Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for March 2022

Surgical wound not healing

Hi everyone It is 5 weeks since I had my debulking surgery and my wound is not healing properly. The nurses in the treatment room are using honey dressings...

Hi everyone It is 5 weeks since I had my debulking surgery and my wound is not...

Purplepansies54

•2 years ago

30 Replies

Seems it is back :(

My mom had ovarian cancer 2017 than may 2021 it was back last chemo was 17.10.2021, ca 125 froM 220 went down to 22.5 after 3 month it went up to 110 and now...

My mom had ovarian cancer 2017 than may 2021 it was back last chemo was 17.10.20...

Inguc_is

•2 years ago

10 Replies

It is back!!!

Hello ladies, I hope that you are as well as you can be . After being on Rubraca for 15months, my cancer has now returned. It is in the lymph nodes behind the...

Hello ladies, I hope that you are as well as you can be . After being on Rubraca...

Caleda4

•2 years ago

61 Replies

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Its a year

Might be a double post, as hit wrong button ! Its a year since I had my debulking op. I cant believe its that long ago I can remember every detail of being in...

Might be a double post, as hit wrong button ! Its a year since I had my debulkin...

rosebine

•2 years ago

12 Replies

Good News.

I hope this gives some hope. I first visited my GP March 2021 and was told I had suspected ovarian cancer. I was diagnosed 4a, had 6 chemo, debulking surgery...

I hope this gives some hope. I first visited my GP March 2021 and was told I had...

Morini

•2 years ago

25 Replies

Episode 18 Living with Ovarian Cancer Podcast

Episode 18 of “Living with Ovarian Cancer Podcast” is now available to listen to on all of your usual podcasts platforms. There are two episodes in March...

Episode 18 of “Living with Ovarian Cancer Podcast” is now available to listen to...

Levanah

•2 years ago

6 Replies

Niraparib

Hi Mopsie,I am in Amersham and have been on Niraparib for two years ,recently my CA Markers began to go up which is a worry

Hi Mopsie,I am in Amersham and have been on Niraparib for two years ,recently my...

Inchellon

•2 years ago

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Covidy thing

Had covid this week, day6now .First few days rubbish, better now , but this happened…… this week is blood test , get prescription for Olaparib. So I phoned our...

Had covid this week, day6now .First few days rubbish, better now , but this happ...

Rankij11

•2 years ago

17 Replies

Ovacome Raffle

Hello everyone We would like to invite you to enter our wonderful Ovacome Raffle to win some fantastic prizes. In doing so, you will be helping us to continue...

Hello everyone We would like to invite you to enter our wonderful Ovacome Raffle...

TheOvacomeTeam

Partner•2 years ago

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Cows milk

I have recently been in touch with a functional medical practitioner who has studied oncology from a diet perspective. She has told me that once you have a...

I have recently been in touch with a functional medical practitioner who has stu...

Bray

•2 years ago

28 Replies

Anyone else been opened up in surgery and only part of op been completed?

Woke up to find ny part of op had been completed as too much stuff discovered hidden under the heap of ovarian mass and two ovaries. Have to have second op....

Woke up to find ny part of op had been completed as too much stuff discovered hi...

Rosado22

•2 years ago

14 Replies

Can you get rid of ascites with Chemo and or ultra radical surgery?

Anyone dealing with fluid or ascites having chemo?

Rosado22

•2 years ago

9 Replies

Ultra radical surgery including removing half of diaphragm.

Has any one had part of their diaphragm or spleen removed? [edited by moderator]

Has any one had part of their diaphragm or spleen removed? [edited by moderator]...

Rosado22

•2 years ago

9 Replies

Ovarian cancer stage 3c after 6 years

Hi everyone, I am curious as to how long a patient with my type of cancer can stay in chemo ? I have been with weekly chemo for about a year and a half now .

Hi everyone, I am curious as to how long a patient with my type of cancer can st...

RosaMendez

•2 years ago

4 Replies

First reoccurrence chemotherapy not worked

Hi, so my sister had a reoccurrence after a month and went onto have six weekly one hour sessions of chemotherapy. After five sessions CT has been done. CA125...

Hi, so my sister had a reoccurrence after a month and went onto have six weekly ...

nettiebobs

•2 years ago

14 Replies

Healthy meals

Thank you to every one who has replied to my post regarding healthy meals you have all been very helpful and supportive I’ve never used a support group before...

Thank you to every one who has replied to my post regarding healthy meals you ha...

Teazles

•2 years ago

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Olaparib and exercise

I haven’t posted here for a while but would like some thoughts from anyone who takes olaparib. After an ovarian cancer recurrence I had chemotherapy which...

I haven’t posted here for a while but would like some thoughts from anyone who t...

CookieCake

•2 years ago

14 Replies

Niraparib delayed side effects

I had strange side effects on 200mg after about a month in that I was ravenously hungry all the time even after eating big meals. Went down to 100mg and side...

I had strange side effects on 200mg after about a month in that I was ravenously...

rosebine

•2 years ago

16 Replies

Healthy meal

Hi can any of you lovely ladies recommend any healthy pre packed meals that can be popped in the microwave- I’m due to start chemo on 29th March, I had ovarian...

Hi can any of you lovely ladies recommend any healthy pre packed meals that can ...

Teazles

•2 years ago

19 Replies

Zajula

Has any one on here had success with Zajula for OC

Kitergirl

•2 years ago

8 Replies

Could you help Ovacome gather perspectives from people who have experienced barriers to accessing healthcare?

Good afternoon everyone This post is to let you know about a clinical education project that we would really appreciate your input with. Ovacome has the...

Good afternoon everyone This post is to let you know about a clinical education ...

TheOvacomeTeam

Partner•2 years ago

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Ultra radical surgery

Has anyone had this on here?

Rosado22

•2 years ago

21 Replies

We would love to hear from you - Ovacome consultation closing on 15 March

Hi everyone We need your help please! Our consultation is closing on 15 March and we would really love to hear from you:...

Hi everyone We need your help please! Our consultation is closing on 15 March an...

TheOvacomeTeam

Partner•2 years ago

2 Replies

Managing the fear of your cancer diagnosis course

To the ladies who have booked on this course, can you contact me again as i got a new phone and mistakenly i wiped all my old emails and have lost your...

To the ladies who have booked on this course, can you contact me again as i got ...

Slipper1

•2 years ago

5 Replies

Molecular Profiling

Hi Ladies. Please can you tell me of any companies that test your tumor and match the drugs. I live in the Uk. Finding it difficult to find success stories and...

Hi Ladies. Please can you tell me of any companies that test your tumor and matc...

dramaredgerbil

•2 years ago

15 Replies

Rising Ca125

Hi - my ca125 has gone up from 9 to 22. I am a little worried. I am on olaparib and had a short course of avastin. Has anyone else had this?

Hi - my ca125 has gone up from 9 to 22. I am a little worried. I am on olaparib ...

Dancelover13

•2 years ago

7 Replies

Gemo/ carbo

Hi ladies I had my scan result today which showed progression of the disease. I had been taking Olaparib as part of the Icon 9 trial, this has now stopped and...

Hi ladies I had my scan result today which showed progression of the disease. I ...

Duskygem

•2 years ago

15 Replies

Reasons to have to be cheerful

Does anyone else feel bullied into being upbeat and cheerful because other people want soap opera level drama from your situation?

Does anyone else feel bullied into being upbeat and cheerful because other peopl...

Hidden

•2 years ago

13 Replies

Abdominal pain

Hi everyone it’s been a while since I posted anything . I’m 5 years free of O/C and about to be discharged. Recently iv experienced lower abdominal pain and...

Hi everyone it’s been a while since I posted anything . I’m 5 years free of O/C ...

Jesse59

•2 years ago

20 Replies

Fluctuating CA 15-3 tumor marker

Dx DCIS stage 0. 2/1/21. Lumpectomy, no rads/ chemo. Oncotype test showed low % recurrence. Feel great. Oncologist wants PET/CT due to increase in markers....

Dx DCIS stage 0. 2/1/21. Lumpectomy, no rads/ chemo. Oncotype test showed low %...

Suz0130

•2 years ago

1 Reply

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for March 2022

Surgical wound not healing

Seems it is back :(

It is back!!!

Its a year

Good News.

Episode 18 Living with Ovarian Cancer Podcast

Niraparib

Covidy thing

Ovacome Raffle

Cows milk

Anyone else been opened up in surgery and only part of op been completed?

Can you get rid of ascites with Chemo and or ultra radical surgery?

Ultra radical surgery including removing half of diaphragm.

Ovarian cancer stage 3c after 6 years

First reoccurrence chemotherapy not worked

Healthy meals

Olaparib and exercise

Niraparib delayed side effects

Healthy meal

Zajula

Could you help Ovacome gather perspectives from people who have experienced barriers to accessing healthcare?

Ultra radical surgery

We would love to hear from you - Ovacome consultation closing on 15 March

Managing the fear of your cancer diagnosis course

Molecular Profiling

Rising Ca125

Gemo/ carbo

Reasons to have to be cheerful

Abdominal pain

Fluctuating CA 15-3 tumor marker

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