for good news to try and balance out the negative...

Hi I'm sorry for posting this when so many are struggling, but when I was diagno...

Twink333

•9 months ago

26 Replies

Surgery Tomorrow

I had my CT results, appointment with the surgeon and pre assessment yesterday. Surgery in scheduled for tomorrow. Feeling nervous now. Any tips or advice...

I had my CT results, appointment with the surgeon and pre assessment yesterday....

Motiva

•9 months ago

28 Replies

stage 4

hi, Im new to this forum although I have been reading your posts over recent days, which have been very encouraging, and given me some hope. I wasn’t...

hi, Im new to this forum although I have been reading your posts over recent d...

Beaver54

•9 months ago

31 Replies

Avastin and gemzar therapies

Have any of you repeated Avastin and gemzar therapies after a year from last recurrence with success?

Have any of you repeated Avastin and gemzar therapies after a year from last rec...

Rlenesue

•9 months ago

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Unjoining

Sorry for title - have brain fog. Cannot articulate. The other day we heard there were a couple of easy tests we could do to work out whether we had the...

Sorry for title - have brain fog. Cannot articulate. The other day we heard th...

candyapplegrey

•9 months ago

4 Replies

OC scans and breast screening

My CT scans will include chest from now on due to lymph node involvement of OC. Just wondering if that negates the need for breast screening mammogram. Would...

My CT scans will include chest from now on due to lymph node involvement of OC. ...

koffeekat99

•9 months ago

8 Replies

Abnormal liver function

Hi all, did any of you have abnormal liver function which was deemed just related to the stress of the surgery. I am 12 weeks post debulking surgery for...

Hi all, did any of you have abnormal liver function which was deemed just relate...

Jholly4

•9 months ago

1 Reply

Ovarian cancer statistics

I think I might be on the wrong page. I'm trying to find out survival statistics for various OC types and stages by hospital. Does anybody know who/what I...

I think I might be on the wrong page. I'm trying to find out survival statistics...

candyapplegrey

•9 months ago

7 Replies

Ovacome community meet-up in Newcastle - Wednesday 16 August 2023

Hi everyone This post is to let you know that Ovacome are hosting a free support and information day in Newcastle for anyone who has been affected by ovarian...

Hi everyone This post is to let you know that Ovacome are hosting a free suppor...

TheOvacomeTeam

Partner•9 months ago

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Progression and Niraparib

Morning everyone I was on Niraparib since last June 22 but this June it was stopped as my CT scan showed progression to my liver and possibly spleen. Also in...

Morning everyone I was on Niraparib since last June 22 but this June it was sto...

Skyeplus

•9 months ago

19 Replies

Thick septations

Hi all, recently diagnosed with a right ovarian cyst and awaiting CA-125 results. The cyst has thick walls and thick septations.....my gp is very concerned....

Hi all, recently diagnosed with a right ovarian cyst and awaiting CA-125 results...

melgav

•9 months ago

2 Replies

Feeling desperate as platelets won’t rise

please please has anyone experienced this: on Niraparib my platelet count dropped and I had a transfusion in hospital. That was last Monday and i have had...

please please has anyone experienced this: on Niraparib my platelet count droppe...

Bluetilly

•9 months ago

17 Replies

Pain in belly since first chemo on Tuesday - very scared

I am very scared. I have just gone through my first dose of chemo (carbo/paxil) on Tuesday for my recurrence to the peritoneum (I was in remission for 6...

I am very scared. I have just gone through my first dose of chemo (carbo/paxil) ...

Chanterelle

•9 months ago

13 Replies

antibiotics and Niraparib

hi ladies Can any of you help me. I have been on Niraparib for 5 weeks, and have now got an ear infection. My GP has given me penicillin. I called the...

hi ladies Can any of you help me. I have been on Niraparib for 5 weeks, and h...

Willowsmum51

•9 months ago

6 Replies

CA125 rising consistently, never coming down at all??

Hi all, I was diagnosed with stage 3a LOWGRADE OC last May. Had debulking followed by 6 rounds of chemo and am now on anastrozole. I have had clear CT in...

Hi all, I was diagnosed with stage 3a LOWGRADE OC last May. Had debulking fol...

Darkandstormy

•9 months ago

2 Replies

Recurrence with shockingly high CA-125

I am beyond despondent. I am in Canada and I feel so down right now. I need a lot of support because I need someone who can encourage me or who has examples of...

I am beyond despondent. I am in Canada and I feel so down right now. I need a lo...

Chanterelle

•9 months ago

11 Replies

platelets over 900

has anyone had experience with ridiculously high platelets? My mum had blood clots diagnosed last month when her platelets were 400. She’s now feeling great...

has anyone had experience with ridiculously high platelets? My mum had blood clo...

Worrieddaughter95

•9 months ago

3 Replies

best holiday insurance

I’m just wondering what companies offer the best travel insurance I tried a few online but won’t seem to offer a quote?… I was diagnosed with stage two...

I’m just wondering what companies offer the best travel insurance I tried a few ...

Des1953

•9 months ago

13 Replies

life wise - a poem

I had written this earlier this year a few days after doing a cancer awareness run and I was feeling super strong! Hope you like it.

I had written this earlier this year a few days after doing a cancer awareness r...

Goodgirl98

•9 months ago

14 Replies

how serious are low platelets?

I think I must have a low platelet count, which came on really suddenly. My arms and upper chest are suddenly covered with bruises,. I'm on Niraparib but I...

I think I must have a low platelet count, which came on really suddenly. My ar...

Bluetilly

•10 months ago

13 Replies

ovarian cyst and blood in the urine

have ovarian cyst 3.6 x2.9 x2.9 - Gp has requested ca125 , feel pressure down there plus full feeling , also have blood in the urine - had antibiotics -still...

have ovarian cyst 3.6 x2.9 x2.9 - Gp has requested ca125 , feel pressure down th...

Cathhunt

•10 months ago

5 Replies

Please, im scared!!

Hello! My mother's ca125 and CEA six months ago were extremely low. About less than 1 for both. I didn't even know that they could be THAT low. Now, six months...

Hello! My mother's ca125 and CEA six months ago were extremely low. About less t...

Belindajames

•10 months ago

10 Replies

Is there any pattern to re-occurrence?

hi everyone, I hope it’s not too silly a question, but wondering if there are common sites for a re-occurrence, and symptoms to look out for (besides CA125...

hi everyone, I hope it’s not too silly a question, but wondering if there are...

Catfeeder

•10 months ago

11 Replies

first recurrence

Hi ladies I’ve seen my oncologist today for results on my latest CT scan. It’s showing 2 new growths in addition to several others which have been slowly...

Hi ladies I’ve seen my oncologist today for results on my latest CT scan. It’s...

Barmycharm

•10 months ago

23 Replies

Second Reaccurrence

I have been in the maintenance drug rucaparib since March 2022. After some dose reductions I settled down to it quite well apart from from blood transfusions...

I have been in the maintenance drug rucaparib since March 2022. After some dose ...

BadgerBright

•10 months ago

12 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for July 2023

Chemotherapy-induced peripheral neuropathy - Opportunity to share experiences for upcoming Ovacome magazine

Complex ovarian cyst surgery

Always thinking the worst

suspected ovarian cancer at 26yo

1st recurrence

5 years NED

Surgery Tomorrow

stage 4

Avastin and gemzar therapies

Unjoining

OC scans and breast screening

Abnormal liver function

Ovarian cancer statistics

Ovacome community meet-up in Newcastle - Wednesday 16 August 2023

Progression and Niraparib

Thick septations

Feeling desperate as platelets won’t rise

Pain in belly since first chemo on Tuesday - very scared

antibiotics and Niraparib

CA125 rising consistently, never coming down at all??

Recurrence with shockingly high CA-125

platelets over 900

best holiday insurance

life wise - a poem

how serious are low platelets?

ovarian cyst and blood in the urine

Please, im scared!!

Is there any pattern to re-occurrence?

first recurrence

Second Reaccurrence

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