Posts - My Ovacome | HealthUnlocked

My Ovacome

17,716 members • 19,968 posts

All posts for September 2021

Has anyone had bad experience with anti eostrogen I was put on anastrazole bad side effect then put on tramazole I had more bad side effect

I have been taken off cancer meds watch and wait anyone else had similar experience

I have been taken off cancer meds watch and wait anyone else had similar experie...

Madmolly

•3 years ago

8 Replies

Dendritic Cell Therapy

Hello, I'd be interested to know if anyone has looked into this for OC treatment. I've been recommended a company in Spain. [edited by moderator] Thanks...

Hello, I'd be interested to know if anyone has looked into this for OC treatmen...

Horsesrock

•3 years ago

3 Replies

Niraparib appetite

Been on Niraparib for 6 weeks now, and alternate between feeling queasy every day or being ravenously hungry and not able to satisfy the hunger pains. Tried...

Been on Niraparib for 6 weeks now, and alternate between feeling queasy every da...

rosebine

•3 years ago

8 Replies

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CA 125 high but stable

My mom was diagnosed in October 2019 of OC with symptoms of ascites. Her Ca 125 was 113K (yes that is correct), she went 6 rounds of chemo and last July had...

My mom was diagnosed in October 2019 of OC with symptoms of ascites. Her Ca 125 ...

msuspartan

•3 years ago

13 Replies

Mouth sores

Has anyone else on rucaparib suffered with mouth sores?

Cazbird

•3 years ago

9 Replies

Ovarian cancer bone profile test

Hi, I’ve had ovarian cancer for 4 and half years. Spread to the lining of my abdomen August 2020. Currently taking niraparib. Why am I having bone profile...

Hi, I’ve had ovarian cancer for 4 and half years. Spread to the lining of my abd...

Shazwooly

•3 years ago

3 Replies

Upcoming events with Ovacome

Hi there everyone This post is to let you know about our online events throughout the week ahead. We hope there will be something of interest to you all....

Hi there everyone This post is to let you know about our online events throughou...

OvacomeSupport

Partner•3 years ago

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Good News

Hi lovely ladies. I was diagnosed stage 3C in June 2013 and get regular CA125 tests. The good news is that I'm still on 9 and live to tell the tale. I hope...

Hi lovely ladies. I was diagnosed stage 3C in June 2013 and get regular CA125 t...

ZenaJ

•3 years ago

54 Replies

Bathroom issues on avastin/doxil/carbo

Hi ladies, I hope everyone is as well as possible. My mom is currently on avastin, doxil and carbo for her first reoccurance and having bathroom issues. Every...

Hi ladies, I hope everyone is as well as possible. My mom is currently on avasti...

Lind58

•3 years ago

3 Replies

Sudden onset ascities?

I have stage 4 high grade inoperable OV cancer. Responded well to first line chemo and now on naraparib parp inhibitor. Have been feeling really well....

I have stage 4 high grade inoperable OV cancer. Responded well to first line che...

Cumbrianlass5

•3 years ago

31 Replies

Peritoneal Cancer

Hello, My mother has peritoneal cancer. Her stomach pain and bowel obstruction subsided with chemo, but now that chemo has ended these problems have...

Hello, My mother has peritoneal cancer. Her stomach pain and bowel obstruction...

southmaple

•3 years ago

8 Replies

Debulking & Hernia Repair experiences?

Debulking & Hernia Repair: Has anyone had a debulking surgery followed by hernia repair all in the same surgery? Can you share your experience if anyone has...

Debulking & Hernia Repair: Has anyone had a debulking surgery followed by herni...

Luci22

•3 years ago

4 Replies

Impending Operation

Hi all I was diagnosed with OC the middle of August & I’m now booked to go into the Royal Marsden, Fulham for this Weds 29th to have a hysterectomy & a 7cms...

Hi all I was diagnosed with OC the middle of August & I’m now booked to go into ...

Hidden

•3 years ago

40 Replies

Avastin v niraparib maintenance

Morning! I’m HGSOC stage 4 BRCA neg, HRP , one chemo left then onto maintenance. I have a choice of avastin or niraparib. My onc favours the PARP inhibitor....

Morning! I’m HGSOC stage 4 BRCA neg, HRP , one chemo left then onto maintenance...

Horsesrock

•3 years ago

12 Replies

Help

Hello all Im new here. I was told yesterday i have ovarian cancer and next Wednesday i will be seeing a doctor who will go through the treatment plan with me....

Hello all Im new here. I was told yesterday i have ovarian cancer and next Wedn...

Annie2021

•3 years ago

67 Replies

Flu jab

Just wanted to say be careful with Flu jab ahead of blood tests . I wasn’t aware can actually cause a dip . My counts are always precarious as I have ITP , had...

Just wanted to say be careful with Flu jab ahead of blood tests . I wasn’t aware...

Rankij11

•3 years ago

1 Reply

Ca125 Rising

Hi guys just looking for some reassurance my mum started the niraparib 2 weeks ago the oncologist not her usual one wasn't going to let her start it as her...

Hi guys just looking for some reassurance my mum started the niraparib 2 weeks a...

Dancing6060

•3 years ago

5 Replies

Can you share how its been going on Olaparib as Maintenance Treatment for Ovarian Cancer as well as Infusion Avastin ?

Can you share how its been going on Olaparib as Maintenance Treatment for Ovaria...

mswhoffman

•3 years ago

9 Replies

Pain on Gemzar/Gemcitabine

Hello ladies, I'm currently on single agent Gemzar/Gemcitabine and have started having agonising stomach and back pain which starts about six hours after my...

Hello ladies, I'm currently on single agent Gemzar/Gemcitabine and have started ...

Gemmyw

•3 years ago

3 Replies

Ovarian cancer and atrial fibrillation

Hi lovely people hope someone can help, my mums carboplatin after 6 months hasn’t worked and her ca125 is going up already she only finished a month ago. The...

Hi lovely people hope someone can help, my mums carboplatin after 6 months hasn’...

Aliollie

•3 years ago

6 Replies

Weight gain on Olaparib??

Having gained some weight during chemo (i ate too many buns as an emotional crutch!) I am now trying to loose it. However finding it impossible to shift....

Having gained some weight during chemo (i ate too many buns as an emotional crut...

suzannebirch

•3 years ago

3 Replies

Good news

Hi ladies, just to say my scan results were clear and l have kicked cancers a..e for the 5th time at least for the time being needless to say l am over the...

Hi ladies, just to say my scan results were clear and l have kicked cancers a..e...

Lewisriley47

•3 years ago

90 Replies

Hello, I'm new to this forum. Does anyone have experience of EP0057? With or without olaparib?

Hello everyone. I was diagnosed with Stage 3/4 ovarian cancer early in 2018. It was carboplatin sensitive, and I've now had two rounds of carboplatin (first...

Hello everyone. I was diagnosed with Stage 3/4 ovarian cancer early in 2018. It ...

Allotmenthappy

•3 years ago

6 Replies

Radiation

I had a hysterectomy in June removing 20cm tumor Grade 3 and other organs. This has been followed by chemotherapy, and I today finished 4th cycle out of 6 of...

I had a hysterectomy in June removing 20cm tumor Grade 3 and other organs. Thi...

NYClady

•3 years ago

14 Replies

Aches and joint pain in the night…

Hi Lovely people, anyone experience aches and pains in the night? I had my 6th and please god final chemo in May. Diagnosed with stage 2 OC in December, full...

Hi Lovely people, anyone experience aches and pains in the night? I had my 6th a...

Spongebobby

•3 years ago

12 Replies

Low grade OC ladies

I just came across an article in the Guardian Newspaper & even though I was diagnosed with high grade OC myself, I just thought in case all the ladies who have...

I just came across an article in the Guardian Newspaper & even though I was diag...

Tulips66

•3 years ago

11 Replies

Hi. Ive been on Lynparza Parp for over a year. I need dental work.. I need extraction. And either a bridge or denture. One tooth is loose.

Dental work. Extraction of crown and post and new bridge or denture

Panther17

•3 years ago

6 Replies

Travel Insurance

Thanks to all you lovely ladies for responding. Insurancewith was suggested several times but they are not accepting new policies. ALLCLEAR turned out to be...

Thanks to all you lovely ladies for responding. Insurancewith was suggested seve...

suzannebirch

•3 years ago

4 Replies

Is wait and see acceptable

I am just finishing round 5 of chemo, carbi/taxol, after a full hysterectomy in March 2021. High grade 2. Doctor says after 6 rounds I will go on blood test...

I am just finishing round 5 of chemo, carbi/taxol, after a full hysterectomy in ...

Chicago59

•3 years ago

16 Replies

Update …… Good News

Well last week I had my bloods and telephone appointment check up and my ca125 is holding at 11, where it’s been since my last chemo in November 2017. It has...

Well last week I had my bloods and telephone appointment check up and my ca125 i...

Eriksendi

•3 years ago

35 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2021

Has anyone had bad experience with anti eostrogen I was put on anastrazole bad side effect then put on tramazole I had more bad side effect

Dendritic Cell Therapy

Niraparib appetite

CA 125 high but stable

Mouth sores

Ovarian cancer bone profile test

Upcoming events with Ovacome

Good News

Bathroom issues on avastin/doxil/carbo

Sudden onset ascities?

Peritoneal Cancer

Debulking & Hernia Repair experiences?

Impending Operation

Avastin v niraparib maintenance

Help

Flu jab

Ca125 Rising

Can you share how its been going on Olaparib as Maintenance Treatment for Ovarian Cancer as well as Infusion Avastin ?

Pain on Gemzar/Gemcitabine

Ovarian cancer and atrial fibrillation

Weight gain on Olaparib??

Good news

Hello, I'm new to this forum. Does anyone have experience of EP0057? With or without olaparib?

Radiation

Aches and joint pain in the night…

Low grade OC ladies

Hi. Ive been on Lynparza Parp for over a year. I need dental work.. I need extraction. And either a bridge or denture. One tooth is loose.

Travel Insurance

Is wait and see acceptable

Update …… Good News

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