Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for December 2022

Book Title and Author

Hello Ladies, there was a post a few weeks ago regarding a book one of the forum ladies had written and got published. I did check it out on amazon and...

Hello Ladies, there was a post a few weeks ago regarding a book one of the foru...

•1 year ago

Mum just diagnosed

my mum was diagnosed yesterday , only through a blood test , still awaiting a hospital appointment, but she has been poorly for a few months now, she has now...

my mum was diagnosed yesterday , only through a blood test , still awaiting a ho...

•1 year ago

Ovacome Information Booklets 📖 📚 📗

Good morning everyone This post is to let you all know that Ovacome has 30 clinical information booklets covering a wide range of topics including symptoms...

Good morning everyone This post is to let you all know that Ovacome has 30 cl...

Partner•1 year ago

Be the first to reply

Want to take advantage of all our features? Just log in!

or

Parps

I found out yesterday I am BRAC negative. I was diagnosed with Stage 2b High Grade Serous Carcinoma in July, finished chemo last month. My cancer nurse...

I found out yesterday I am BRAC negative. I was diagnosed with Stage 2b High Gra...

•1 year ago

Good news from me too

Hi there. Hope you’re all going ok? I had my first scan ( CT with contrast) since July 2020 on 2nd December 2022 ( Prof Christina Fotopoulou advised me to...

Hi there. Hope you’re all going ok? I had my first scan ( CT with contrast) sin...

Differentforgirls

•1 year ago

Sad news .. loss of my sister

Very sad to let you know that my beautiful sister Jayne Wilkinson passed away today. This group has been a great help and inspiration to Jayne and the whole...

Very sad to let you know that my beautiful sister Jayne Wilkinson passed away to...

•1 year ago

Vitamin intake

Hi everyone Has anyone been told that you should not take any vitamins during carbo/caelyx treatment as this may interfere with the treatment working. Thank...

Hi everyone Has anyone been told that you should not take any vitamins during c...

•1 year ago

so upset :(

I am so upset, just get moms ca 125 and it is 228 :(( one month ago it was 95 , now is 3 month without chemo after 2nd recurrance… i am so stressed… that mean...

I am so upset, just get moms ca 125 and it is 228 :(( one month ago it was 95 , ...

•1 year ago

Stopping olaparib/lynparza

Hoping others can share their experiences. My mom was given the option to stop taking olaparib after 2 years because she is NED. She is BRCA negative. She...

Hoping others can share their experiences. My mom was given the option to stop t...

•1 year ago

Post diagnosis monitoring

Hi everyone, how long on average are we monitored after diagnosis. I assumed I would have CA125 done and then a phone call for at least 5 years from diagnosis,...

Hi everyone, how long on average are we monitored after diagnosis. I assumed I w...

•1 year ago

Timing of scans?

How often are people having scans after chemo? I last had a scan in August 22 when I finished front line chemo. I have since started maintenance then stopped...

How often are people having scans after chemo? I last had a scan in August 22 wh...

•1 year ago

Has anyone heard lately from Cheryl???

Cheryl, I know you must be tired but wanted to say I am thinking of you and wishing you love, peace and comfort during this Christmas Season!🦋🦋🦋🦋 Debbie

Cheryl, I know you must be tired but wanted to say I am thinking of you and wis...

•1 year ago

Olivia - The ovarian cancer patient pathway, Olivia, is an interactive tool.

I wasn’t aware of this resource. It would be better to view it on a tablet, rather than a phone. Lots of us know everything here but it might be useful to...

I wasn’t aware of this resource. It would be better to view it on a tablet, rath...

•1 year ago

olaparib dosage adjustments

when I first started olaparib 4 months back, my Haemoglobin and platelets dropped significantly. I was asked to take 2 tabs (150mg each) twice a day. When...

when I first started olaparib 4 months back, my Haemoglobin and platelets droppe...

•1 year ago

what will be next?

good day, ladies! That me again… short story my mom ovarian cancer 2017, in 2021 may recurrance 7 cyrcles carbo palitaxel as in first time that 6 month off ca...

good day, ladies! That me again… short story my mom ovarian cancer 2017, in 2021...

•1 year ago

Christmas

Good morning to all you wonderful courageous ladies and your families I would like to wish you a very happy Christmas and may 2023 be a good year for you...

Good morning to all you wonderful courageous ladies and your families I would...

•1 year ago

Good news post!!! 🥳❤️‍🩹

Well had my over the phone oncology appointment yesterday as I've had this covid again 🙃 1st scan since surgery and finishing chemotherapy and after my...

Well had my over the phone oncology appointment yesterday as I've had this covid...

•1 year ago

good news I think…

thank you to everyone who sent reassurance. The Gynaecologist I saw today is convinced my Ca125 results are related to something that isn’t OC. She based...

thank you to everyone who sent reassurance. The Gynaecologist I saw today is c...

•1 year ago

Lastet

Hi everyone, a friend of mine, been battling with OC for 7 years with many recurrences, are now on Lastet with terrible side effects - swollen feet, very...

Hi everyone, a friend of mine, been battling with OC for 7 years with many recur...

•1 year ago

1st Recurrence: GemCarbo (gemcitabine and carboplatin)

Hi everyone I have my first recurrence (lucky for me localised lesion, detected early). Initial diagnoses: stage 4B peritoneal cancer Oct 2020. Way...

Hi everyone I have my first recurrence (lucky for me localised lesion, detected...

•1 year ago

Genetic results question

My gynae follow up after my over range Ca125 result has come through. It’s next Tuesday.. I’ve got DNA data from an Ancestry DNA download from a few years...

My gynae follow up after my over range Ca125 result has come through. It’s next ...

•1 year ago

Rheumatological conditions and PARP treatment

Hello All I'm messaging on behalf of a member who contacted us. She has polymyositis and has been recommended a PARP inhibitor after her chemotherapy...

Hello All I'm messaging on behalf of a member who contacted us. She has polymyo...

Partner•1 year ago

Cyclophosphamide & Niraparib

Hi ladies, It’s been a tough week for me. After 6 months of Taxol there is no improvement in my tumours. But they have remained stable. I was giving up all...

Hi ladies, It’s been a tough week for me. After 6 months of Taxol there is no ...

•1 year ago

1
2