Posts - My Ovacome | HealthUnlocked

My Ovacome

17,745 members • 19,983 posts

All posts for October 2021

Has anyone heard of PIPAC treatment? It’s a clinical trial here at city of Hope Duarte ca. I’m in the process of qualifying

This has been done in Germany for years with good results.

Golfjazz

•3 years ago

4 Replies

Platelets dropping while on Zejula (Niraparib)

Hi Lovely Ladies. I went through two rounds of chemo for peritoneal CA. A few bumps along the way with a blocked ureter. A stent was inserted and I ended up...

Hi Lovely Ladies. I went through two rounds of chemo for peritoneal CA. A few bu...

Jenjill47

•3 years ago

23 Replies

2 YEARS ON THIS WEEK AND STILL SOMETIMES TENDER AFTER FULL HYSTERECTOMY AND OMENTECTOMY +

Hi All, Just been googling..probably shouldnt have ! But came across this site. It is now 2 years on since I had EVERYTHING out except lymph glands. Luckily...

Hi All, Just been googling..probably shouldnt have ! But came across this site. ...

Lou38Roffey

•3 years ago

2 Replies

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Thank you

Thank you to everyone for your help I decided not to go ahead with niraparib and at moment feel ok

Thank you to everyone for your help I decided not to go ahead with niraparib and...

Chocky16

•3 years ago

7 Replies

Waiting for chemo to start

I had surgery 5 weeks ago which involved a full hysterectomy and then I was later given a staging of ovarian cancer 3b. All has been healing well, except I...

I had surgery 5 weeks ago which involved a full hysterectomy and then I was lat...

Mirrorplace

•3 years ago

9 Replies

Caelyx & Carboplatin -info for a friend

A friend is just embarking on round 2 following a relapse. She had the usual Taxol & Carboplatin last time but doesn’t know what to expect with this new chemo...

A friend is just embarking on round 2 following a relapse. She had the usual Tax...

Emsymits

•3 years ago

10 Replies

CA125 levels

Hi, it's the first time I have posted but wondering if any have had the same experience as me. I was sent for a scan after having bloating for a while that did...

Hi, it's the first time I have posted but wondering if any have had the same exp...

AprKe

•3 years ago

10 Replies

Hi everyone,

My Ca125 after my op is now 37. That’s after 4 chemotherapy’s. I read on here that others dropped so much lower than mine. I still have 2 chemotherapy’s to go....

My Ca125 after my op is now 37. That’s after 4 chemotherapy’s. I read on here th...

SEckett

•3 years ago

9 Replies

Upcoming webinar - Ovarian cancer, misdiagnosis and shopping for healthcare products: loyalty card data sharing study

Hi everyone This post is to let you all know about an upcoming webinar hosted by Ovacome that may be of interest. Join our webinar for an opportunity to learn...

Hi everyone This post is to let you all know about an upcoming webinar hosted by...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Carbo/Taxol v carbo/Caelyx

I thought Caelyx was the strongest cancer drug according to a lot of the info I have seen, but various posters have said they found it easier than the Taxol. I...

I thought Caelyx was the strongest cancer drug according to a lot of the info I ...

rosebine

•3 years ago

9 Replies

Taste buds are shot!

Cycle 4 Carbo/Caelyx done. 2 to go. My taste buds are rebelling. Want to eat but everything tastes awful. Any tips please?

Cycle 4 Carbo/Caelyx done. 2 to go. My taste buds are rebelling. Want to eat bu...

Davonian

•3 years ago

12 Replies

Hi everyone

I have just been to see one of the oncologists she is based in Southampton. The first thing she said was how great I looked. My surgery was 3 and half weeks...

I have just been to see one of the oncologists she is based in Southampton. The ...

SEckett

•3 years ago

20 Replies

Further information on NICE preliminary decision in appraisal of niraparib as maintenance treatment for relapsed ovarian cancer

Hi all This post aims to bring some clarity and further information about the NICE preliminary decision in appraisal of niraparib as maintenance treatment...

Hi all This post aims to bring some clarity and further information about the...

TheOvacomeTeam

Partner•3 years ago

Be the first to reply

Bloating pain

Hello friends I am getting carbo/caylex for first reoccurrence. I am getting too much bloating pain, sometime like labour pain. My oncologist said there is...

Hello friends I am getting carbo/caylex for first reoccurrence. I am getting t...

Comedy123

•3 years ago

7 Replies

Hi everyone,

I was told when I was diagnosed with ovarian cancer to go on a low fibre diet then after surgery I could introduce fibre back in to my diet. When I had that...

I was told when I was diagnosed with ovarian cancer to go on a low fibre diet th...

SEckett

•3 years ago

21 Replies

Re sister

No mention of op or debulking which I read most ladies have. Only biopsy in a month then chemo. Is this usual xx

No mention of op or debulking which I read most ladies have. Only biopsy in a mo...

Skyp

•3 years ago

10 Replies

Tough decision

Hi ladies I’m at a crossroads! Had a third opinion from City of Hope this week. My first doc who did initial 3 chemo surgery and then 3 more carbo/taxol which...

Hi ladies I’m at a crossroads! Had a third opinion from City of Hope this week. ...

Golfjazz

•3 years ago

13 Replies

Hi everyone

Thank you for kind words and support. Today I feel totally wiped out emotionally and physically so resting and sleeping today. Sending everyone love and hugs...

Thank you for kind words and support. Today I feel totally wiped out emotionally...

SEckett

•3 years ago

7 Replies

Anyone travelled a long distance to have their debulking op?

Hi, My question is concerning the debulking op. After 3 cancellations on mine, and now being past the optimum time for the surgery to be done, in desperation...

Hi, My question is concerning the debulking op. After 3 cancellations on mine, a...

Callipygian

•3 years ago

16 Replies

Kids and covid

Hi, I’m 51 and I’ve just in the last week been diagnosed with stage 4 ovarian /peritoneal cancer. I’m feeling positive that with chemotherapy I can still...

Hi, I’m 51 and I’ve just in the last week been diagnosed with stage 4 ovarian /p...

Willowsmum51

•3 years ago

8 Replies

PFIZER BOOSTER

Hi all ,had my Pfizer booster jab yesterday, went to bed that evening shivering & feeling nauseous.Had a lie in as cracking head & aches all over🙁Had similar...

Hi all ,had my Pfizer booster jab yesterday, went to bed that evening shivering ...

Mammi

•3 years ago

26 Replies

Hi everyone

I have just seen the surgeon who carried out my surgery he said he got the bulk of disease but I have still got microscopic bits of the disease m. I said can I...

I have just seen the surgeon who carried out my surgery he said he got the bulk ...

SEckett

•3 years ago

33 Replies

Feeling lost

Following full hysterectomy, removal of appendix, and omentum , graded as 2a mucinous, which was found in the right ovary , and a small microscopic amount in...

Following full hysterectomy, removal of appendix, and omentum , graded as 2a muc...

HogM

•3 years ago

16 Replies

Should I stop last chemo treatment due to neuropathy?

I’m very worried about long term effects of the neuropathy, especially since I play guitar. Should I skip #6? I REALLY want to! Feet, hands, tremors and...

I’m very worried about long term effects of the neuropathy, especially since I p...

Reniec

•3 years ago

14 Replies

Waiting for Histology

Hi I'm new hear and am 4 weeks post op after having a staging laparotomy with full pelvic clearance. I had a transvaginal ultrasound along with a normal...

Hi I'm new hear and am 4 weeks post op after having a staging laparotomy with fu...

LouKV

•3 years ago

16 Replies

Hi everyone

I would like to say a big thank you for all your help and support. Sending everyone love and hugs. X

I would like to say a big thank you for all your help and support. Sending every...

SEckett

•3 years ago

3 Replies

5 years

When I was diagnosed in October 2016 with stage 3 Ovarian Cancer. I was totally devastated and traumatised [edited by moderator] . Well here I am exactly 5...

When I was diagnosed in October 2016 with stage 3 Ovarian Cancer. I was totally ...

MH500

•3 years ago

44 Replies

2nd Recurrence

Hello Angels, A big thank you for putting up your stories out here. It really gives me hope everyday that we can beat this disease. So, now here I am, bit...

Hello Angels, A big thank you for putting up your stories out here. It really gi...

HealthyBeing

•3 years ago

6 Replies

Hi everyone,

It will be 3 weeks tomorrow since my debulking surgery. Today I am in a little pain. Is this normal after having debulking surgery.

It will be 3 weeks tomorrow since my debulking surgery. Today I am in a little p...

SEckett

•3 years ago

4 Replies

Living with Ovarian Cancer Podcast episode 13

Episode 13 is now available via the link or via all the usual podcast platforms. Helen talks in this episode about her diagnosis of Granulosa Cell Ovarian...

Episode 13 is now available via the link or via all the usual podcast platforms....

Levanah

•3 years ago

2 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2021

Has anyone heard of PIPAC treatment? It’s a clinical trial here at city of Hope Duarte ca. I’m in the process of qualifying

Platelets dropping while on Zejula (Niraparib)

2 YEARS ON THIS WEEK AND STILL SOMETIMES TENDER AFTER FULL HYSTERECTOMY AND OMENTECTOMY +

Thank you

Waiting for chemo to start

Caelyx & Carboplatin -info for a friend

CA125 levels

Hi everyone,

Upcoming webinar - Ovarian cancer, misdiagnosis and shopping for healthcare products: loyalty card data sharing study

Carbo/Taxol v carbo/Caelyx

Taste buds are shot!

Hi everyone

Further information on NICE preliminary decision in appraisal of niraparib as maintenance treatment for relapsed ovarian cancer

Bloating pain

Hi everyone,

Re sister

Tough decision

Hi everyone

Anyone travelled a long distance to have their debulking op?

Kids and covid

PFIZER BOOSTER

Hi everyone

Feeling lost

Should I stop last chemo treatment due to neuropathy?

Waiting for Histology

Hi everyone

5 years

2nd Recurrence

Hi everyone,

Living with Ovarian Cancer Podcast episode 13

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