Posts - My Ovacome | HealthUnlocked

My Ovacome

17,804 members • 20,046 posts

All posts for April 2021

No scan results....waiting over 3 weeks

Had scan over 3 weeks ago and still waiting for results. 4 weeks this Thursday. Anyone else in the U.K having long waits?

Had scan over 3 weeks ago and still waiting for results. 4 weeks this Thursday. ...

win_56

•3 years ago

20 Replies

Tips for beating Niraparib nausea

Have any of you wonderful women any tips for reducing the nausea resulting from taking Niraparib please? Started on 200 mg 19th March and felt really well...

Have any of you wonderful women any tips for reducing the nausea resulting from ...

Cumbrianlass5

•3 years ago

12 Replies

Another CA-125 anxiety post

Oh, you fiendish CA-125 tests! I know there's lots of posts about this, but I'm stewing about this issue as well. It's such an emotional battle; cognitively I...

Oh, you fiendish CA-125 tests! I know there's lots of posts about this, but I'm ...

Angela2932

•3 years ago

31 Replies

Want to take advantage of all our features? Just log in!

Waiting waiting waiting First Post

Hello, had BC 4 years ago, good result. Now OC. Saw GP 10/3/21. Associate Consultant 22/3/21, US scan 23/3/21, CT scan 30/3/21 (pelvic area and abdo). Saw...

Hello, had BC 4 years ago, good result. Now OC. Saw GP 10/3/21. Associate Consu...

Whybirdie

•3 years ago

12 Replies

Duphaston

Hi. I suffer from PCOS. I took Duphaston pills on January 16-25 of my period. On March 6, I had unprotected sex during menstruation, on the third day, without...

Hi. I suffer from PCOS. I took Duphaston pills on January 16-25 of my period. On...

alexandraaa6

•3 years ago

2 Replies

Sunburn

I have been On Rubraca for over a month now, and know that I need to be protecting my skin from the sun, but the actual sensitivity is confounding me. I met...

I have been On Rubraca for over a month now, and know that I need to be protecti...

27-359

•3 years ago

16 Replies

Red face

I had my first chemo on 5/4/2021 but since then my face is so red around my cheeks any tips to stop this xx

I had my first chemo on 5/4/2021 but since then my face is so red around my chee...

polo2014

•3 years ago

11 Replies

Now on Doxil, what do I need to know?

Well Hello, Just got my CT Scan results and showed minimal progression and CA 125 at a 25. Because of it rose 14 points from last month and no movement since...

Well Hello, Just got my CT Scan results and showed minimal progression and CA 12...

PCCDaisy

•3 years ago

7 Replies

Rising CA125

Hi. Looking for some advice. I completed 6 cycles of chemo (carbo, taxol plus avastin) in early October with a CA125 of 16 (op was in July). I have continued...

Hi. Looking for some advice. I completed 6 cycles of chemo (carbo, taxol plus av...

LesleyGB

•3 years ago

13 Replies

Libido

Just a question I had dianosis seven years ago but since then my and my husband have not had sex we have cuddles but my husband and I have no libido my husband...

Just a question I had dianosis seven years ago but since then my and my husband ...

Bobbyo1

•3 years ago

13 Replies

Olaparib week 1!

Hi All, Hope everyone is keeping well. I'm a newbie with a 1st time post ever. I had a Breast Cancer relapse in my stomach. Thank God the tumours shrank...

Hi All, Hope everyone is keeping well. I'm a newbie with a 1st time post ever....

Onlygrace

•3 years ago

3 Replies

Ascites

Hello, I was recently diagnosed with high grade serous ovarian and had my first chemo on Tuesday. Prior to that I was really suffering from ascites and was...

Hello, I was recently diagnosed with high grade serous ovarian and had my first ...

Horsesrock

•3 years ago

4 Replies

Caelyx side effect advice on scalp ache

Hi Ladies, My Mum has had her first session with this drug, it’s not going well and I think she’ll be changing drugs again, but in the meantime she is telling...

Hi Ladies, My Mum has had her first session with this drug, it’s not going well ...

LittleMissMerit

•3 years ago

12 Replies

Roto virus and PARP inhibitors

Hi ladies, Just wondering if it is safe to interact with my grandson who has just received the 1st dose of rota virus immunisation. I am taking Olaparib and...

Hi ladies, Just wondering if it is safe to interact with my grandson who has jus...

Dubai18

•3 years ago

2 Replies

Recordings of previous Ovacome online events

Hello, everyone For anyone who wasn't able to attend one of our online sessions, or if you were there and would like to watch it again, we have recordings of...

Hello, everyone For anyone who wasn't able to attend one of our online sessions,...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Ovarian cancer fluid on lung

Hi I’m really worried mum is waiting for her next chemo to start. She had fluid on the lung last week they drained it, it is now back so she is in hospital...

Hi I’m really worried mum is waiting for her next chemo to start. She had fluid ...

Aliollie

•3 years ago

20 Replies

In focus: approaches to earlier diagnosis - introduction to screening

Hello In last month’s ‘Health in Focus’ posts for Ovarian Cancer Awareness Month, we looked at some of the ways of raising awareness of the symptoms of ovarian...

Hello In last month’s ‘Health in Focus’ posts for Ovarian Cancer Awareness Month...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Should I get a port/ PICC or just hold off?

Hi Lovely Ladies, I have just started second line chemotherapy ( carboplatin/ caelyx) after a rather short remission. My veins are now described as "shy' and...

Hi Lovely Ladies, I have just started second line chemotherapy ( carboplatin/ ca...

SASSY196

•3 years ago

35 Replies

Gemcitabine

Can anyone tell me how difficult Gemcitabine is to cope with please? I may be offered a place on a trial that includes Gemcitabine & a trial drug, & I need...

Can anyone tell me how difficult Gemcitabine is to cope with please? I may be ...

Di16

•3 years ago

6 Replies

Rotterdam regimen - any experience?

Morning ladies. Has anyone had any experience of the Rotterdam regimen? I was told last week that my cancer is terminal and this is the best option to give me...

Morning ladies. Has anyone had any experience of the Rotterdam regimen? I was to...

Dichad

•3 years ago

6 Replies

Chemotherapy for ovarian cancer

Hi my mums Niraparib has stopped working and is waiting for more chemo, am really worried as they said she couldn’t go on another PARP inhibitor as a...

Hi my mums Niraparib has stopped working and is waiting for more chemo, am reall...

Aliollie

•3 years ago

16 Replies

Online groups, talks and workshops with Ovacome this week

Hello All, This is to let you know about the Ovacome online events taking place this week. Gentle home exercise class - Tuesday 6 April, 2-3pm...

Hello All, This is to let you know about the Ovacome online events taking place ...

OvacomeSupport

Partner•3 years ago

Be the first to reply

First chemo done

Hi guys thanks for all you lovely messages wasn’t as bad as I thought and they let my daughter stay with me they were lovely .up till now I feel fine xxx

Hi guys thanks for all you lovely messages wasn’t as bad as I thought and they l...

polo2014

•3 years ago

8 Replies

Facial hair

I havent really looked at myself in the mirror for 2 weeks (hospital and too scared at home) but today I have looked closely at my face and I am growing a...

I havent really looked at myself in the mirror for 2 weeks (hospital and too sca...

rosebine

•3 years ago

15 Replies

D day

Well the first day of chemo is here won’t say I’m not nervous but I am determined to stay positive and fight this horrible cancer so here go’s 1pm today I...

Well the first day of chemo is here won’t say I’m not nervous but I am determine...

polo2014

•3 years ago

21 Replies

Olaparib - reduce tumor size?

Happy Easter to everyone. Mother will start Olaparib in 9 days. She has rare BRCA 2 mutation (great rearrangements). She is not NED at the moment and she has...

Happy Easter to everyone. Mother will start Olaparib in 9 days. She has rare BRC...

ivanco1

•3 years ago

7 Replies

Update

Just an update , had my tv ultrasound and I have 2 cysts , one is 3 cm and the other is 7cm x 3 cm , still bloated +++, lower back pain , difficulty going to...

Just an update , had my tv ultrasound and I have 2 cysts , one is 3 cm and the o...

Cathhunt

•3 years ago

5 Replies

CA 125 rise in a Month but still in the normal range.

Well Hello... Just finished up my 16 weeks of Taxol and now before I can get two more rounds the insurance wants me to get a CT Scan before they will pay for...

Well Hello... Just finished up my 16 weeks of Taxol and now before I can get two...

PCCDaisy

•3 years ago

15 Replies

Rucaparib

Morning everyone , bit of advice please, my Rucaparib,( might be spelt wrong) arrived aaagggg ! I'm due to start taking them tomorrow , anxious to say the...

Morning everyone , bit of advice please, my Rucaparib,( might be spelt wrong) ar...

fendweller

•3 years ago

15 Replies

De bulking operation, advice please

I have an aggressive, probable ovarian origin, cancer which has been treated over the past 18 months with paclitaxel and carboplatin, Caelyx, and topotecan....

I have an aggressive, probable ovarian origin, cancer which has been treated ove...

Fishfinger4

•3 years ago

14 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for April 2021

No scan results....waiting over 3 weeks

Tips for beating Niraparib nausea

Another CA-125 anxiety post

Waiting waiting waiting First Post

Duphaston

Sunburn

Red face

Now on Doxil, what do I need to know?

Rising CA125

Libido

Olaparib week 1!

Ascites

Caelyx side effect advice on scalp ache

Roto virus and PARP inhibitors

Recordings of previous Ovacome online events

Ovarian cancer fluid on lung

In focus: approaches to earlier diagnosis - introduction to screening

Should I get a port/ PICC or just hold off?

Gemcitabine

Rotterdam regimen - any experience?

Chemotherapy for ovarian cancer

Online groups, talks and workshops with Ovacome this week

First chemo done

Facial hair

D day

Olaparib - reduce tumor size?

Update

CA 125 rise in a Month but still in the normal range.

Rucaparib

De bulking operation, advice please

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive