Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for October 2022

4th surgery

Hernia and post Ovarian surgery. Hi everyone, I had Ovarian cancer surgery Aug 2019 which included the bowel being scraped, the tumour had attached itself...

Hernia and post Ovarian surgery. Hi everyone, I had Ovarian cancer surgery A...

StyleK

•2 years ago

10 Replies

Update.

Morning ladies, it's been a while since I posted, last time I was in a really bad place , I'm stronger mentally but not great physically. I'm not long home...

Morning ladies, it's been a while since I posted, last time I was in a really b...

fendweller

•2 years ago

56 Replies

Bucket list latest tick. So lucky.

🥰 so lucky to be still here working my way through my bucket list! I count my blessings every day and know that being 3a I’m very lucky to be feeling good 5...

🥰 so lucky to be still here working my way through my bucket list! I count my b...

Emsymits

•2 years ago

12 Replies

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NICE review olaparib and bevacizumab - your comments needed

Good morning everyone, NICE are undertaking a Cancer Drugs Fund guidance review of Olaparib in combination with bevacizumab (Avastin) for maintenance...

Good morning everyone, NICE are undertaking a Cancer Drugs Fund guidance review...

OvacomeSupport

Partner•2 years ago

17 Replies

Poem found on line

My Mother, by Beth Bayliss my mother is not on a warpath and armies could withstand her gaze she lives and she loves cause she has to but don’t you dare...

My Mother, by Beth Bayliss my mother is not on a warpath and armies could wit...

Rosebine2

•2 years ago

10 Replies

ovarian cancer chemo starting in two weeks

im 54 my names deb Have been diagnosed with High grade ovarian cancer apparently i had it for a while but only noticed my mass after A long cough thought i...

im 54 my names deb Have been diagnosed with High grade ovarian cancer apparen...

Capricornd

•2 years ago

30 Replies

Anyone else on Pregabalin

Anyone else been prescribed pregabalin for chemo induced nerve pain. I was prescribed it last week 75mg per day and it's completely floored me. I feel like...

Anyone else been prescribed pregabalin for chemo induced nerve pain. I was pre...

doodoolatrice

•2 years ago

17 Replies

Oral Cytoxan in conjunction w Avastin infusion

I just wanted to report in. My CA 125 has been kept nicely low via Avastin infusions every six weeks. Over the last few months I noticed a trend of it slowly...

I just wanted to report in. My CA 125 has been kept nicely low via Avastin infu...

Leniko

•2 years ago

5 Replies

worried about possible recurrence

I f finished my Platinum and Taxol chemo, de bulking surgery NED June 2022 after being diagnosed in Nov 2021 3C high grade, aggressive ovarian/ peritoneal...

I f finished my Platinum and Taxol chemo, de bulking surgery NED June 2022 after...

Narna1

•2 years ago

12 Replies

my gorgeous mum.

Hi all, my wonderful mum passed away on Thursday morning, only 2 days after being told her bowel was failing. She wasn't in any pain as she had been admitted...

Hi all, my wonderful mum passed away on Thursday morning, only 2 days after be...

MissEd

•2 years ago

40 Replies

Upset about CT scan

Been for a 6 month CT scan and the hospital couldnt do it because my kidney function is not good.Had a really stressful journey to appointment because of...

Been for a 6 month CT scan and the hospital couldnt do it because my kidney func...

Rosebine2

•2 years ago

16 Replies

Reoccurance

Hi There, So Mom's PET-CT is done. Looks like the beast is back but fortunately staying in peritoneal cavity. Rest of the body looks disease free. Onco like to...

Hi There, So Mom's PET-CT is done. Looks like the beast is back but fortunately ...

msuspartan

•2 years ago

3 Replies

when we’re you prescribed a parp?

my mom has tested positive for HRD gene. We know that she may be eligible for a parp - during your journey when were you prescribed a parp?

my mom has tested positive for HRD gene. We know that she may be eligible for a ...

Lind58

•2 years ago

8 Replies

trials in the United States

hi ladies, curious to know if anyone is on any trials - if so which one? Please give me a little background! And how did you find out about that specific...

hi ladies, curious to know if anyone is on any trials - if so which one? Pleas...

Lind58

•2 years ago

7 Replies

Stable disease

Hi everyone, this is my first time posting, my lovely mum was diagnosed with stage 4a hgsoc in Feb this year, she had a failed surgery as the cancer was too...

Hi everyone, this is my first time posting, my lovely mum was diagnosed with sta...

40279854

•2 years ago

5 Replies

watch and wait - how long?

my mom met with her oncologist today to review her scan. She’s 10 months out since her last treatment for her first reoccurrence. There is a node that grew by...

my mom met with her oncologist today to review her scan. She’s 10 months out sin...

Lind58

•2 years ago

2 Replies

Am I in the wrong

Yesterday I had a weekly dose of chemo. but unfortunately the 2nd dose was cancelled due to blood count the 1st dose I asked about my cfcs injection s to bulid...

Yesterday I had a weekly dose of chemo. but unfortunately the 2nd dose was cance...

Bobbyo1

•2 years ago

6 Replies

Stage 3b 15 years !

We’ll ladies, 15 years today since I had my diagnosis confirmed and still going strong despite an initial poor prognosis, 2 recurrences and a grade 3...

We’ll ladies, 15 years today since I had my diagnosis confirmed and still going ...

Katmal-UK

•2 years ago

77 Replies

Stage 3c 10 year cancerversary

Hello Brave Ladies, I just wanted to pass on that my wife and I celebrated her 10th year of remission last May. She's been through all the chemo regimens you...

Hello Brave Ladies, I just wanted to pass on that my wife and I celebrated her ...

SchnauzerLVR

•2 years ago

46 Replies

cruise travel insurance recommendation, please

I am stage IV oc. I have found a cheap 15 day November cruise but the only insurer I have got a quote from so far wants £2000. Any recommendations for cruise...

I am stage IV oc. I have found a cheap 15 day November cruise but the only insur...

Trickysite

•2 years ago

23 Replies

Can my mum have chemo if so unwell..?

Morning all. Feeling a little lost this morning and just so helpless for my Mum. She finally got the bowel stent due to a blockage and then vomiting finally...

Morning all. Feeling a little lost this morning and just so helpless for my Mum....

LouieB123

•2 years ago

2 Replies

Magnesium infusions

At present I have finished chemo but my magnesium is still low varies between 4.1 and 4.7 unable to take tablets or sachets and until recently fine on...

At present I have finished chemo but my magnesium is still low varies between 4....

Tezzaa66

•2 years ago

9 Replies

Should I reduce dose of Olaparib?

Hi Everyone I started maintenance treatment for HGS in August having had Taxol/Carboplatin 6 rounds with interval debulking surgery January to July. Because...

Hi Everyone I started maintenance treatment for HGS in August having had Taxol/...

meadowgirl

•2 years ago

21 Replies

Hysterectomy on complex ovarian cyst

Hi ladies, im just wondering if anyone is going through anything similar to me.... I had a total hysterectomy 4 days ago to remove a 13cm complex cyst. My...

Hi ladies, im just wondering if anyone is going through anything similar to me....

Weeworrier

•2 years ago

8 Replies

Treatment terminology question

Hello lovely ladies. What does it mean by 'third-line' treatment? Does it mean three lots of different treatment? Say chemo for several weeks being the first?...

Hello lovely ladies. What does it mean by 'third-line' treatment? Does it mean t...

Jayniiee

•2 years ago

10 Replies

I’m so confused- precancerous changes

I've been going through investigations regarding ovarian cancer after a recent Ultrasound showed few abnormalities. The scan showed that my right ovary is...

I've been going through investigations regarding ovarian cancer after a recent U...

Nattahlee

•2 years ago

3 Replies

Need a bit of advice on treatments going forward.. avastin vs niraparib?

Hi all 🥰 seen my oncologist today and she's happy that im Ned after my operation last month but has told me i need to decide now whether to go ahead with...

Hi all 🥰 seen my oncologist today and she's happy that im Ned after my operatio...

Newbery3

•2 years ago

27 Replies

A winner in the Ovacome raffle!

Just to say that I really love the Rubyyaya dress I won in the raffle and may wear it to some friends' anniversary party next weekend. Beautiful. Nice to...

Just to say that I really love the Rubyyaya dress I won in the raffle and may w...

candyapplegrey

•2 years ago

4 Replies

Thanks everyone.

A big thank you to everyone that answered my CA125 query. I'm pleased everyone has been getting their results quickly. I'll let you know when or if I get mine....

A big thank you to everyone that answered my CA125 query. I'm pleased everyone h...

ZenaJ

•2 years ago

3 Replies

Niraparib

Hi im on 200mg does anyone get a side effect of ringing ears its driving me mad

Hi im on 200mg does anyone get a side effect of ringing ears its driving me ...

123george

•2 years ago

4 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2022

4th surgery

Update.

Bucket list latest tick. So lucky.

NICE review olaparib and bevacizumab - your comments needed

Poem found on line

ovarian cancer chemo starting in two weeks

Anyone else on Pregabalin

Oral Cytoxan in conjunction w Avastin infusion

worried about possible recurrence

my gorgeous mum.

Upset about CT scan

Reoccurance

when we’re you prescribed a parp?

trials in the United States

Stable disease

watch and wait - how long?

Am I in the wrong

Stage 3b 15 years !

Stage 3c 10 year cancerversary

cruise travel insurance recommendation, please

Can my mum have chemo if so unwell..?

Magnesium infusions

Should I reduce dose of Olaparib?

Hysterectomy on complex ovarian cyst

Treatment terminology question

I’m so confused- precancerous changes

Need a bit of advice on treatments going forward.. avastin vs niraparib?

A winner in the Ovacome raffle!

Thanks everyone.

Niraparib

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2022

4th surgery

﻿Update.

Bucket list latest tick. So lucky.

NICE review olaparib and bevacizumab - your comments needed

Poem found on line

ovarian cancer chemo starting in two weeks

Anyone else on ﻿Pregabalin

Oral Cytoxan in conjunction w Avastin infusion

worried about possible recurrence

﻿my gorgeous mum.

Upset about CT scan

﻿Reoccurance

when we’re you prescribed a parp?

trials in the United States

Stable disease

watch and wait - how long?

Am I in the wrong

Stage 3b 15 years !

Stage 3c 10 year cancerversary

cruise travel insurance recommendation, please

Can my mum have chemo if so unwell..?

Magnesium infusions

Should I reduce dose of Olaparib?

Hysterectomy on complex ovarian cyst

Treatment terminology question

I’m so confused- precancerous changes

Need a bit of advice on treatments going forward.. avastin vs niraparib?

A winner in the Ovacome raffle!

Thanks everyone.

Niraparib

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

Update.

Anyone else on Pregabalin

my gorgeous mum.

Reoccurance