Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for April 2023

ca125 result variations

I have been taking ca125 test every 2 months since starting olaparib few months back. From an initial reading of 700 during diagnosis, it went down to 10 mid...

I have been taking ca125 test every 2 months since starting olaparib few months ...

Goodgirl98

•1 year ago

7 Replies

raised platelets post op

Hi, On 16/3 I had a radical hysterectomy, bilateral oophrectomy, appendectomy and omentum for what histology has now confirmed is stage1a adult type granulosa...

Hi, On 16/3 I had a radical hysterectomy, bilateral oophrectomy, appendectomy a...

cavebaby

•1 year ago

4 Replies

Tamoxifen

I’ve just received scan results at end of treatment for 1st recurrence and everything is stable. I’ve been prescribed Tamoxifen, has anyone any experience...

I’ve just received scan results at end of treatment for 1st recurrence and every...

Purplerose12

•1 year ago

6 Replies

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melt down

It’s not been a good week , it’s 5 months since I lost my husband and this week I need him so much. I’m just think when I start chemo ( I know it’s not a walk...

It’s not been a good week , it’s 5 months since I lost my husband and this week ...

Cazy1010

•1 year ago

18 Replies

ct scan

so was meant to have mri scan four weeks ago but couldn’t first one was too small and my belly couldn’t fit second try I freaked out as I have severe...

so was meant to have mri scan four weeks ago but couldn’t first one was too smal...

Mickie1409

•1 year ago

8 Replies

Lump in neck.

Forgot to mention I am taking Niraparib.

1821

•1 year ago

2 Replies

Overian cancer, recurrence.

Hi, I was diagnosed with oc end of 2021, had chemo, debulking op., resulting in NED, however, I have found small lump in my neck, about 2 weeks ago, mentioned...

Hi, I was diagnosed with oc end of 2021, had chemo, debulking op., resulting in ...

1821

•1 year ago

9 Replies

New episode of “Living with Ovarian Cancer Podcast” is out!

At last, I’m back with my Podcast and this one is a brilliant episode to get started with again. I know many of you have asked about when I’d be recording...

At last, I’m back with my Podcast and this one is a brilliant episode to get sta...

Levanah

•1 year ago

10 Replies

Question about wigs

Where do I start to ask about wigs , it was mentioned when I received my results but as usual I didn’t take it in as was trying to console my daughter who was...

Where do I start to ask about wigs , it was mentioned when I received my results...

Cazy1010

•1 year ago

15 Replies

Drains

I am about to face yet another drain, my fifth. The last two weren’t straightforward and were painful. Does anyone have any experience or knowledge of drains...

I am about to face yet another drain, my fifth. The last two weren’t straightfo...

Tallulah55

•1 year ago

4 Replies

Hugs and love for one of our own who is going through tremendous challenges

I have made friends and a connection with one of our Teal ladies over the last few months. She is always positive caring and gracious with her support...

I have made friends and a connection with one of our Teal ladies over the last f...

Summergold2

•1 year ago

53 Replies

Liver cancer

For over a year my ovarian cancer cells have been sitting around on top of my liver. I recently found out that they have now gone inside my liver. I am...

For over a year my ovarian cancer cells have been sitting around on top of my li...

Kaitlinsmum

•1 year ago

10 Replies

pleurodesis and air travel

Has anyone having a pleurodesis used air travel? What was your experience? I had a Pleurodesis 4 years ago and because of pain when going to higher...

Has anyone having a pleurodesis used air travel? What was your experience? I h...

Blebs

•1 year ago

4 Replies

Olaparib side effects

Hi, I have been on olaparib now for just over 2 months, the side effects were worse than chemo so they have reduced my dose slightly. My body is in constant...

Hi, I have been on olaparib now for just over 2 months, the side effects were wo...

Sallyj42

•1 year ago

11 Replies

First symptoms

hello, Firstly I have a chronic autoimmune disorder diagnosed aged 17 of rheumatoid specialty. I’m now 61 med free for this condition but have become unwell...

hello, Firstly I have a chronic autoimmune disorder diagnosed aged 17 of rheuma...

Hidden

•1 year ago

6 Replies

What's on at Ovacome next week (week commencing 17 April 2023)?

Good afternoon everyone This is a post to let you all know about what's happening in Ovacome's Staying Connected programme next week - and to remind you all...

Good afternoon everyone This is a post to let you all know about what's happeni...

OvacomeSupport

Partner•1 year ago

Be the first to reply

The Movement for Good Awards are back, and we need your help please 🙋 💸💙

Hi everyone This post is to let you all know that the Movement for Good Awards are back, and we need your help please 🙋 💸 This annual platform for...

Hi everyone This post is to let you all know that the Movement for Good Award...

TheOvacomeTeam

Partner•1 year ago

5 Replies

small bowel blockage

I’ve just come out of hospital. I was admitted as an emergency for bowel obstruction. It was so painful. Investigation showed scar tissue adhesions from my...

I’ve just come out of hospital. I was admitted as an emergency for bowel obstruc...

JustKBO

•1 year ago

33 Replies

5 weeks post op

5 weeks now since having all my lady bits removed , everything healing nicely, just waiting now for appointment now to see when chemo will start . Just wanting...

5 weeks now since having all my lady bits removed , everything healing nicely, j...

Cazy1010

•1 year ago

7 Replies

How to Starve Cancer

Good morning lovely ladies! I’m stage 3c oc, surgery last March and finished chemo in October. As I had such a terrible time with white cell count, I’ve opted...

Good morning lovely ladies! I’m stage 3c oc, surgery last March and finished che...

Lilyada

•1 year ago

20 Replies

Update

Hey, so a little update for anyone that remembers me .. iv had a meeting with my consultant, he said its defiantly not a cyst , and that the mass has high...

Hey, so a little update for anyone that remembers me .. iv had a meeting with my...

Sophali31

•1 year ago

29 Replies

Ovacome Information Booklets 📖 📚 📗

Good afternoon everyone This post is to let you all know that Ovacome has over 30 clinical information booklets covering a wide range of topics including...

Good afternoon everyone This post is to let you all know that Ovacome has ove...

TheOvacomeTeam

Partner•1 year ago

Be the first to reply

Struggling with Chemo cisplatin & epitoposide

I have reoccurrence stage4 high serous grade ovarian. It came back quite quickly. I am halfway through my 8 week chemo cycle which has been so harsh this time...

I have reoccurrence stage4 high serous grade ovarian. It came back quite quickl...

Maya2016

•1 year ago

8 Replies

cold caps

do they work ?? X

Cazy1010

•1 year ago

19 Replies

Niraparib side effects

Hi, lovely ladies. Sending love to all. I've been on 200mg of niraparib since last May without any problems apart from sensitivity to the sun last summer. I've...

Hi, lovely ladies. Sending love to all. I've been on 200mg of niraparib since la...

Jayniiee

•1 year ago

13 Replies

Covid antiviral medication

hello everyone - well after 3 years of never catching covid I’ve bloody got it this week! I went to the theatre last week and masked up and I don’t know for...

hello everyone - well after 3 years of never catching covid I’ve bloody got it t...

OrdinarySoul

•1 year ago

24 Replies

proactive

any tips on how to cover my head if I do lose my hair with chemo , I’m not a hat person , so what are your opinions on scarfs , wigs etc or just show it all x...

any tips on how to cover my head if I do lose my hair with chemo , I’m not a hat...

Cazy1010

•1 year ago

25 Replies

1 year since the day of gp ringing and leaving the horrible answer phone message!

Well it's been a year of this rollercoaster 🎢 today! I've been through so many emotions and I've cried so many tears but for the newbies I want to leave a...

Well it's been a year of this rollercoaster 🎢 today! I've been through so many ...

Newbery3

•1 year ago

17 Replies

Update

Hello folks. I appear to be back as Lyndy not Lyndy 2 … not sure how this happened except that my Facebook stopped loading and I had to clear everything and...

Hello folks. I appear to be back as Lyndy not Lyndy 2 … not sure how this happe...

Lyndy

•1 year ago

14 Replies

Chemo Side Effects

I was diagnosed with primary peritoneal carcinoma in January 2018. I had four chemos consisting of carboplatin and taxol. Then, I had debulking surgery...

I was diagnosed with primary peritoneal carcinoma in January 2018. I had four ch...

purfekt10

•1 year ago

1 Reply

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for April 2023

ca125 result variations

raised platelets post op

Tamoxifen

melt down

ct scan

Lump in neck.

Overian cancer, recurrence.

New episode of “Living with Ovarian Cancer Podcast” is out!

Question about wigs

Drains

Hugs and love for one of our own who is going through tremendous challenges

Liver cancer

pleurodesis and air travel

Olaparib side effects

First symptoms

What's on at Ovacome next week (week commencing 17 April 2023)?

The Movement for Good Awards are back, and we need your help please 🙋 💸💙

small bowel blockage

5 weeks post op

How to Starve Cancer

Update

Ovacome Information Booklets 📖 📚 📗

Struggling with Chemo cisplatin & epitoposide

cold caps

Niraparib side effects

Covid antiviral medication

proactive

1 year since the day of gp ringing and leaving the horrible answer phone message!

Update

Chemo Side Effects

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