Posts - My Ovacome | HealthUnlocked

My Ovacome

17,686 members • 19,951 posts

All posts for July 2021

Tingling feeling with Olaparib

Hi everyone, If at least *one* other person says they know what I'm talking about then I'll know I'm not going cuckoo. I've been on Olaparib for 15 months now...

Hi everyone, If at least *one* other person says they know what I'm talking abou...

FlowerRose

•3 years ago

7 Replies

Clinical trial Icon9 - thank you for your replies

Thank you so to Mumsie13, Maria, Jane, Annie at Ovacome Support, Tillymint, Sheila and Sara for your very useful and considerate replies and I now understand a...

Thank you so to Mumsie13, Maria, Jane, Annie at Ovacome Support, Tillymint, Shei...

Duskygem

•3 years ago

3 Replies

Hi Tigger

I have been practicing gratitude like you do and I must say it has lifted my mood. Thank you for all your advice and fantastic ways of coping. You make me...

I have been practicing gratitude like you do and I must say it has lifted my moo...

SEckett

•3 years ago

1 Reply

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OC stage 3 came back

My sis was diagnosed with OC stage 3 met to omentum just last year in May. Now she has reoccurrence in omentum and colon. What does it mean and why it came...

My sis was diagnosed with OC stage 3 met to omentum just last year in May. Now s...

Harp-1

•3 years ago

15 Replies

Got to Have Chemo Again

Hi all, it's been 5 weeks since I had my second debulking surgery following my first recurrence after 5 years free of OC which was diagnosed in 2016/2017. My...

Hi all, it's been 5 weeks since I had my second debulking surgery following my f...

Kouyate

•3 years ago

17 Replies

Lymph nodes

Hi Ladies I posted last month around a discussion some of us were having as to whether Covid / vaccinations have caused an increase in some patients CA125 and...

Hi Ladies I posted last month around a discussion some of us were having as to w...

Barmycharm

•3 years ago

23 Replies

Clinical trial Icon 9

Hello ladies, I have been invited to take part in the Icon 9 clinical trial. The onc will send me info on it but I wondered if you have any experience or info...

Hello ladies, I have been invited to take part in the Icon 9 clinical trial. The...

Duskygem

•3 years ago

7 Replies

Under 45s Group – 4 August 2021 5:00pm-7:00pm

This is a post to let you know about our Under 45s group. We meet on the first Wednesday of every month from 5:00pm - 7:00pm and our next session will be on 4...

This is a post to let you know about our Under 45s group. We meet on the first W...

OvacomeSupport

Partner•3 years ago

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Hi everyone

Thank you to everyone for there kindness, support, advice and love. I’m slowly making sense of everything in my head and my mood is getting better. I found...

Thank you to everyone for there kindness, support, advice and love. I’m slowly m...

SEckett

•3 years ago

8 Replies

Keytruda and Lenvima

Hi Ladies, for some reason I’m no longer able to just search Ovacome. When I do use search it is now broadened and I can only find men with prostrate issues...

Hi Ladies, for some reason I’m no longer able to just search Ovacome. When I do ...

Cbyrdie

•3 years ago

8 Replies

Rising CA 125 but clear scan

My CA 125 has gone from 12 .16 . 18 and after my last blood test has risen to 24 . I had a scan due to kidney stones , which showed no signs of disease. Spoke...

My CA 125 has gone from 12 .16 . 18 and after my last blood test has risen to 24...

Manchesterlady

•3 years ago

34 Replies

Ovarian cancer stage 4

My mother was diagnosed with Ovarian cancer stage 4 at Christmas. She started chemotherapy and then they tried to operate and couldn’t . She’s back to her...

My mother was diagnosed with Ovarian cancer stage 4 at Christmas. She started c...

Lesritsc

•3 years ago

15 Replies

Ovacome Smile Box

Hi everyone We wanted to let you know that Smile Box has created some bespoke Ovacome care packages. The boxes contain a selection of treats and are packed...

Hi everyone We wanted to let you know that Smile Box has created some bespoke Ov...

TheOvacomeTeam

Partner•3 years ago

Be the first to reply

Bowel obstruction

Hi all Not been on here for a while. Was diagnosed 2016 3c hgs, had 3.5 yr remission, then very small recurrence with complete response to chemo. I recently...

Hi all Not been on here for a while. Was diagnosed 2016 3c hgs, had 3.5 yr remis...

MH500

•3 years ago

16 Replies

Post treatment scan

My results show most of the existing cancer has gone or has calcified but there is a new fluid filled cyst on the side of my abdomen which my oncologist says...

My results show most of the existing cancer has gone or has calcified but there ...

Bray

•3 years ago

4 Replies

Thank you

Hi everyone, Thank you for you kindness, support and for the love. I am trying to change the way I think but I’m unfortunately in a bit of a dark place at the...

Hi everyone, Thank you for you kindness, support and for the love. I am trying t...

SEckett

•3 years ago

11 Replies

Bucket List tick! ⛰

Just to show that it is still possible to ‘go for it’ post OC & chemo, I have just returned from a fabulous, (amazingly) sunny week in the Lake District having...

Just to show that it is still possible to ‘go for it’ post OC & chemo, I have ju...

Emsymits

•3 years ago

19 Replies

New

Hi my name is Sheenagh. I am new to this group. I was diagnosed with stage 3 ovarian cancer in June. I was diagnosed within 3 weeks of seeing my GP. The only...

Hi my name is Sheenagh. I am new to this group. I was diagnosed with stage 3 ova...

SEckett

•3 years ago

33 Replies

CA125 after first Taxol/Carbo chemo

I have very recently been diagnosed with ovarian cancer 4a. The plan is 3 or 4 rounds of Taxol/Carbo and then an op followed by a further 3 rounds. Initially...

I have very recently been diagnosed with ovarian cancer 4a. The plan is 3 or 4 r...

Morini

•3 years ago

7 Replies

CA125

In May 2018 I was dx OC - Stage 3 - had hysterectomy and 18 weeks taxol & Carbo. Had first recurrence 18 months later. Then completed 9 months doxil & carbo...

In May 2018 I was dx OC - Stage 3 - had hysterectomy and 18 weeks taxol & Carbo....

ElayneZ

•3 years ago

3 Replies

What is the 1cm thing ?

Ive read a lot about ops where everything cancerous over 1cm should be removed.Does that mean everything under 1cm can be "exterminated" by chemo?

Ive read a lot about ops where everything cancerous over 1cm should be removed....

rosebine

•3 years ago

13 Replies

Online events with Ovacome this week

Hi all This post is to let you know about some upcoming online events with Ovacome throughout the week ahead. There are a range of support groups and...

Hi all This post is to let you know about some upcoming online events with Ovaco...

OvacomeSupport

Partner•3 years ago

Be the first to reply

CA125 after First Doxil/Carbo

Hi ladies, hope everyone is holding up as well as they could be. Can anyone share their ca125 before and after their first treatment of carbo/doxil/avastin?

Hi ladies, hope everyone is holding up as well as they could be. Can anyone shar...

Lind58

•3 years ago

3 Replies

End of Life Matters - Ovacome Support Group

Good afternoon everyone This post is to let you know about our End of Life Matters support group. We meet from 12 – 1:30pm on the third Tuesday of every...

Good afternoon everyone This post is to let you know about our End of Life Matte...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Clinician education project - your help needed

Dear All We are developing a project that will educate clinicians and other practicing healthcare professionals about ovarian cancer from a patient...

Dear All We are developing a project that will educate clinicians and other prac...

TheOvacomeTeam

Partner•3 years ago

4 Replies

Thank you.

Thank you everyone who replied to my post about covid anxiety ,though I wouldn't want anyone to feel like me I am relieved it's not just me being stupid and...

Thank you everyone who replied to my post about covid anxiety ,though I wouldn't...

fendweller

•3 years ago

9 Replies

Covid.

Is anyone else feeling anxious about the covid restrictions being lifted ,I'm really unsettled today , I'll continue to wear a mask ,but I'm still worried....

Is anyone else feeling anxious about the covid restrictions being lifted ,I'm re...

fendweller

•3 years ago

42 Replies

Is it adhesions

Had the op four months ago now, all fine except a stabbing stitch like pain that comes and goes one side. Saw consultant last week. she had a prod but of...

Had the op four months ago now, all fine except a stabbing stitch like pain that...

rosebine

•3 years ago

7 Replies

Peritoneal Cancer

Hello lovely friends on this wonderful supportive site. I was diagnosed in 2018 with peritoneal cancer. I had 6 lines of pacitaxol/carboplatin then debaulking...

Hello lovely friends on this wonderful supportive site. I was diagnosed in 2018 ...

Lesinbeds

•3 years ago

40 Replies

Has your Oncologist broke up with you???

Well Hello, On Thursday went to start my 2nd cycle of Topotecan, which I thought was the norm type of day - blood drawn, labs, visit Dr and then get...

Well Hello, On Thursday went to start my 2nd cycle of Topotecan, which I thought...

PCCDaisy

•3 years ago

26 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for July 2021

Tingling feeling with Olaparib

Clinical trial Icon9 - thank you for your replies

Hi Tigger

OC stage 3 came back

Got to Have Chemo Again

Lymph nodes

Clinical trial Icon 9

Under 45s Group – 4 August 2021 5:00pm-7:00pm

Hi everyone

Keytruda and Lenvima

Rising CA 125 but clear scan

Ovarian cancer stage 4

Ovacome Smile Box

Bowel obstruction

Post treatment scan

Thank you

Bucket List tick! ⛰

New

CA125 after first Taxol/Carbo chemo

CA125

What is the 1cm thing ?

Online events with Ovacome this week

CA125 after First Doxil/Carbo

End of Life Matters - Ovacome Support Group

Clinician education project - your help needed

Thank you.

Covid.

Is it adhesions

Peritoneal Cancer

Has your Oncologist broke up with you???

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