Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for May 2022

Reoccurrence

Hi has any one else had a malignancy on their ureta . Affecting kidney function they are saying it’s a spread from the Ovarian. If so what treatment were you...

Hi has any one else had a malignancy on their ureta . Affecting kidney function ...

Deesales

•2 years ago

10 Replies

5 years and still here!

Well there was a time early on when I wondered if I’d make it this far. I was diagnosed 3a in 2017 aged 47. It was in one ovary and lymph nodes. Had the full...

Well there was a time early on when I wondered if I’d make it this far. I was di...

Emsymits

•2 years ago

52 Replies

Chemo infusion financial assistance

Hello ladies. Can anyone in the USA on Medicare advise if she has had any luck having cost of chemo reduced? There is such a program at hospitals, but those...

Hello ladies. Can anyone in the USA on Medicare advise if she has had any luck h...

Sashay2020

•2 years ago

14 Replies

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What else is available?

I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am...

I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I ...

27-359

•2 years ago

32 Replies

1rst reccurrence update

Update! So I've done 4 cycles of Gemzar, carboplatin, avastin. After 3rd cycle Ca125 went down from 744 to 92, 💪🙏 almost the value I had on October 2021,...

Update! So I've done 4 cycles of Gemzar, carboplatin, avastin. After 3rd cycle C...

Marylight

•2 years ago

2 Replies

Reoccurrence of stage3 grade2 ovarian cancer

Had debunking surgery in 2019 and six months of chem. Have been in remission till a month ago. Had a pet scan and they found a 2.7 nodule where he had removed...

Had debunking surgery in 2019 and six months of chem. Have been in remission til...

MyDogKalie

•2 years ago

7 Replies

Will the carboplatin be helpful to me

I have had the full oophorectomy and have been offered three different choices, no chemo, carboplatin or carboplatin with another chemo drug. I chose the one...

I have had the full oophorectomy and have been offered three different choices, ...

Rexrescue

•2 years ago

13 Replies

ATARI trial my update

Hi all. Two months ago I posted about the ATARI trial and that my scan showed my tumours had halved or was hardly measurable. Today I got the results of my...

Hi all. Two months ago I posted about the ATARI trial and that my scan showed my...

Starbarn

•2 years ago

24 Replies

CA125 has risen post surgery. AND Sore and weak and feet and ankles post chemo.

I have stage 3c cancer in the peritoneum. I had 4 rounds of carbo/taxol and avastin and the ca125 was beginning to go down (128). All looked good after...

I have stage 3c cancer in the peritoneum. I had 4 rounds of carbo/taxol and av...

NewtonEmma1900

•2 years ago

10 Replies

Aches and Pains

I came off Rubraca in November, and since then have developed severe back ache. It hurts when I walk, sit and when I am in bed, but not continually! I am...

I came off Rubraca in November, and since then have developed severe back ache. ...

27-359

•2 years ago

8 Replies

Rising CA-125 after first cycle

Hi everyone, my mom is being treated for her second reoccurrence of advanced ovarian cancer stage 3c. She has only had her first cycle of taxol + biweekly...

Hi everyone, my mom is being treated for her second reoccurrence of advanced ova...

ShamilaS

•2 years ago

2 Replies

Olaparib and Avastin

Hi All, I wondered if anyone is taking Oliparib, 600mg a day and also having 3 weekly infusions of Avastin? I started on the Avastin on the 2nd cycle of 6...

Hi All, I wondered if anyone is taking Oliparib, 600mg a day and also having 3 w...

Mirrorplace

•2 years ago

19 Replies

borderline stage 3C tumour

Hi, I am 33yrs old. In 2015 I was diagnosed with a large ovarian cyst. After this operation I was diagnosed with a serous borderline stage 3C tumour and had...

Hi, I am 33yrs old. In 2015 I was diagnosed with a large ovarian cyst. After thi...

PaulinaKosciak

•2 years ago

20 Replies

Living with Ovarian Cancer Podcast

Hello everyone… It is World Ovarian Cancer Day so today there is an extra episode of “Living with Ovarian Cancer Podcast” to mark the event. In this episode I...

Hello everyone… It is World Ovarian Cancer Day so today there is an extra episo...

Levanah

•2 years ago

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Feeling really down

I have recently started treatment for recurring cancer.Rubrac a didn't work for me and I have already had Carbo/Taxol and Carbo/Caelyx. As my son and his...

I have recently started treatment for recurring cancer.Rubrac a didn't work for ...

27-359

•2 years ago

17 Replies

Not able to tolerate olaparib, anyone?

Dear Lovelies, I have now developed severe low haemoglobin twice in the 4 months I have been on olaparib- four blood transfusions in total and am off olaparib...

Dear Lovelies, I have now developed severe low haemoglobin twice in the 4 months...

Trickysite

•2 years ago

42 Replies

Need some reassuring

Just confused and wanted to know if anyone else felt like this early on, had scans that showed 3 ovarian tumours so had a scan with dye that came back showing...

Just confused and wanted to know if anyone else felt like this early on, had sca...

Newbery3

•2 years ago

13 Replies

Ca125 creeping again..

Hello, Finished second round chemo for first recurrence in Feb, 2 surgeries, stoma. Now on Niraparib for 3 weeks, 100 mg initially due to blood counts. Doing...

Hello, Finished second round chemo for first recurrence in Feb, 2 surgeries, sto...

Laz66

•2 years ago

7 Replies

Carbo /Caelyx

Hello lovely ladies, I hope that you are all keeping as well as possible, & that you are all enjoying this warmer sunny weather that has arrived. Well I had my...

Hello lovely ladies, I hope that you are all keeping as well as possible, & that...

Caleda4

•2 years ago

16 Replies

Post debulking surgery 3 weeks

I’ve had OC debulking surgery 3 weeks ago and am making a good recovery . I wondered if anyone has information about how they felt after surgery. I have pain...

I’ve had OC debulking surgery 3 weeks ago and am making a good recovery . I wond...

Narna1

•2 years ago

22 Replies

ICON9

Hello lovely ladies, I’m just wondering if anyone has been offered and started this therapy trial. I have been asked to consider this and would like to know...

Hello lovely ladies, I’m just wondering if anyone has been offered and started t...

Teazles

•2 years ago

2 Replies

Hi everyone,

I hope and pray everyone is well. I wanted to ask if anyone has had avastin and when it ended did anyone relapse straight away? Love and hugs to you all...

I hope and pray everyone is well. I wanted to ask if anyone has had avastin and ...

SEckett

•2 years ago

16 Replies

Two rounds of chemo

Hello Everyone. I joined this group as my sister was diagnosed with OC March 9,2022. She had her first two rounds of chemo and she just had another CT scan...

Hello Everyone. I joined this group as my sister was diagnosed with OC March 9,2...

Teacherwithcurls

•2 years ago

5 Replies

Friendships

Lovely Ladies, Friendships. I am wondering if you feel your friendships have changed since your diagnosis? If so, how? It is easier to be with “new” friends...

Lovely Ladies, Friendships. I am wondering if you feel your friendships have ch...

Smileeveryday2021

•2 years ago

32 Replies

Living with Ovarian Cancer Podcast

Hello everyone. I hope you’re all doing ok. There is a new episode out now of my podcast. You can listen via the link below or via any major podcast...

Hello everyone. I hope you’re all doing ok. There is a new episode out now of m...

Levanah

•2 years ago

2 Replies

Hernia and lymphnodes swelling

Hi ladies I am really worried about hernia too. I have some pain and lump by my navel which I mentioned to my Oncologist and at the time around 5 months ago,...

Hi ladies I am really worried about hernia too. I have some pain and lump by my...

Dubai18

•2 years ago

1 Reply

Hernia prevention after an abdominal hysterectomy

Hello I am looking for some advice please. I have ready many posts where women comment that they have had a hernia after having had a hysterectomy and I...

Hello I am looking for some advice please. I have ready many posts where women...

SarahBa

•2 years ago

15 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2022

Reoccurrence

5 years and still here!

Chemo infusion financial assistance

What else is available?

1rst reccurrence update

Reoccurrence of stage3 grade2 ovarian cancer

Will the carboplatin be helpful to me

ATARI trial my update

CA125 has risen post surgery. AND Sore and weak and feet and ankles post chemo.

Aches and Pains

Rising CA-125 after first cycle

Olaparib and Avastin

borderline stage 3C tumour

Living with Ovarian Cancer Podcast

Feeling really down

Not able to tolerate olaparib, anyone?

Need some reassuring

Ca125 creeping again..

Carbo /Caelyx

Post debulking surgery 3 weeks

ICON9

Hi everyone,

Two rounds of chemo

Friendships

Living with Ovarian Cancer Podcast

Hernia and lymphnodes swelling

Hernia prevention after an abdominal hysterectomy

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