Posts - My Ovacome | HealthUnlocked

My Ovacome

17,730 members • 19,972 posts

All posts for December 2022

bloodthinners

I’ve been on blood thinners for6 months after having a Pulmonary Embolism post surgery. I have completed my Chemo. 3 weeks ago and I have been told I can stop...

I’ve been on blood thinners for6 months after having a Pulmonary Embolism post s...

Hota

•1 year ago

10 Replies

allergic to Caeylx, what now?

Hi ladies I’m having my 1st recurrence. I’m stage 4. Had debulking surgery and x6 carbo supposed to be with taxol but I was allergic to the taxol. I then had...

Hi ladies I’m having my 1st recurrence. I’m stage 4. Had debulking surgery and...

Willowsmum51

•1 year ago

15 Replies

Postnasal drip Aliftus Trial

Has anyone developed postnasal drip whilst being on this trial. I thought it was taxol causing it but I stopped chemo at the end of October and I've still got...

Has anyone developed postnasal drip whilst being on this trial. I thought it wa...

doodoolatrice

•1 year ago

4 Replies

Want to take advantage of all our features? Just log in!

Radical surgery in older lady

My mum is a very fit lady of 83 with no other health conditions except this awful cancer - stage 4a. She is on chemo and they are talking to her about major...

My mum is a very fit lady of 83 with no other health conditions except this awfu...

Vinney52

•1 year ago

7 Replies

My heartbreaking news about Mum, Janet.

Morning all, I just wanted to share with you all in this community that my beautiful Mum, Janet, left us on Tuesday 13th December, at home with me, my brother...

Morning all, I just wanted to share with you all in this community that my beaut...

LouieB123

•1 year ago

46 Replies

Wound not fully healing -12 weeks post surgery

Hi everyone, I am after some advice/experience for my beautiful mom please. She had full debalking surgery 12 weeks ago today due to stage 3C high grade...

Hi everyone, I am after some advice/experience for my beautiful mom please. She...

Rainbowsafterrain

•1 year ago

12 Replies

Carbo and Gem, 4th Line Treatment

Hi everyone. I hope you all had a nice Christmas with your family’s. My mums history - diagnosed stage 3A in Jan 2019. Full debulking surgery and 6 rounds...

Hi everyone. I hope you all had a nice Christmas with your family’s. My mum...

N-A-58

•1 year ago

30 Replies

Hair care

Hi I had 6 rounds of chemotherapy within 3months I had a recurrence I'm now back on chemotherapy my hair is growing back curly what's a good shampoo to...

Hi I had 6 rounds of chemotherapy within 3months I had a recurrence I'm now ba...

123george

•1 year ago

4 Replies

To you all

Hope you lovely ladies have had a lovely day xx

Skyp

•1 year ago

1 Reply

merry Christmas and happy holidays!!

wishing all you brave ladies a beautiful holiday and happy new year! Very thankful to be spending my 5th Christmas together with my mom since her diagnoses....

wishing all you brave ladies a beautiful holiday and happy new year! Very thankf...

Lind58

•1 year ago

14 Replies

Wishing all the forum ladies and support workers a restful and peaceful Christmas and New Year.

Hi All, I had my 12th round of Avastin last week and have been struggling with generalised aching and joint discomfort. On reflection this has probably been...

Hi All, I had my 12th round of Avastin last week and have been struggling with g...

Nov5

•1 year ago

19 Replies

Best Wishes to All :)

Hello lovely ladies, This is my first post on here, I just wanted to wish you all the best during this festive period. This time last year, I wasn't enjoying...

Hello lovely ladies, This is my first post on here, I just wanted to wish you al...

Halo2O14

•1 year ago

12 Replies

Monthly blood tests

When you have monthly tests for chemo/parps etc, they check for red cells etc don t they. Ive been found to have B12 deficiency which changes the cells,...

When you have monthly tests for chemo/parps etc, they check for red cells etc do...

Rosebine2

•1 year ago

6 Replies

Atari trial one year on

hello all. I’m reporting back about my 1 year on ATARI trial. I had my results back from my scan and it’s still showing no visible disease. I was apprehensive...

hello all. I’m reporting back about my 1 year on ATARI trial. I had my results b...

Starbarn

•1 year ago

22 Replies

Advice please re: Niraparib (Zejula) side effects (i.e. bloating, nausea & vomitting & stomach pains?)

Hello ladies, I hope you are all keeping as well as possible in the run up to Christmas! I was wondering if anyone who's been treated for Ovarian /...

Hello ladies, I hope you are all keeping as well as possible in the run up to C...

Doughnut21

•1 year ago

5 Replies

Ovacome support service - Christmas 2022 to New Year 2023

Hello All This is to let you know that Ovacome support services will close at 1pm on Friday 23 December 2022 and will reopen at 10am on Tuesday 3 January...

Hello All This is to let you know that Ovacome support services will close at 1...

OvacomeSupport

Partner•1 year ago

1 Reply

Hello! New poster…

Hi all, Nice to meet you! My name is Georgia, and I can’t tell you how much reading this forum has helped me over the past year. It’s taken a while, but I’m...

Hi all, Nice to meet you! My name is Georgia, and I can’t tell you how much rea...

georgialocksss

•1 year ago

9 Replies

DOXIL side effects

oncologist wants to put me on doxil maybe maybe not w avastin anyone have anything to say about this ?

oncologist wants to put me on doxil maybe maybe not w avastin anyone have anyth...

quillette

•1 year ago

7 Replies

Global Patients looking for people to take part in survey.

I am on the data base for Global Patients as I have done a survey for them before. If you are interested in taking part see below. They will pay you £20 for...

I am on the data base for Global Patients as I have done a survey for them befor...

Purplepansies54

•1 year ago

2 Replies

Opportunity to help create new patient materials for prehabilitation

This study has now closed. The researchers asked us to pass on the following message: "Thank you for your interest in the prehabilitation project at St Barts....

This study has now closed. The researchers asked us to pass on the following mes...

OvacomeSupport

Partner•1 year ago

Be the first to reply

Looking for info

Can anyone tell me what the latest treatments for recurrence of ovarian cancer (after 6 years)

Can anyone tell me what the latest treatments for recurrence of ovarian cance...

RG47

•1 year ago

14 Replies

3rd recurrance?

About my mom,,, OC 2017 march, till 2021 may reimission, that recurrance in many areas… get same carbo palitaxel as in 2017, it works very good… after 4 months...

About my mom,,, OC 2017 march, till 2021 may reimission, that recurrance in many...

Inguc_is

•1 year ago

3 Replies

Mystery pain

Had a scan a few weeks ago which showed slightly enlarged adrenal gland but nothing else. Slight raise in CA125 but no further increase this month. I keep...

Had a scan a few weeks ago which showed slightly enlarged adrenal gland but no...

Rosebine2

•1 year ago

16 Replies

Survey to help us understand your experience of the different therapies/cancer drugs that are prescribed after chemotherapy has finished

Good morning all At Ovacome we want to ensure that your views are heard. This survey is to help us understand your experience of the different...

Good morning all At Ovacome we want to ensure that your views are heard. T...

OvacomeSupport

Partner•1 year ago

Be the first to reply

Grandsons got chickenpox and I'm supposed to Xmas day with them🤷‍♀️x

OK 1st time ever that everyone isn't coming to me for Christmas and I'm going to my daughter for lunch but my grandsons came down with chickenpox yesterday and...

OK 1st time ever that everyone isn't coming to me for Christmas and I'm going to...

Newbery3

•1 year ago

12 Replies

brip1 mutation

Dear ladies, I have recently been told that I have a gene mutation called brip1. I inherited this from my father. I am the fourth of my cousins to develop...

Dear ladies, I have recently been told that I have a gene mutation called brip1....

Skyeplus

•1 year ago

6 Replies

phase 1 clinical trials at Royal Marsden — anyone has experience?

hi all .. I’ve been offered either a phase 1 clinical trial or a phase 3 clinical trial at the Royal Marsden . The difference is that in phase 1 , a possible...

hi all .. I’ve been offered either a phase 1 clinical trial or a phase 3 clinica...

Lookingahead

•1 year ago

10 Replies

Niraparib ( Zejula) with an ileostomy

hi everyone , is anyone with an ileostomy taking Niraparib ( Zejula) ? I took Rucaparib but lost so much fluid through the stoma that there was very little...

hi everyone , is anyone with an ileostomy taking Niraparib ( Zejula) ? I took Ru...

Lookingahead

•1 year ago

7 Replies

M1774 plus Niraparib clinical trial

hi , has anyone been in the trial of M1774 either in its own or with Niraparib ? I have just been offered this at the Royal Marsden . Any feedback would be...

hi , has anyone been in the trial of M1774 either in its own or with Niraparib ?...

Lookingahead

•1 year ago

Be the first to reply

chronic achy/sore throat

Hi Ladies just a quick question I’ve been experiencing a Chronic achy/sore throat sinc my 5th cycle. Has anybody experienced this

Hi Ladies just a quick question I’ve been experiencing a Chronic achy/sore throa...

Hota

•1 year ago

2 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for December 2022

bloodthinners

allergic to Caeylx, what now?

Postnasal drip Aliftus Trial

Radical surgery in older lady

My heartbreaking news about Mum, Janet.

Wound not fully healing -12 weeks post surgery

Carbo and Gem, 4th Line Treatment

Hair care

To you all

merry Christmas and happy holidays!!

Wishing all the forum ladies and support workers a restful and peaceful Christmas and New Year.

Best Wishes to All :)

Monthly blood tests

Atari trial one year on

Advice please re: Niraparib (Zejula) side effects (i.e. bloating, nausea & vomitting & stomach pains?)

Ovacome support service - Christmas 2022 to New Year 2023

Hello! New poster…

DOXIL side effects

Global Patients looking for people to take part in survey.

Opportunity to help create new patient materials for prehabilitation

Looking for info

3rd recurrance?

Mystery pain

Survey to help us understand your experience of the different therapies/cancer drugs that are prescribed after chemotherapy has finished

Grandsons got chickenpox and I'm supposed to Xmas day with them🤷‍♀️x

brip1 mutation

phase 1 clinical trials at Royal Marsden — anyone has experience?

Niraparib ( Zejula) with an ileostomy

M1774 plus Niraparib clinical trial

chronic achy/sore throat

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive