Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for July 2021

Just saying, don't give up

Hi Ladies, I just want to say that never give up. I was diagnosed with stage 4 ovarian cancer with secondary in lung. That was the end of 2016. Had surgery,...

Hi Ladies, I just want to say that never give up. I was diagnosed with stage 4 o...

1032

•3 years ago

35 Replies

Chemo tips please

Hello! Any tips to get me through chemo? I meet with the oncologist next week and I’d love to know some practical tips to help get me through, as I’m dreading...

Hello! Any tips to get me through chemo? I meet with the oncologist next week an...

BobbiWillson

•3 years ago

32 Replies

Goblet cell adenocarcinoma found in debulking for OC, desperately looking for someone who knows about this condition

Morning all, gosh sorry for another post so soon after my last- so mum had a debulk on 10th June, and they tested all organs / tissues removed. There was a...

Morning all, gosh sorry for another post so soon after my last- so mum had a deb...

LouieB123

•3 years ago

4 Replies

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Pick line

Hi ladies I’m having a pick line on Friday, after 6years on various chemotherapy I think my veins have given up, so any information on waterproof covers for...

Hi ladies I’m having a pick line on Friday, after 6years on various chemotherap...

Mjb49

•3 years ago

27 Replies

Mums results and worry following debulking surgery

Hi everyone, hope you’re all keeping well. Some of you may remember I posted a few weeks ago about mums debulking surgery (she was debating if she’d consent to...

Hi everyone, hope you’re all keeping well. Some of you may remember I posted a f...

LouieB123

•3 years ago

19 Replies

Upcoming Online Events with Ovacome

Good afternoon everyone We would like to inform you about some upcoming online events with Ovacome throughout the next couple of weeks. There are a range of...

Good afternoon everyone We would like to inform you about some upcoming online e...

OvacomeSupport

Partner•3 years ago

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IBS? Endo? Cyst? Ovarian Cancer? Adenomyoma? Polyp? Womb Cancer? Womb prolapse? It's great being a woman!

Hi all, I'm 50. Previous suspected adenomyoma. Last yr, haemorrhagic cyst & suspected uterine polyp. 5cm Simple Cyst (ovarian) found in Abdo Scan in May, scan...

Hi all, I'm 50. Previous suspected adenomyoma. Last yr, haemorrhagic cyst & susp...

RobinSong70

•3 years ago

4 Replies

Black spots

Hi Ladies, Ive been on Niraparib and Letrozole since March and for the last few days have been getting back spots in front of my eyes (floaters?). Ive checked...

Hi Ladies, Ive been on Niraparib and Letrozole since March and for the last few ...

Robbo16

•3 years ago

6 Replies

Another update

All going on here I can tell you! So as you all know I had the emergency loop colostomy about 6 weeks ago. All was going well. Friday 2nd July had some low...

All going on here I can tell you! So as you all know I had the emergency loop c...

Davonian

•3 years ago

5 Replies

A Big Thank You

I just want to thank all the super ladies on Healthunlocked for the good wishes and advice you’ve given to me over the last few weeks since I’ve been on a...

I just want to thank all the super ladies on Healthunlocked for the good wishes...

Gemimablackvelvet

•3 years ago

33 Replies

Vegan diet with ileostomy for low methionine

Hi , Does anyone manage a vegan diet successfully with an ileostomy? I had chemo then radical debulking last October then chemo till January. I’m currently on...

Hi , Does anyone manage a vegan diet successfully with an ileostomy? I had chemo...

Lookingahead

•3 years ago

3 Replies

Praying for you

I hope it’s benign, or very early stage. If you are finished having children, you may want to consider a total Hysterectomy…… 🙏

I hope it’s benign, or very early stage. If you are finished having children, yo...

Leniko

•3 years ago

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Constipation

What’s is the best way to balance laxatives and painkillers. How many laxatives is it safe to take each day?

What’s is the best way to balance laxatives and painkillers. How many laxatives...

Gemimablackvelvet

•3 years ago

21 Replies

Legs going AWOL?

I am like the Duracell bunny in reverse. 4b OC high grade serous, newly diagnosed, on first dose of taxol and carboplatin, I am finding I have heavy legs...

I am like the Duracell bunny in reverse. 4b OC high grade serous, newly diagnos...

Trickysite

•3 years ago

10 Replies

Goodbye Mum

My Mum’s funeral was on Thursday. We will miss her terribly but it was a beautiful day and very fitting for her. She handled everything with such dignity...

My Mum’s funeral was on Thursday. We will miss her terribly but it was a beauti...

Tulip15

•3 years ago

16 Replies

What is your experience with Gemzar?

A relative has had the following expoerience here in South Africa with OV. He CA 125 was 4000 and she was told Stage 3. She went onto Paclitaxel then...

A relative has had the following expoerience here in South Africa with OV. He CA...

AlaNtO

•3 years ago

2 Replies

Easing of restrictions

I am finding myself increasingly concerned about the easing of restrictions around covid. Everyone seems to think that because I have had !y vaccination I...

I am finding myself increasingly concerned about the easing of restrictions arou...

27-359

•3 years ago

26 Replies

Ovacome Virtual Choir – Every Sunday 3.30pm-5.00pm

Did you know that Ovacome has its very own choir? Every Sunday from 3.30pm-5.00pm our members come together to sing in a fun, relaxed singing group. Our choir...

Did you know that Ovacome has its very own choir? Every Sunday from 3.30pm-5.00...

OvacomeSupport

Partner•3 years ago

2 Replies

Severe abdominal cramps from gas?

Hi everyone! I have been supporting my partner who has 3C high grade serous OC (epithelial). She was diagnosed at the end of August 2020, had debulking surgery...

Hi everyone! I have been supporting my partner who has 3C high grade serous OC (...

Stuee01

•3 years ago

14 Replies

Cabo / doxil / avastin

Tomorrow I am taking my mom for her first infusion of carbo/doxil/avastin. My sister typically would take her during her first chemo rounds and I would do...

Tomorrow I am taking my mom for her first infusion of carbo/doxil/avastin. My si...

Lind58

•3 years ago

6 Replies

Avastin and Olaparib cocktail

Stage 4 Ov. 6 weeks post debaulking and 7 rounds of chemo later Im about to start on 3 weekly Avastin and daily Olaparib PARPS. Any feedback on side effects of...

Stage 4 Ov. 6 weeks post debaulking and 7 rounds of chemo later Im about to star...

suzannebirch

•3 years ago

34 Replies

Patient expert for National Institute for Health and Care Excellence (NICE) niraparib committee meeting

Dear all, The National Institute for Health and Care Excellence (NICE) are reviewing niraparib for platinum-sensitive recurrent ovarian cancer, after second...

Dear all, The National Institute for Health and Care Excellence (NICE) are revie...

TheOvacomeTeam

Partner•3 years ago

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New here and been struggling, especially with paclitaxel

Hi everyone, I'm a total newbie. Diagnosed stage 3c ovarian 3 months ago (came totally out of the blue). Have had M.E. for many years, but was relatively well...

Hi everyone, I'm a total newbie. Diagnosed stage 3c ovarian 3 months ago (came t...

Callipygian

•3 years ago

52 Replies

Has anyone had a longer remission after 2nd line chemo than first

As title really. Ive had 2 lines now and op 4 months ago after first line didnt bring enough shrinkage and only had 6 months stable disease.

As title really. Ive had 2 lines now and op 4 months ago after first line didnt ...

rosebine

•3 years ago

8 Replies

Extra blood tests

Hi everyone hoping everyone is keeping well I'm still no further forward saw a consultant who says he thinks nothing looks sinister takes blood tests I then...

Hi everyone hoping everyone is keeping well I'm still no further forward saw a c...

Buddysmum124

•3 years ago

22 Replies

Taxol or Piqray

After meeting with my onc on Friday and reviewing my liver issue she either wants me on piqray or taxol. We are doing a liver biopsy to make sure may cancer...

After meeting with my onc on Friday and reviewing my liver issue she either want...

Wildcat1

•3 years ago

4 Replies

High CA125 result. How long before diagnosis?

Hi all, I've had awful tummy issues for months now (severe bloating, change in stools, pelvic and abdo pain etc). My CA125 result came back at 68 last...

Hi all, I've had awful tummy issues for months now (severe bloating, change in s...

Charltonjl

•3 years ago

24 Replies

Results from CA125 tests

Well got my results on Thursday CA 125. 12 fantastic its gone up 2 but still low when its been in the thousands before chemo. I mentioned to Doctor that l...

Well got my results on Thursday CA 125. 12 fantastic its gone up 2 but still lo...

Realistic

•3 years ago

11 Replies

Update : my sister CA125 results.

So her CA125 is down to 40. Yeah! 👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻 Small steps……… Last chemotherapy session today, then here’s hoping the surgery is as soon...

So her CA125 is down to 40. Yeah! 👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻 Small steps…...

nettiebobs

•3 years ago

12 Replies

Upcoming Online Groups and Workshops with Ovacome

Hello All, This is to let you know about some Ovacome online groups and workshops that are taking place over the next week. Here is a link to some more...

Hello All, This is to let you know about some Ovacome online groups and workshop...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for July 2021

Just saying, don't give up

Chemo tips please

Goblet cell adenocarcinoma found in debulking for OC, desperately looking for someone who knows about this condition

Pick line

Mums results and worry following debulking surgery

Upcoming Online Events with Ovacome

IBS? Endo? Cyst? Ovarian Cancer? Adenomyoma? Polyp? Womb Cancer? Womb prolapse? It's great being a woman!

Black spots

Another update

A Big Thank You

Vegan diet with ileostomy for low methionine

Praying for you

Constipation

Legs going AWOL?

Goodbye Mum

What is your experience with Gemzar?

Easing of restrictions

Ovacome Virtual Choir – Every Sunday 3.30pm-5.00pm

Severe abdominal cramps from gas?

Cabo / doxil / avastin

Avastin and Olaparib cocktail

Patient expert for National Institute for Health and Care Excellence (NICE) niraparib committee meeting

New here and been struggling, especially with paclitaxel

Has anyone had a longer remission after 2nd line chemo than first

Extra blood tests

Taxol or Piqray

High CA125 result. How long before diagnosis?

Results from CA125 tests

Update : my sister CA125 results.

Upcoming Online Groups and Workshops with Ovacome

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