Posts - My Ovacome | HealthUnlocked

My Ovacome

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All posts for September 2021

Podcast episode 12 available

Episode 12 of “Living with Ovarian Cancer” is now available. You can also listen via all the major podcast platforms such as Apple, Spotify etc. Please have a...

Episode 12 of “Living with Ovarian Cancer” is now available. You can also listen...

Levanah

•3 years ago

4 Replies

Results today

I saw my oncologist today. The little bugger is active again, CA125 is 247. Ascites in abdomen. Niraparib hasn't worked. That's the bad ish news. Good news...

I saw my oncologist today. The little bugger is active again, CA125 is 247. As...

ritabon

•3 years ago

33 Replies

KIDNEY STENTS

Hello Everyone This is my first post to the forum but I have accessed the site on most days for the past few months and I have been impressed with the...

Hello Everyone This is my first post to the forum but I have accessed the site ...

Bluemoon3

•3 years ago

9 Replies

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Ten months remission ended

Well ladies, I have enjoyed my ten months off chemo. I went for my quarterly CA125 earlier this afternoon. I received an email a few minutes ago alerting me to...

Well ladies, I have enjoyed my ten months off chemo. I went for my quarterly CA1...

Sashay2020

•3 years ago

30 Replies

Trying to understand CA125

Hello, Im trying to find some clear guidance on the CA125 test. I was diagnosed in March with HGSOC stage 4. My CA125 was about 5,000. I had 4 chemos and...

Hello, Im trying to find some clear guidance on the CA125 test. I was diagnose...

Horsesrock

•3 years ago

12 Replies

Hi All

I was just wondering can you get a complete response after surgery with stage 3/4 ovarian cancer. Lots of love Sheenagh

I was just wondering can you get a complete response after surgery with stage 3/...

SEckett

•3 years ago

6 Replies

Worried sick

I had my CT scan and blood test for CA125 today. I see the oncologist tomorrow having relapsed after 10 years. Currently on Niraparib maintenance. Really...

I had my CT scan and blood test for CA125 today. I see the oncologist tomorrow ...

ritabon

•3 years ago

15 Replies

Recomendations for Travel Insurance??

Looking for an annual policy - currently NED. Any recommendations please ladies? Some quotes are in excess of £1500! Is that what i should expect? X

Looking for an annual policy - currently NED. Any recommendations please ladies?...

suzannebirch

•3 years ago

19 Replies

NICE preliminary decision in appraisal of niraparib as maintenance treatment for relapsed ovarian cancer.

Dear all, The National Institute for Health and Care Excellence (NICE) recently announced their preliminary decision in the appraisal of niraparib for...

Dear all, The National Institute for Health and Care Excellence (NICE) recently ...

TheOvacomeTeam

Partner•3 years ago

5 Replies

Hi All

I’m just wondering with having surgery has anyone been told how long it prolongs your life for? Love and hugs to everyone. Sheenagh xx ps these 2 naught little...

I’m just wondering with having surgery has anyone been told how long it prolongs...

SEckett

•3 years ago

10 Replies

Chemotherapy

Hi all, I am new here. I was diagnosed Feb 14, 2020, with stage 3 Had 6 rounds of chemo then Surgery and 3 more chemo. Been on Lynparza since then but my...

Hi all, I am new here. I was diagnosed Feb 14, 2020, with stage 3 Had 6 rounds ...

OKme2

•3 years ago

6 Replies

Surgery

Hi all, I am having my surgery on on the 22nd of this month. I have been told that my CT scan has shown a complete resolution of ascites, decrease in the...

Hi all, I am having my surgery on on the 22nd of this month. I have been told th...

SEckett

•3 years ago

24 Replies

Avastin

I was trials after having oc stage 4b. Had full hysterectomy plus peritoneum and omentum removed trial was ICON 8B. With this you are on avastin for 15 months...

I was trials after having oc stage 4b. Had full hysterectomy plus peritoneum and...

Madmolly

•3 years ago

7 Replies

Page 4

Last one!

27-359

•3 years ago

Be the first to reply

Page 3

And again!

27-359

•3 years ago

Be the first to reply

Page 2

Sorry about this!

27-359

•3 years ago

Be the first to reply

Breathlessness exercises

Not sure if this will work, but a couple of people have asked me to forward the breathing exercises sent to me by the hospice. Jenny

Not sure if this will work, but a couple of people have asked me to forward the ...

27-359

•3 years ago

2 Replies

We are pretty special

Ive just read a study where it says a womans lifetime chance of developing ovarian cancer is 1.3%! We are an elite group!

Ive just read a study where it says a womans lifetime chance of developing ovari...

rosebine

•3 years ago

4 Replies

Covid vaccine !

I just had my 3rd shot 2 days ago . Thanks to all who posted information on their experience with it . My arm was sore and last night I felt a bit shivers....

I just had my 3rd shot 2 days ago . Thanks to all who posted information on thei...

MOOKIE-FOX1234

•3 years ago

2 Replies

Breathless forever!

Further to my search for a cure to my breathlessness, it appears there isn't one. I found out that I have persistent macrobiotic anaemia, but this is not the...

Further to my search for a cure to my breathlessness, it appears there isn't one...

27-359

•3 years ago

6 Replies

Carboplatin and supplements, specifically cod liver oil and turmeric

Hello everyone, thank goodness the rain has arrived, watered my garden and cooled the temperature down a little so I can hopefully get out for a walk later....

Hello everyone, thank goodness the rain has arrived, watered my garden and coole...

Catfeeder

•3 years ago

13 Replies

First day on cyclophosphamide

I’ve just taken my first tablet and was wondering if there is anyone else on this chemo. I would really like to know what to expect. Gilly x

I’ve just taken my first tablet and was wondering if there is anyone else on thi...

Lockygill

•3 years ago

7 Replies

What is HRD ?

I keep seeing this & do not understand it’s meaning!!! Please enlighten me. Thankyou Iside

I keep seeing this & do not understand it’s meaning!!! Please enlighten me. Than...

Iside

•3 years ago

5 Replies

Upcoming online events with Ovacome

Hello All This is just to let you know about our upcoming online events including support groups and activities for the next few weeks. More information can be...

Hello All This is just to let you know about our upcoming online events includin...

OvacomeSupport

Partner•3 years ago

2 Replies

Side effects from lynparza/Olaparib

Hi guys just wondering if anyone on this parp suffers from pain under right ribs and going around to back its very sore and interferring with my sleep and...

Hi guys just wondering if anyone on this parp suffers from pain under right ribs...

Clifden1

•3 years ago

3 Replies

Sertraline for menopause

Hi, this is my first post. I was diagnosed with a borderline tumour in June 21 following a total abdominal hysterectomy. My consultant doesn't want me to take...

Hi, this is my first post. I was diagnosed with a borderline tumour in June 21 f...

Siany78

•3 years ago

9 Replies

Ascities

Seen my oncologist today ca125 is 11 which is good, cancer is stable I have nodules not masses, but I'm getting ascities, is anyone else in the same position,...

Seen my oncologist today ca125 is 11 which is good, cancer is stable I have nodu...

wnicola31

•3 years ago

8 Replies

Any experience of Letrozole? My mum is half way through her second-line chemo of caelyx/carbo but it was stopped today. More info below

So as stated, mum was on second line caelyx/carbo chemotherapy and it has been stopped today, reasons being two-fold; she had a stroke a few weeks back and...

So as stated, mum was on second line caelyx/carbo chemotherapy and it has been s...

BarD7

•3 years ago

4 Replies

After caelyx & carboplatin

Hi there, I’m having my 6th cycle of caelyx & carboplatin but not sure what will happen yet! I obviously will ask my consultant when I speak to him this week...

Hi there, I’m having my 6th cycle of caelyx & carboplatin but not sure what will...

Lesinbeds

•3 years ago

15 Replies

Hi ladies; I'm new here. Anyone on niraparib with negative BRCA and very low HRD? Can you share your experiences please?

I've been diagnosed and operated in April 21 with Stage 3 Ov cancer. Chemo (6 cycles) finished with Ca-125 around 4 now. My oncologist recommended niraparib....

I've been diagnosed and operated in April 21 with Stage 3 Ov cancer. Chemo (6 cy...

Sybil71

•3 years ago

21 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2021

Podcast episode 12 available

Results today

KIDNEY STENTS

Ten months remission ended

Trying to understand CA125

Hi All

Worried sick

Recomendations for Travel Insurance??

NICE preliminary decision in appraisal of niraparib as maintenance treatment for relapsed ovarian cancer.

Hi All

Chemotherapy

Surgery

Avastin

Page 4

Page 3

Page 2

Breathlessness exercises

We are pretty special

Covid vaccine !

Breathless forever!

Carboplatin and supplements, specifically cod liver oil and turmeric

First day on cyclophosphamide

What is HRD ?

Upcoming online events with Ovacome

Side effects from lynparza/Olaparib

Sertraline for menopause

Ascities

Any experience of Letrozole? My mum is half way through her second-line chemo of caelyx/carbo but it was stopped today. More info below

After caelyx & carboplatin

Hi ladies; I'm new here. Anyone on niraparib with negative BRCA and very low HRD? Can you share your experiences please?

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