Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for October 2021

Panic mode activated :(

Feeling very much like a drama queen - but after a year and a half of no periods I bled really heavily last week - so heavily I called doc for tranexamic acid...

Feeling very much like a drama queen - but after a year and a half of no periods...

Rebelmama

•3 years ago

5 Replies

Notifications

Does anyone know how to get an email notification from other members posts? I have all my notifications switched on and used to get them but don't any more....

Does anyone know how to get an email notification from other members posts? I ha...

ZenaJ

•3 years ago

4 Replies

CA125 RESULT

Hello ladies, I hope that you are all as well as possible and that you have enjoyed the recent sunshine. I had my usual monthly blood test last Friday and...

Hello ladies, I hope that you are all as well as possible and that you have enjo...

Caleda4

•3 years ago

13 Replies

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Re sister

Hi girls Any suggestions. Sister not started any treatment yet. Hopefully biopsy soon to see if ovarian cancer same as bowel However she keeps being sick. She...

Hi girls Any suggestions. Sister not started any treatment yet. Hopefully biopsy...

Skyp

•3 years ago

2 Replies

Stopping Niraparib

Ive been taken off above ,temporarily I think ,due to renal problems. Ive had really bad nausea and permanent hunger pangs whilst taking it, and wondering how...

Ive been taken off above ,temporarily I think ,due to renal problems. Ive had re...

rosebine

•3 years ago

16 Replies

Olarapabib

Hi Are any ladies being prescribed Olarapabib on its own or is it only prescribed alongside Avastin? Many thanks

Hi Are any ladies being prescribed Olarapabib on its own or is it only prescrib...

Cardiff05

•3 years ago

13 Replies

Ovarian cancer

Hi all would anyone know how my mum can put on weight without feeding the cancer we are juicing and smoothies but apparently carbs and sweet foods protein feed...

Hi all would anyone know how my mum can put on weight without feeding the cancer...

Aliollie

•3 years ago

31 Replies

Hi everyone,

So sorry to trouble you all again, but how long after debulking surgery before you can have a bath. Sending everyone love and hugs. Sheenagh xx

So sorry to trouble you all again, but how long after debulking surgery before y...

SEckett

•3 years ago

6 Replies

What to expect with avastin?

Afternoon everyone, it’s been a bit since I posted. I hope you’re all doing ok. Mum starts avastin today, then olaparib in tablet form in a few weeks. I’m...

Afternoon everyone, it’s been a bit since I posted. I hope you’re all doing ok. ...

LouieB123

•3 years ago

9 Replies

Debulking op cancelled, no date fixed for when I can have it, feeling anxious

Hi, I have had 6 chemos, 3 carbo and then 3 carbo plus taxol (am now into the 6th week after the last one). I was due to have my debulking op this Tuesday just...

Hi, I have had 6 chemos, 3 carbo and then 3 carbo plus taxol (am now into the 6t...

Callipygian

•3 years ago

35 Replies

Covid booster

Does anyone have the definitive information on the Covid booster? I have heard that the vaccine for vulnerable patients differs from the one being used...

Does anyone have the definitive information on the Covid booster? I have heard ...

27-359

•3 years ago

41 Replies

HIPEC in the UK?

A while ago somebody mentioned that they had been given HIPEC (hyperthermic intraperitoneal chemotherapy) in the UK. I'm interested in HIPEC and although it...

A while ago somebody mentioned that they had been given HIPEC (hyperthermic intr...

Jacky5

•3 years ago

16 Replies

Worried

Update on sister. She back in hospital. With another bowel obstruction. Reading other members post this seems to go with ovarian cancer. She was diagnosed 4/5...

Update on sister. She back in hospital. With another bowel obstruction. Reading ...

Skyp

•3 years ago

4 Replies

My ca 125 went up, WHY?

ca 125 test went from 6 to 29 in a month, what does it mean?

bethslife

•3 years ago

5 Replies

New here and a less common type of OC

Hi everyone. I'm New here. I was diagnosed last November as having Stage 1c2 Grade 1 ovarian cancer but a less common type which was an endometriod...

Hi everyone. I'm New here. I was diagnosed last November as having Stage 1c2 G...

Nara42

•3 years ago

8 Replies

Lynpraza and brca1 positive

I am on Lynpraza 13 months now-so far so good…my ca125 was 2,8 and next month(because we check it every month) it went 4,9 should I worry?..it has been 4,9 in...

I am on Lynpraza 13 months now-so far so good…my ca125 was 2,8 and next month(be...

Roulasim

•3 years ago

6 Replies

Hi everyone

I was just wondering after debulking surgery I am into my week 3 after surgery can you start doing light housework. I am doing light housework now. Don’t like...

I was just wondering after debulking surgery I am into my week 3 after surgery c...

SEckett

•3 years ago

14 Replies

Ca125

Why CA 125 is not coming down after two dosages of taxol and carbo?

Harp-1

•3 years ago

1 Reply

COVID while on targeted therapy

Hello ladies, My mother was diagnosed with ovarian cancer stage 4 in December 2019. She had debulking surgery and chemotherapy and is currently on Lynparza....

Hello ladies, My mother was diagnosed with ovarian cancer stage 4 in December 20...

Uniquem

•3 years ago

9 Replies

Please tell us about your experience with remote appointments

Hi all Our chief executive is presenting to ESGO (European Society of Gynaecological Oncology) on patient experience of remote appointments. We are really...

Hi all Our chief executive is presenting to ESGO (European Society of Gynaecolog...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Going through chemo alone

Hi ladies. I hope each of you is as well as you can be today. I’m hoping for some tips from anyone who may have gotten through chemo alone. I am 70 and live...

Hi ladies. I hope each of you is as well as you can be today. I’m hoping for som...

Sashay2020

•3 years ago

30 Replies

Hi everyone,

Thank you so much for all your support, kindness valuable knowledge and prayers. It means so much to me sending all of you love and hugs. Sheenagh xx this...

Thank you so much for all your support, kindness valuable knowledge and prayers....

SEckett

•3 years ago

4 Replies

First chemo and ascitic drain done

First chemo (caelyx) last Thursday and tummy drained Monday so resting up for a bit. Thanks for all the messages and support ladies. You help me so much....

First chemo (caelyx) last Thursday and tummy drained Monday so resting up for a ...

ritabon

•3 years ago

2 Replies

Fallopian Tube cancer

Hi ladies, my dr. has told me that my cancer started in my Fallopian tube. I was just wondering if any of you had the same diagnosis. The treatment is the...

Hi ladies, my dr. has told me that my cancer started in my Fallopian tube. I was...

Pianoplayer731021

•3 years ago

20 Replies

Surgery

Hi everyone, I had my surgery 2 weeks tomorrow. I came home after 5 days in the Princess Anne hospital but ended back in the hospital after being at home for a...

Hi everyone, I had my surgery 2 weeks tomorrow. I came home after 5 days in the ...

SEckett

•3 years ago

26 Replies

Seeking advice

Has anyone suffered from costachodritis from lynparza/olaparib or had it and made it worse

Has anyone suffered from costachodritis from lynparza/olaparib or had it and mad...

Clifden1

•3 years ago

6 Replies

Naraporib

Dear Ovacome, I hope you are well. I am here on behalf of my wonderful mum. We had a meeting with our oncologist last Friday as my mums symptoms have...

Dear Ovacome, I hope you are well. I am here on behalf of my wonderful mum. W...

CharlBhard

•3 years ago

2 Replies

Post- treatment scar pain after 6 months.

Hi Ladies, I have completed chemotherapy and had a radical hysterectomy for Ovarian Cancer. I am now, after 6 months, having scar pain. Has anyone else...

Hi Ladies, I have completed chemotherapy and had a radical hysterectomy for Ovar...

Dancelover13

•3 years ago

8 Replies

Constipation, gas and reflux

Hi lovely ladies, Im really struggling, im on Niraparib last scan shows build up of ascites but Ca125 is stable 50... But i am suffering from pains in my...

Hi lovely ladies, Im really struggling, im on Niraparib last scan shows build u...

Suds0812

•3 years ago

7 Replies

Request to share your experience of niraparib

Dear all, We have been asked if there might be someone who would share their experience of niraparib, via videocall, to a group of health professionals. They...

Dear all, We have been asked if there might be someone who would share their ex...

TheOvacomeTeam

Partner•3 years ago

2 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2021

Panic mode activated :(

Notifications

CA125 RESULT

Re sister

Stopping Niraparib

Olarapabib

Ovarian cancer

Hi everyone,

What to expect with avastin?

Debulking op cancelled, no date fixed for when I can have it, feeling anxious

Covid booster

HIPEC in the UK?

Worried

My ca 125 went up, WHY?

New here and a less common type of OC

Lynpraza and brca1 positive

Hi everyone

Ca125

COVID while on targeted therapy

Please tell us about your experience with remote appointments

Going through chemo alone

Hi everyone,

First chemo and ascitic drain done

Fallopian Tube cancer

Surgery

Seeking advice

Naraporib

Post- treatment scar pain after 6 months.

Constipation, gas and reflux

Request to share your experience of niraparib

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