Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for March 2023

How do I stop constantly worrying about recurrence?

My mum had her debulking surgery last Wednesday and was discharged from hospital on Sunday afternoon. The doctors told us that they got all of the cancer,...

My mum had her debulking surgery last Wednesday and was discharged from hospital...

Shorty18

•1 year ago

7 Replies

Gemzar and vision

has anyone who has been on Gemzar noticed their eyesight has worsened?

Leniko

•1 year ago

4 Replies

thank you

thank you to all the kind people on here who have took the time to message me after I put my moans and groans on here !!!! It really does help xx

thank you to all the kind people on here who have took the time to message me af...

Cazy1010

•1 year ago

6 Replies

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results??

I know I keep asking silly questions but when you found out your results after your operation, was it by appointment or letter or phone ?? Xx

I know I keep asking silly questions but when you found out your results after y...

Cazy1010

•1 year ago

13 Replies

feeling a bit down

sorry for moaning but feel down today , 11 days since operation and feel as if everything has stopped!! I’ve done as I’m told only little walks in the house (...

sorry for moaning but feel down today , 11 days since operation and feel as if e...

Cazy1010

•1 year ago

22 Replies

Diet & Fasting/Chemo

Hi all, new here, and diagnosed with Ovarian cancer. I had a huge tumor removed last week; now waiting for the biopsy results. A second surgery is planned to...

Hi all, new here, and diagnosed with Ovarian cancer. I had a huge tumor removed ...

Hailun

•1 year ago

13 Replies

rubraca

anyone using the parp inhibitor rubraca find their mood very low, and suffer fatigue especially in the mornings… im really struggling to motivate myself to do...

anyone using the parp inhibitor rubraca find their mood very low, and suffer fat...

SKpaints1

•1 year ago

9 Replies

Hair loss

Hi ladies, can anyone advise on hair loss. Had my first chemo 2 weeks ago and yesterday and today my hair started falling out. The roots of my hair are so...

Hi ladies, can anyone advise on hair loss. Had my first chemo 2 weeks ago and ye...

Hidden

•1 year ago

50 Replies

Diagnosis at 80

Hi All, I'm on here to read positive stories and learn more about OC as my Nan has just been diagnosed . When I say diagnosed, we are still waiting for the...

Hi All, I'm on here to read positive stories and learn more about OC as my Nan ...

Emmasmi

•1 year ago

7 Replies

Chemotherapy with Etoposide and Cisplatin

Has anyone on here had Chemo with these 2 drugs? Just wondering how you’re getting on in feeling normal? I’m 5 years post chemo and my entire body hurts from...

Has anyone on here had Chemo with these 2 drugs? Just wondering how you’re getti...

rareoldme

•1 year ago

11 Replies

2nd line treatment

Hello there, I was diagnosed with stage 4 High grade serous primary peritoneal cancer in January 2022 with spread to supraclavicular lymph node. I’m hoping...

Hello there, I was diagnosed with stage 4 High grade serous primary peritoneal c...

Alfiepop

•1 year ago

6 Replies

Lump on back after chest drain

When i developed a pleural effusion last June the hospital did a couple of drains before fitting me with a semi-permanent drain. A few weeks ago I developed...

When i developed a pleural effusion last June the hospital did a couple of drain...

doodoolatrice

•1 year ago

18 Replies

pre cancer now kidney mass

Hi I’ve posted here before I had precancerous cells on my ovary and Fallopian tube which was removed along with the ovary and Fallopian tube in 2021. I...

Hi I’ve posted here before I had precancerous cells on my ovary and Fallopia...

PB22

•1 year ago

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I want to live

I was operated on for ovarian cancer in October 2017. It was a high grade 3c serous. I have undergone many lines of chemotherapy, maintenance and oral...

I was operated on for ovarian cancer in October 2017. It was a high grade 3c ser...

Crimax72

•1 year ago

10 Replies

Injections after Caelyx

Hi All. Well I’ve just had my first infusion of Caelyx. I’ve been told I done need to inject Filgrastim. I asked the chemo nurse to check and she said no...

Hi All. Well I’ve just had my first infusion of Caelyx. I’ve been told I done ne...

Guilane

•1 year ago

11 Replies

ATARI trial update

hello all . Just an update after my monthly appointment for treatment on the Atari trial. Whilst it still continues for those of us on this trial the...

hello all . Just an update after my monthly appointment for treatment on the Ata...

Starbarn

•1 year ago

6 Replies

Prame trial

hi all , I’m just asking if anyone has been taking part in the Prame trial . I think it’s an Immunicore product ?? Would love to know how you got on as I may...

hi all , I’m just asking if anyone has been taking part in the Prame trial . I...

Lookingahead

•1 year ago

9 Replies

Ovacome Health and Wellbeing Day - Croydon 25 March 2023

Hello All This is to let you know about our upcoming Health and Wellbeing Day in Croydon, taking place later this month on Saturday 25 March from 11am to...

Hello All This is to let you know about our upcoming Health and Wellbeing Day ...

TheOvacomeTeam

Partner•1 year ago

Be the first to reply

Your recipes wanted!

Hello All Those of you who receive our Ovacome magazine three times a year may have noticed a new feature - recipe corner. This was requested by our members...

Hello All Those of you who receive our Ovacome magazine three times a year may...

TheOvacomeTeam

Partner•1 year ago

3 Replies

Could there be another reason for this appointment?

I am 8 years into the menopause and visited the GP when I started bleeding 2 months ago. Within a fortnight I had had a raft of blood tests, two scans...

I am 8 years into the menopause and visited the GP when I started bleeding 2 mon...

Mrsbonzo

•1 year ago

9 Replies

nearly 1 week post op

I’m not a sit down type of girl but I am doing as I’m told , but question is how long to you feel blar for !!!! Just yuk and off !!!!

I’m not a sit down type of girl but I am doing as I’m told , but question is how...

Cazy1010

•1 year ago

11 Replies

Advice needed recurrence

Dear ladies, I just need to share as feel very anxious and no one understands like those who are on this journey. So for three years I was told I had IBS and...

Dear ladies, I just need to share as feel very anxious and no one understands li...

Skyeplus

•1 year ago

8 Replies

Ovacome Information Booklets 📖 📚 📗

Good morning everyone This post is to let you all know that Ovacome has over 30 clinical information booklets covering a wide range of topics including...

Good morning everyone This post is to let you all know that Ovacome has over ...

TheOvacomeTeam

Partner•1 year ago

2 Replies

Has anyone been on Niraparib twice?

I have just finished my third line of chemo and CT was very good. CA125 is 8. My consultant has said I can go back on Niraparib as maintenance if I want to. I...

I have just finished my third line of chemo and CT was very good. CA125 is 8. My...

Seedlings

•1 year ago

13 Replies

Brandy

Hi ladiesMy husband just showed me an article about the health benefits of brandy. It claimed that brandy had been used to treat ovarian cancer. I know this...

Hi ladiesMy husband just showed me an article about the health benefits of brand...

Kaitlinsmum

•1 year ago

17 Replies

well I’m home!!!!

had my operation on Wed8/3/23 sent home on sat evening as all went well , but are you sure I’ve not been hit by a bus !!!! So good to have my own bed and some...

had my operation on Wed8/3/23 sent home on sat evening as all went well , but ar...

Cazy1010

•1 year ago

11 Replies

Treatment for ovarian cancer

Hello! I was diagnosed with ovarian cancer stage 3 five months ago I have had four rounds of chemotherapy and just had a laparoscopy. The doctor says the...

Hello! I was diagnosed with ovarian cancer stage 3 five months ago I have had fo...

janers

•1 year ago

20 Replies

Constipation after chemo

Can anyone please advise how they dealt with the constipation. My first chemo last week and I can honestly say I have never experienced anything like it! I...

Can anyone please advise how they dealt with the constipation. My first chemo la...

Hidden

•1 year ago

56 Replies

update

saw surgeon again he said he forgot to tell me that he didn’t take my appendix!! Thanks is that a good or bad thing ?? Xx

saw surgeon again he said he forgot to tell me that he didn’t take my appendix!!...

Cazy1010

•1 year ago

5 Replies

Second opinion advice

Hi all, Can someone private message me about the best way of approaching Prof C F for a second opinion? Thanks, D

Hi all, Can someone private message me about the best way of approaching Prof C...

Donnie21

•1 year ago

4 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for March 2023

How do I stop constantly worrying about recurrence?

Gemzar and vision

thank you

results??

feeling a bit down

Diet & Fasting/Chemo

rubraca

Hair loss

Diagnosis at 80

Chemotherapy with Etoposide and Cisplatin

2nd line treatment

Lump on back after chest drain

pre cancer now kidney mass

I want to live

Injections after Caelyx

ATARI trial update

Prame trial

Ovacome Health and Wellbeing Day - Croydon 25 March 2023

Your recipes wanted!

Could there be another reason for this appointment?

nearly 1 week post op

Advice needed recurrence

Ovacome Information Booklets 📖 📚 📗

Has anyone been on Niraparib twice?

Brandy

well I’m home!!!!

Treatment for ovarian cancer

Constipation after chemo

update

Second opinion advice

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